Najlepsze podcasty z kategorii: Neurological Disorder (2024)

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21. Here's a Warrior: Multiple Sclerosis & Type 1 Narcolepsy ft. Nicole Kenyon 47:11

16d ago47:11

47:11

Send us a text This week's episode is with Nicole Kenyon, head of the National MS Society Community Council in Tampa and a passionate fitness enthusiast. Living with Multiple Sclerosis and Type 1 Narcolepsy, she is committed to empowering others through legislative advocacy, fundraising, and fitness and community initiatives. In our conversation, N…

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20. Here's a Warrior: Traumatic Brain Injury ft. Erica Renee Walker 22:37

2M ago22:37

22:37

Send us a text This week's episode is with Erica Renee Walker, a TBI survivor and coach who is dedicated to raising awareness and helping others navigate life with brain injuries. In this episode, Erica opens up about her experience with traumatic brain injury (TBI), discussing how she sustained her injury, the hidden symptoms she manages, and how …

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19. Here's a Warrior: Tuberous Sclerosis Complex ft. Nic, Elizabeth, & Beckett Brown 25:54

4M ago25:54

25:54

Send us a text This week's episode is with Nic Brown, father of Beckett. After their 2-year-old son Beckett was diagnosed with Tuberous Sclerosis Complex, a rare genetic disorder, Nic and his wife Elizabeth became dedicated advocates for the cause. In this episode, Nic shares their long journey to obtain a diagnosis for Beckett and their challenges…

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18. Here's an Ally: Foundation to Fight H-ABC ft. Michele Levoir Sloan 20:02

5M ago20:02

20:02

Send us a text This week's episode is with Michele Levoir Sloan, co-founder of the Foundation To Fight H-ABC. Michele and her husband started the foundation in 2015 after their daughter was diagnosed with H-ABC. Since then, they have supported families affected by this condition worldwide, collaborated with numerous nonprofits, and worked alongside…

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17. Here's an Ally: Patient Helpline + Patients Rising ft. Samantha Sauer 36:24

5M ago36:24

36:24

Send us a text This week's episode is with Samantha Sauer, a patient navigator and the Director of the Patient Helpline at Patients Rising. Patients Rising is an organization that aims to empower patients in America to advocate for reforms, placing them, alongside their doctors, in control of their healthcare choices. The Patient Helpline, a nonpro…

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16. Here's a Warrior: Autism Spectrum Disorder & Type 1 Narcolepsy ft. Rachel Nesmith 32:03

6M ago32:03

32:03

Send us a text This week's episode is with Rachel Nesmith, a singer-songwriter, mother, and advocate. Rachel has Autism Spectrum Disorder and Type 1 Narcolepsy, so today, we begin by discussing the setbacks she has faced and overcome living with ASD and then transition to her Narcolepsy. Rachel and I start by talking about the misconceptions behind…

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15. Here's an Ally: The Spero Clinic ft. Dr. Katinka van der Merwe 36:58

7M ago36:58

36:58

Send us a text This week's episode is with Dr. Katinka van der Merwe, a Doctor of Chiropractic who focuses on nervous system rehabilitation to help those suffering from chronic pain. She grew up just outside of Johannesburg, South Africa, and immigrated to the United States to receive her Doctor of Chiropractic degree. Since then, she has received …

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14. Here's an Ally: Syngap1 Foundation ft. Monica Dudley-Weldon 1:00:54

7M ago1:00:54

1:00:54

Send us a text Today's episode features Monica Dudley-Weldon! Not only is she the founder and CEO of the Syngap1 foundation, but she also has a background in biology and teaching and attended Law School. Her son, Beckett, was the 6th person in the world and 3rd in the United States to be diagnosed with Syngap1-Related Disorder, an intellectual diso…

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13. Here's a Warrior: LGI1 Autoimmune Encephalitis ft. Lisa Lauter 39:43

11M ago39:43

39:43

Send us a text Today's episode is with Lisa Lauter, a nurse and public health advocate, raising awareness for encephalitis and promoting holistic and conventional medicine approaches to recovery. When she received a devastating diagnosis of autoimmune encephalitis (AE), Lisa deliberately began implementing changes to her diet and mindset and starte…

