Rare publiczne
[search 0]
Więcej
Download the App!
show episodes
 
Artwork

1
The Rare Life

Madeline Cheney

icon
Unsubscribe
icon
Unsubscribe
Co tydzień
 
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
  continue reading
 
Artwork

1
RARECast

RARECast

icon
Unsubscribe
icon
Unsubscribe
Co tydzień
 
RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
  continue reading
 
Artwork

1
A Podcast of Rare Antiquities

A Podcast of Rare Antiquities

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie
 
Welcome to A Podcast of Rare Antiquities! Host’s Harry and Geoff discuss and analyze film and television shows. This podcast mainly delves into more obscure and forgotten films but latest releases are sometimes covered. We hope this is the rare antiquity you are looking for.
  continue reading
 
Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind.
  continue reading
 
Artwork

1
Rare with Flair

Casey Greer and Cassandra Mendez

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie+
 
Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
  continue reading
 
Artwork

1
Rare Cuts Media Society

Rare Cuts Media Society

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie
 
Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
  continue reading
 
Artwork

1
Rare But Real

Audrey Broggi

icon
Unsubscribe
icon
Unsubscribe
Co tydzień
 
Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
  continue reading
 
Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
  continue reading
 
Artwork

1
Rarefied Podcast

Meredith Meeker

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie+
 
This podcast is about rare and wonderful creatures that are at risk of disappearing and the amazing people working hard to save them! Have you ever wanted to know why they call the Loggerhead Shrike the Butcher Bird? Have you wondered where have all the bats gone? Or asked yourself what is being done to protect the creatures that can’t stand up for themselves? Well this is the podcast for you!
  continue reading
 
Artwork

1
Rare Kidney Disease Show

Travere Therapeutics

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie
 
Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
  continue reading
 
Artwork

1
Rare Book Chat

Jeremy O'Connor and Michael DiRuggiero

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie+
 
Dive deep into the fascinating world of rare books with Rare Book Chat. Hosted by Michael DiRuggiero and Jeremy O'Connor, the co-founders of The Manhattan Rare Book Company, this podcast explores the unique and often valuable items that fill the world of rare books, manuscripts, letters, photographs, archives, and more. From historical documents to literary first editions, we'll discuss the stories behind these one-of-a-kind treasures. Join us as we explore the intricacies of the rare book t ...
  continue reading
 
Artwork
 
Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
  continue reading
 
Artwork

1
I Care for Rare

Sandra Markus

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie
 
A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
  continue reading
 
Artwork
 
I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
  continue reading
 
Artwork

1
Patient Empowerment Program: A Rare Disease Podcast

n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie+
 
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
  continue reading
 
Hello, welcome to A Rare Breed Podcast! My name is Avee (Aw-vee) your host. This show will bring you entertainment and enlightenment. My opinions on topics from politics, social ideology, culture, and more! I try to keep it light, sweet and to the point. I want to give you my juicy take on what is going on in the world and keep the movement of conservative's going strong. The left will not win!
  continue reading
 
Artwork

1
RareErth Podcast

Manoj Radhakrishna

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie
 
Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...
  continue reading
 
Artwork

1
Hei Rare

Rare

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie
 
Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
  continue reading
 
Artwork

1
Medium Rare

Caleb & Josh

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie
 
"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
  continue reading
 
Artwork

1
Rare Cryptid Pods

Rare Cryptid

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie
 
The home of Schwarzenegger Watch Together, the podcast that chronologically critiques the career of actor, bodybuilder, politician and American hero Arnold Schwarzenegger, and other projects
  continue reading
 
Artwork

1
Rare Treasures

Steph Deague-Hall

icon
Unsubscribe
icon
Unsubscribe
Codziennie+
 
Rare Treasures is a podcast all about rare conditions and disabilities. Each episode will focus on a rare disability or condition. We will gather information and statistics as well as interview people affected by the condition.
  continue reading
 
Artwork

1
RareWine Podcast - Viden om vin

RareWine Podcast - Viden om vin

icon
Unsubscribe
icon
Unsubscribe
Miesięcznie
 
Lær mere om vin og vinens forunderlige verden mens du er på farten - dét er præmissen for denne, ikke helt traditionelle, podcast udgivet af RareWine Group. Vi har kombineret podcastformatet med det bedste fra lydbøger. Således kan du her finde vores yndlingsartikler og portrætter om de største producenter og de mest populære vinområder serveret i en række korte podcast-episoder, som du kan lytte til mens du er på farten. Bliv klogere på selveste Domaine de la Romanée-Conti, lær om hvorfor C ...
  continue reading
 
Loading …
show series
 
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Katherine Mathews, MD, winner of the Muscular Dystrophy Association's 2025 Legacy Award for Achievement in Clinical Research for her contributions to understanding and treating genetic disorders affecting the neuromuscular system.…
  continue reading
 
