Najlepsze podcasty z kategorii: Cystic Fibrosis Foundation (2024)

1
Inside Cystic Fibrosis: A Conversation with Kate Hylan of the Cystic Fibrosis Foundation 23:53

1d ago23:53

23:53

What does it take to find a cure for a rare disease like Cystic Fibrosis? In this episode, we sit down with Kate Hylan, Director of Development for the Cystic Fibrosis Foundation, to discuss the foundation's mission and the challenges of raising awareness for this orphan disease. We dive into the genetic nature of CF, its impact on patients, and th…

1
Laura Bonnell - From news reporting, to CF and beyond. 31:04

2d ago31:04

31:04

From news reporting, to CF and beyond. Laura talks about her journey. The Bonnell Foundation: Living with cystic fibrosis is 14 years old. "I was so hopeful all those years ago, that my Foundation would take off, and now look at it! We have helped CF families from Michigan to California with financial assistance, lung transplant grants and Educatio…

1
Living with a Urologic Cancer with Dr. Kristen Scarpato and Heather Honoré Goltz, PhD 37:13

7d ago37:13

37:13

Our guests are Dr. Kristen Scarpato, a urologic oncologist at Vanderbilt University Medical Center, and Dr. Heather Honoré Goltz, a professor of social work at the University of Houston Downtown and a bladder cancer caregiver. The goal of this podcast is to give support and guidance to urologic cancer patients, their loved ones and their friends. D…

1
Meet the Moms Behind Lessen the Loads: Revolutionizing Laundry & Organization 39:58

8d ago39:58

39:58

Feeling overwhelmed with laundry and household chaos? In this episode, we sit down with Ally and Mary Catherine, founders of Lessen the Loads, a women-owned laundry and organizational service helping busy moms reclaim their time. They share their journey from friends to business partners, their unique approach to laundry pickup services, and the ad…

1
Sorcha's CF journey: from diagnosis to addiction and discovery 44:28

10d ago44:28

44:28

We discuss suicide in this podcast. This could be a trigger for some for you. Please remember the National Suicide Hotline can be reached via text or by calling 988. Sorcha Slyvester-Martin from diagnosis to drugs and discovery. When she was three days old, she was diagnosed with Cystic Fibrosis. She says she had several near-death experiences. Her…

1
Prostate Cancer Image Testing with Dr. Daniel Lin 12:52

20d ago12:52

12:52

Our guest is Dr. Daniel Lin, a urologist, professor and Chief of Urologic Oncology at the University of Washington and professor of the Division of Public Health Sciences at the Fred Hutchinson Cancer Center. The goal of this podcast is to help patients and caregivers learn how prostate imaging is used to detect prostate cancer. Dr. Lin talks about…

1
The 80/20 Rule in Content Marketing (Inspired by the Trump/Harris Debate) 6:39

21d ago6:39

6:39

In this episode, Dane shares some quick thoughts on how one small piece of content can be proliferated (for better or for worse) across media platforms, and how that can impact your brand.Autor: Shoemaker Films, LLC

1
My brother and me! Rare, a bit of CF & COTA! 41:11

24d ago41:11

41:11

In this podcast you'll meet my brother Noah Teicher, and my nephew Colton Teicher. I have two younger brothers, but my brother Noah (the middle child) has two boys who had a rare disease. And we talk about their journey from having a rare disease to being cured. Noah and Colton talk about their journey with the Children’s Organ Transplant Associati…

1
Glenn Ammarell of Yurconic Agency on Insurance Challenges and Opportunities 30:59

29d ago30:59

30:59

Are you choosing the right broker for your business? In this episode, we sit down with Glenn Ammarell of Yurconic Agency, who has been in the industry for over ten years. Glenn talks about the hard vs. soft market conditions, the role of AI in insurance, and why building strong business connections is so important. Tune in to learn how these factor…

1
The Evolution of Digital Marketing and Podcasting with Vince Quinn 1:00:27

1M ago1:00:27

1:00:27

Why do nearly half of all podcasts don't make it past the third episode? In this episode, we sit down with Vince Quinn, Co-founder of SBX Productions, to uncover the hard truths behind podcast production. Vince shares the challenges of podcasting, the importance of marketing, and how to turn a podcast into a powerful business tool. We also dive int…

1
How We Execute Your Content Strategy 10:00

1M ago10:00

10:00

How can 6 hours of filming turn into 80 pieces of content? In this episode, I share exclusive insights into our execution phase of our content strategy. I walk through our streamlined process of transforming your strategy into high-impact content. I discuss everything from producing multiple short-form videos to crafting engaging blog posts and mor…

1
The Ultimate Guide to Interviewing 12:56

2M ago12:56

12:56

Here’s how you can take your interview skills to the next level! In this episode, I share valuable tips and insights for interviewers looking to improve their skills. After conducting hundreds of interviews with clients and guests on our podcast, I developed a core set of best practices easy enough for anyone planning to conduct an interview can fo…