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12. Here's a Warrior: Idiopathic Intracranial Hypertension, Neuro-Behçet's Syndrome, Parkinson's Disease ft. Levi Peterson 48:09

12M ago48:09

48:09

Send us a text This week's episode is with Levi Peterson, a fighter of Idiopathic Intracranial Hypertension, Neuro-Behçet's syndrome, and Parksinon's disease. Levi has also experienced 10 major brain surgeries, resulting in her becoming an expert on shunting technology from past complications. In the past, she was an EMT, and currently, she is a pa…

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11. Here's an Ally: Vistim Labs ft. James Hamet 43:31

1y ago43:31

43:31

Send us a text Today's episode is with the CEO and founder of Vistim Labs, James Hamet. In addition to building mind-controlled wheelchairs and ice sculpting, Mr. Hamet focuses on tracking cognitive decline in individuals with neurodegenerative diseases, accelerating diagnosis while allowing for effective disease management in the future. This is d…

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10. Here's an Ally: Parkinson's Disease ft Dr. George Ackerman 35:18

1y ago35:18

35:18

Send us a text This week's episode is with Dr. George Ackerman, an attorney and Parkinson's Disease advocate. After being the primary caregiver for his mother, Sharon, who sadly passed away from Parkinson's, Dr. Ackerman strives to help other families experiencing similar struggles. In this episode, Dr. Ackerman starts by sharing heartfelt stories …

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9.Here's a Warrior: Neurological Perspective to Ehlers-Danlos Syndrome ft. Carter Hemion 26:41

1+ y ago26:41

26:41

Send us a text This week's episode is with Carter Hemion, a public speaker, legislative advocate, and fighter of EDS. Carter shares his long journey with EDS and all the painful experiences and uncertainties he endured before and after diagnosis. We also explore the range of symptoms accompanying EDS, specifically focusing on the neurological sympt…

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8. Here's an Ally: Headache ft Dr. Aniket Natekar 1:02:35

1+ y ago1:02:35

1:02:35

Send us a text This week's episode features board-certified neurologist and headache specialist Aniket Natekar, MD, MSc. After completing his undergraduate degree at the Western University of London, Ontario, he pursued medical school at the John A. Burns School of Medicine in Hawaii. He later completed a residency in neurology and a fellowship in …

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7. Here's a Warrior: Another Perspective on Type 1 Narcolepsy ft. Tara O'Connor 28:27

1+ y ago28:27

28:27

Send us a text In this week's episode, I spoke with Tara O'Connor, dog mom, aunt, EMG technician, and warrior of Type 1 Narcolepsy (Narcolepsy with Cataplexy). Tara and I talk about the importance of self-advocacy--especially in the school setting--to receive proper accommodations. Unfortunately, Tara talks about how she was denied accommodations f…

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6. Here's a Warrior: Alice in Wonderland Syndrome ft Robin Powers 32:00

1+ y ago32:00

32:00

Send us a text This week's episode is with Robin Powers, a warrior of Alice in Wonderland Syndrome. In her free time, she also loves to write and recently published a book about her other rare condition: Ehlers-Danlos Syndrome (EDS). After experiencing multiple hardships in her childhood, Robin became a young advocate, giving a voice to others with…

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5. Here's An Ally: Huntington's Disease ft Ashley Clarke 1:02:22

1+ y ago1:02:22

1:02:22

Send us a text This week's episode is with Ashley Clarke, a devoted advocate for Huntington's Disease in Northern Ireland! After watching her father experience this terrible condition, she started to educate others about Huntington's Disease and research to create a safe and inclusive community. In this episode, she shares the numerous ways in whic…

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4. Here's a Warrior: Type 1 Narcolepsy ft Matthew Horsnell 34:37

1+ y ago34:37

34:37

Send us a text This week's episode is with Matthew Horsnell, a dedicated advocate and father of 3 with Type 1 Narcolepsy or Narcolepsy with Cataplexy. He is also a researcher and has co-authored 3 papers and is the lead author of 1 other! During our conversation, we talk about the changes Matthew has made to accommodate Type 1 Narcolepsy, the impor…