For a lot of us, the answer isn’t simple. You can miss your lighter, less-traumatized self and feel proud of who you’ve become. That’s the tension so many of us sit in as medical parents: grieving the carefree, well-rested version of ourselves while also seeing strength, resilience, and depth we didn’t know we had. In this episode, I’m joined by Al…
  continue reading
 
Part 3 of Rowdy Roddy Piper In today's conversation, we dive deep into the world of professional wrestling and beyond, as we unwrap the life and legacy of one of its most charismatic figures—Roddy Piper. Join your hosts Andrew, Mike, Rob, and Eric as they explore the complexities of Roddy Piper through the lens of Eric’s Pick, the “A&E Biography WW…
  continue reading
 
Meghan Weaver interviews Charlie Taylor from Foundation of Strength, discussing their partnership with gyms to provide fitness programs for individuals with autism, Down syndrome, and other different abilities. Charlie shares his journey, from his early interest in weightlifting to his initiation into training individuals with special needs. They t…
  continue reading
 
We're joined by Organized Meat to discuss Lou Reed's solo career. His electric shock therapy as a kid, The Velvet Underground, Andy Warhol, The Factory, and nearly every solo album Reed released in his career. Follow Organized Meat on X https://x.com/BazillionplusRare Candy Premium Episodes and Written Content https://rarecandy.substack.com/All Rar…
  continue reading
 
Bonus Episode of the FSR Sarc Fighter podcast. In this bonus episode of the FSR Sarc Fighter podcast -- a reminder of the fantastic progress that has been made when it comes to making it possible for people to participate in clinical trials. Thanks to the tireless work of the team at the Foundation for Sarcoidosis Research and the support of Mallin…
  continue reading
 
For decades, researchers have sought better treatments for pulmonary hypertension in interstitial lung disease, a condition that drastically impacts patients’ quality of life. In this episode, Dr. Rajan Saggar dives into the latest advancements, including new inhaled medications, upcoming clinical trials, and the push for more personalized treatmen…
  continue reading
 
Send us a text Melissa was 17 when she had her first child Evan. Evan was born with a cleft palate and developed 30 other conditions throughout his life. He wasn't expected to live and doctors told her to take him home and let him pass naturally. She was given what she calls a never list (He will never sit up, he will never talk, he will never stan…
  continue reading
 
I included a few pro-Trump tariff clips and a few tariff critics to give you the most even-keeled podcast on the topic! Enjoy. Ad: Protect your wealth with precious metals! Call American Hartford Gold today & get up to $15,000 in free silver on your 1st order! Call 844-399-2448 or Text DREAM to 65532, or Click the link below: https://offers.america…
  continue reading
 
Spinocerebellar ataxia includes a group of rare, genetic, neurodegenerative disorders. People with the condition suffer from the loss of balance, coordination, and muscle control. As the condition progresses, people can lose the ability to walk and speak. There is no approved treatment for SCA, but Biohaven has applied to the U.S. Food and Drug Adm…
  continue reading
 
For n-Lorem's Chief Operating Officer, Sarah Glass, the mission of n-Lorem is deeply personal. Her son Ethan was diagnosed with a nano-rare mutation, a journey that has shaped her commitment to the cause. A geneticist by training, Sarah joined n-Lorem to help lead and guide the organization in its efforts to offer hope and potential help through tr…
  continue reading
 
hi hello hey, let’s talk about skincare today! Skincare has gotten really trendy online thanks to creators on TikTok and Instagram telling your which creams to use to make you look younger. While we’ve talked about makeup and sunscreen some time back, we haven’t done a full skincare routine episode. Even if you’re not a chronically online girlie, c…
  continue reading
 
Title: Intro to FSGS Episode Description: In this episode of the Rare Kidney Disease Show, Howard Trachtman, Adjunct Professor of Pediatrics at the University of Michigan, and Chris Gisler, medical director at Travere Therapeutics, explore the complexities of FSGS, covering its pathophysiology, classifications, and clinical presentation. They discu…
  continue reading
 
In this episode of 'Rarefied,' host Meredith Meeker revisits the past 14 episodes to reflect on the conservation efforts for some endangered and imperiled species across North America. Starting with the central theme of habitat loss and delving into issues like diseases, pests, recreation, and climate change, the episode intertwines powerful succes…
  continue reading
 
Special guest Sarah Funke Butler (funkeliterary.com) joins Jeremy and Michael to discuss a fascinating and newly unearthed trove of letters from Ernest Hemingway to the groundbreaking journalist Lillian Ross. You think you knew everything about Hemingway? Well, think again - this collection of letters has forced us to reconsider our understanding o…
  continue reading
 
Loading …

Skrócona instrukcja obsługi

Posłuchaj tego programu podczas zwiedzania
Odtwarzanie