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Treść dostarczona przez Retina UK. Cała zawartość podcastów, w tym odcinki, grafika i opisy podcastów, jest przesyłana i udostępniana bezpośrednio przez Retina UK lub jego partnera na platformie podcastów. Jeśli uważasz, że ktoś wykorzystuje Twoje dzieło chronione prawem autorskim bez Twojej zgody, możesz postępować zgodnie z procedurą opisaną tutaj https://pl.player.fm/legal.
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The Blind Poet, Dave Steele
Manage episode 379471613 series 3200318
Treść dostarczona przez Retina UK. Cała zawartość podcastów, w tym odcinki, grafika i opisy podcastów, jest przesyłana i udostępniana bezpośrednio przez Retina UK lub jego partnera na platformie podcastów. Jeśli uważasz, że ktoś wykorzystuje Twoje dzieło chronione prawem autorskim bez Twojej zgody, możesz postępować zgodnie z procedurą opisaną tutaj https://pl.player.fm/legal.
The Blind Poet, Dave Steele, talks candidly about his diagnosis, his poetry and his optimistic mindset.
202 odcinków
Manage episode 379471613 series 3200318
Treść dostarczona przez Retina UK. Cała zawartość podcastów, w tym odcinki, grafika i opisy podcastów, jest przesyłana i udostępniana bezpośrednio przez Retina UK lub jego partnera na platformie podcastów. Jeśli uważasz, że ktoś wykorzystuje Twoje dzieło chronione prawem autorskim bez Twojej zgody, możesz postępować zgodnie z procedurą opisaną tutaj https://pl.player.fm/legal.
The Blind Poet, Dave Steele, talks candidly about his diagnosis, his poetry and his optimistic mindset.
202 odcinków
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×The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monhtly or quartely direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442…
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1 Webinar: Together We Can: ways you can get involved! 40:25
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At Retina UK, we believe that together, we can make a real difference in the lives of those affected by retinal conditions. That’s why we’re inviting you listen to our webinar, "Together We Can: Ways You Can Get Involved!" – your guide to exciting fundraising opportunities in 2025. Whether you’re a seasoned fundraiser or new to supporting us, this webinar is packed with ideas and inspiration to help you get involved. From taking on iconic challenges like marathons and walks to hosting your own events, we’ll explore a variety of ways you can contribute to raising awareness and vital funds for research into inherited retinal diseases. Listen to hear from members of our fundraising team, meet passionate supporters, and learn how you can make 2025 the year you take action and make a lasting impact.…
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1 A deep dive into CBS with Dr Jasleen Jolly 39:07
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In this podcast we talk to Dr Jasleen Jolly, Associate Professor at Jolly Vision Science and Honorary fellow at Melbourne University. We are also joined by Yvette Chivers, Helpline Coordinator at Retina UK, who is living with Retinitis Pigmentosa (RP) and experiences CBS. Charles Bonnet Syndrome is phenomenon where some people with sight loss experience visual hallucinations. Tune in to find out more about CBS, Yvette's experience and the work that Dr Jasleen Jolly is doing. Researchers at Cardiff University are currently looking for participants to take part in a 60 minute online survey about experiences of Charles Bonnet syndrome, which is open to anyone with sight loss, regardless of whether they experience hallucinations. The survey asks about the nature of your visual impairment, your experiences of CBS (if any), and your visual imagination. For more information, visit https://tinyurl.com/sight-impairment-study .…
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1 Looking back on 2024 with our CEO, Tina Garvey 26:34
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We are joined today by Tina Garvey, Chief Executive Officer at Retina UK. In this episode we reflect on the year 2024, taking a closer look at some of the most significant milestones and achievements for Retina UK, as well as the challenges we faced. We also explore the lasting impact Retina UK has had on the community, and look ahead to the exciting projects in store for 2025.…
We’re excited to announce that Mark Baxter, our Information and Support Coordinator, will be sharing his experience of his holiday to Las Vegas, where he attended the CES 2025! CES is the world’s leading tech event, showcasing the latest innovations that could transform the lives of people with vision impairments. Hosted by Matthew Carr, Mark will discuss the cutting-edge technologies he encounters at CES that have the potential to impact those with retinal conditions. From advancements in assistive devices to breakthroughs in accessibility, Mark will provide insight into how the tech world is evolving to support people with vision loss and how these innovations may help improve the lives of those affected by inherited retinal diseases.…