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3. Here's a Warrior: Stiff-Person Syndrome ft Jennifer Trujillo 1:35:40

1+ y ago1:35:40

1:35:40

Send us a text This week's episode is with Jennifer Trujillo, an inspiring woman and warrior of Stiff-Person Syndrome. She loves to sing, spend time with her family, and was also featured in Céline Dion's music video! In this interview, we talk about Jennifer's long and terrible experiences with the US Medical System, the necessity of research and …

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2. Here's a Warrior: Functional Neurological Disorder ft Jess Clough 47:09

1+ y ago47:09

47:09

Send us a text This week's interview is with Jess Clough, from Australia! She has Functional Neurological Disorder, which affects how the nervous system sends and receives messages. In this interview, we talk about the stigma that Freudian psychology has brought to FND, the importance of modern perspectives in medicine, and a term I have never hear…

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1. Here's a Warrior: Friedreich's Ataxia ft Hasitha Illa 17:38

2y ago17:38

17:38

Send us a text This week's interview is with an amazing woman named Hasitha Illa who is a fighter of Friedreich's Ataxia. She is also an avid blogger and passionate writer who has just released a children's book on disabilities! In this episode, we talk about Hasitha's experience with FA, the importance of inclusivity, the value of advocating for n…

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Welcome to The Neurological Disorder Podcast! 1:15

2y ago1:15

1:15

Send us a text This is some background as to what this podcast will be about If you have any questions or concerns, feel free to reach out to me through neurologicaldisorderpodcast@gmail.com!Autor: Mridula

Podcasty warte posłuchania

Neurological Disorder Podcasty

Podcasty warte posłuchania

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The Neurological Disorder Podcast

Mridula Bharathi

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21. Here's a Warrior: Multiple Sclerosis & Type 1 Narcolepsy ft. Nicole Kenyon 47:11

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20. Here's a Warrior: Traumatic Brain Injury ft. Erica Renee Walker 22:37

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19. Here's a Warrior: Tuberous Sclerosis Complex ft. Nic, Elizabeth, & Beckett Brown 25:54

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18. Here's an Ally: Foundation to Fight H-ABC ft. Michele Levoir Sloan 20:02

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17. Here's an Ally: Patient Helpline + Patients Rising ft. Samantha Sauer 36:24

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16. Here's a Warrior: Autism Spectrum Disorder & Type 1 Narcolepsy ft. Rachel Nesmith 32:03

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15. Here's an Ally: The Spero Clinic ft. Dr. Katinka van der Merwe 36:58

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14. Here's an Ally: Syngap1 Foundation ft. Monica Dudley-Weldon 1:00:54

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13. Here's a Warrior: LGI1 Autoimmune Encephalitis ft. Lisa Lauter 39:43

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12. Here's a Warrior: Idiopathic Intracranial Hypertension, Neuro-Behçet's Syndrome, Parkinson's Disease ft. Levi Peterson 48:09

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11. Here's an Ally: Vistim Labs ft. James Hamet 43:31

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10. Here's an Ally: Parkinson's Disease ft Dr. George Ackerman 35:18

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9.Here's a Warrior: Neurological Perspective to Ehlers-Danlos Syndrome ft. Carter Hemion 26:41

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8. Here's an Ally: Headache ft Dr. Aniket Natekar 1:02:35

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7. Here's a Warrior: Another Perspective on Type 1 Narcolepsy ft. Tara O'Connor 28:27

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6. Here's a Warrior: Alice in Wonderland Syndrome ft Robin Powers 32:00

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5. Here's An Ally: Huntington's Disease ft Ashley Clarke 1:02:22

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4. Here's a Warrior: Type 1 Narcolepsy ft Matthew Horsnell 34:37

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3. Here's a Warrior: Stiff-Person Syndrome ft Jennifer Trujillo 1:35:40

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2. Here's a Warrior: Functional Neurological Disorder ft Jess Clough 47:09

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1. Here's a Warrior: Friedreich's Ataxia ft Hasitha Illa 17:38

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Welcome to The Neurological Disorder Podcast! 1:15

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