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Elevating Survivor & Caregiver Voices at the International Stroke Conference
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In this special episode recorded live at the International Stroke Conference (ISC25), we dive into the American Stroke Association’s pilot program, Stroke Connections. This initiative is designed to amplify the voices of stroke survivors and caregivers, ensuring their lived experiences are heard at the conference—a group that has historically been underrepresented in stroke research and advocacy.
Join me as I chat with Stephanie Mohl, National Vice President of the American Stroke Association, and two inspiring stroke survivors and advisory committee members, Gracie Doran and Michelle Ballasiotes (previous guest on Episode 55). We discuss how the Stroke Connections pilot is bridging the gap between research and lived experience, and the importance of community and advocacy for improving stroke care.
While the program is still in its early stages, the goal is to secure sponsors to expand and make survivor perspectives a permanent part of future conferences.
Takeaways from this episode:
- The International Stroke Conference is a critical platform for both research and survivor voices.
- Incorporating survivor experiences into research and conferences can lead to more impactful stroke care and advocacy.
- The Stroke Connections program provides an opportunity to amplify the voices of survivors and caregivers in shaping stroke care and research.
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Show credits:
Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.
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Know Stroke Podcast Disclaimer:
Our podcast and media advertising services are for informational purposes only and do not constitute the practice of medical advice, diagnosis or treatment.
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