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving/ to sign up, or, if you prefer, call us on 01280 821334.…
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1 Webinar: Ask the expert with Dr Roly Megaw 56:41
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Joining us for an "Ask the Expert" session is Dr Roly Megaw who is currently supervising a Retina UK/Macular Society PHD studentship and has received other Retina UK Research funding in the past.Dr. Megaw, answers your burning questions on inherited retinal conditions, the latest research, and much more. Whether you're living with a retinal condition or supporting someone who is, this webinar is full of valuable insights you won’t want to miss.…
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1 Podcast: Dancing through life with sightloss 29:58
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Chris and Dianne’s #Strictly journey has been incredible to watch. We chat with Alan and Lucille who are both blind. They have both been dancing for a number of years. Find out more about why they enjoy it. How they manage to dance with low or no vision and what their thoughts about Chris and Dianne’s chances in the final this weekend.…
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving/ to sign up, or, if you prefer, call us on 01280 821334.…
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1 Look Forward - Winter 2024 (issue 184) 1:00:14
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This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2024 (Issue 184). You can download a copy in PDF and Word format on the Retina UK website: RetinaUK.org.uk/resources . Contents in this edition are as follows: A landmark anniversary on the horizon (Tina Garvey) Time for learning and connecting Join our Gene Team this Christmas A unique perspective Sharing stories and experiences Thank you Research round-up Information and support in a way that works for you Join our wonderful team of volunteers Make your voice heard The end of an era Sign up for an adventure of a lifeline! Join #TeamRetinaUK in 2025! Paid Advertisement - Talking Watch Shop Festive Fundraising Transforming research, transforming lives…
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1 Webinar: The Big Give: How your donations make a difference 53:44
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Hear our innovative research grantees discuss their projects and the exciting progress they are making, and see how your gift can make a real impact this Big Give. Our panel includes Professor Majlinda Lako: Professor Majlinda Lako is the co-director of regenerative medicine stem cells and transplantation at Newcastle University. Professor Lako is a member of the Biosciences Institute and her work contributes to the Regenerative Medicine, Stem Cells and Transplantation research Theme. She is also part of the Neuroscience NUCoRE. Professor Jacqueline van der Spuy: Jacqueline van der Spuy is a Professor of Molecular and Cellular Biology at the UCL Institute of Ophthalmology, which she joined as a Wellcome Trust Travelling Research Fellow in 2000. Jacqueline’s research aims to understand the molecular basis of and develop treatments for inherited retinal dystrophies (IRDs). Professor van der Spuy is currently supervising PhD student Gabriel, whose project explores the potential use of prime editing as a route to treating Stargardt disease. Elena Piotter, DPhil Student and Retina UK / Macular Society Scholar: Elena completed her Bachelors in International Relations (BA) and Global Disease Biology (BSc) at the University of California, Davis. She is currently pursuing her Masters in Molecular Biology at the Reijksuniversiteit Groningen, for which she is undertaking a research project as an Honorary Academic Visitor in Professor Robert MacLaren’s lab. Her project focuses on utilizing CRISPR-Cas9 in addressing degenerative eye disease.…
Join us in this exciting episode of the Retina UK Podcast as we introduce our new chair, Kathy Evans. With a wealth of experience and a passion for supporting those affected by retinal conditions, tune in to learn more about her background, her commitment to advocacy, and the innovative initiatives on the horizon for Retina UK.…
Join our Senior Fundraising Manager, James Clarke, as he chats to three wonderful volunteers about what they got up to on Thursday 10 October, our very first Retina UK Day. From cake sales, to quiz nights to even radio shows, Retina UK day was an incredible day. Thank you to all that took part.
The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: https://retinauk.org.uk/get-involved/mailing-list/. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit Retinauk.org.uk/get-involved/donate/ to sign up, or if you prefer, call us on 01280 821334…
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1 Our Impact in 2023. The difference we made. 24:20
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This Impact Report is available in accessible PDF and plain text on the Retina UK website: RetinaUK.org.uk/resources .
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