1
Essential Tips for Interviewees 15:07

2M ago15:07

15:07

Want to nail your next interview? In this episode, we share essential tips for interviewees. I discuss how to get ready, what to do on the day, and what video producers like us look for. I break down the basics like getting a good night's sleep and staying hydrated, to pro tips like preparing without sounding rehearsed and choosing the right locati…

1
How to Build a Content Strategy That Works 21:24

2M ago21:24

21:24

Are you struggling to create a content strategy that delivers results? In this episode, I share the elements of building a successful content strategy at Shoemaker Films. I discuss what goes into a content strategy, from setting goals and identifying target audiences to creating content pillars and engagement plans. I talk about how a well-crafted …

1
The Grateful Game with Bladder Cancer Survivor, Margo 36:19

2M ago36:19

36:19

Our guest is an incredible woman and bladder cancer survivor, Margo. In this episode, Margo details her battle with cancer, the loneliness she felt during treatment and how gratitude pulled her out of the dark. Keep listening to hear Margo share her inspiring story.For more information, please visit www.UrologyHealth.org and don’t forget to subscri…

1
How to Inject Video into Your Marketing & Sales Funnel 43:00

2M ago43:00

43:00

No matter what you're selling, everyone goes down this funnel. In this episode, we discuss how incorporating video into each stage of your marketing and sales funnel can transform your business. I define what a funnel is and break down the traditional marketing and sales funnel into four key stages: Attention, Interest, Desire, and Action. Then, I …

1
Diary of a Dying Girl, Diane (Mallory) Shader Smith 27:26

2M ago27:26

27:26

Diane Shader Smith’s daughter Mallory died from complications of cystic fibrosis 6 years ago. She was 25 years old. Diane initially published her daughter’s diary, "Salt in My Soul". This book gave insight into how Mallory was feeling during her CF fight. Her deepest thoughts, and life lessons. Diane Shader Smith is now releasing a second book on b…

1
Sam Sinns: The Man Behind a Disney inspired Dance Studio 25:32

3M ago25:32

25:32

What does it take to go from zero dance experience to owning the happiest dance studio on earth? In this episode, I sit down with Sam Sinns, a former Disney dancer and the owner of Twirl dance studio in Newtown Square, PA. Sam shares his incredible journey from starting as a Disney dancer with zero dance experience to opening his own dance studio: …

1
Special Insurance for CF families (and others) in MI 33:29

3M ago33:29

33:29

Children’s Special Health Care Services (CSHCS): Have you heard of it? In the simplest terms, it is defined by the need for specialty care required for your child. It’s not a Medicaid program. Access to the program has nothing to do with your household income. The program has a lot of benefits. CSHCS covers transportation that can include airfare a…

1
The Sweet Success of TAFF Treats with Chris and Katie 27:04

3M ago27:04

27:04

In this episode, we are joined by Katy and Chris, life partners and owners of TAFF Treats, a freeze-dried candy business based in Brookhaven, PA. Chris and Katy discuss how their business started, the choices they made as entrepreneurs, and the obstacles they've encountered. TAFF Treats offers a unique selection of 25 different freeze-dried candies…

1
Forti Homes: Insights into Today's Real Estate Market 1:07:00

3M ago1:07:00

1:07:00

In this episode, we sit down with Sarah Forti, Realtor and Team Owner of Forti Homes, and Jackie McCormick, a dedicated real estate professional committed to helping individuals find their perfect home. Sarah and Jackie talk about their journey from working as individual agents to forming a highly successful real estate team, sharing the challenges…

1
Fighting for Men's Health with Cystic Fibrosis Survivor, Reuben Samuels 37:24

3M ago37:24

37:24

Our guest is Reuben Samuels, the President of Breathe Easy International and a cystic fibrosis survivor. He talks about living with cystic fibrosis and his journey fighting for his own health along the way. Reuben shares some great insight into men's health and advocates for men getting the help they need to stay healthy.For more information, pleas…

1
Snapology: Education made fun with LEGO® Bricks, K'Nex, and Technology 29:13

3M ago29:13

29:13

In this episode, we are joined by Matt Ralph, franchise owner of Snapology and member of the Newtown Square Business Association. Matt talks about his journey of discovering Snapology and its innovative approach. Snapology uses hands-on activities to educate children in science, technology, engineering, art, math, and literacy, all while building s…

1
Remembering Matt McCloskey of Take a Breather 37:29

3M ago37:29

37:29

Shortly after we did this podcast Matt died from complications of cystic fibrosis. With permission from his sisters, and dear friend Jennifer Bleecher (featured in this podcast) we are now airing this podcast to shine a light about what a great man Matt was. He speaks in this podcast about concern for his health. Thanks to Jenn, his family and to M…

1
How Garrett Williamson is Changing Lives in Their Community 27:14

4M ago27:14

27:14

In this episode, we sit down with Carol Kaplan Ruark, the Executive Director of Garrett Williamson, to explore the incredible work this non-profit organization does in connecting people with nature and supporting under-resourced families. From agriculture education and childcare to summer camps, Garrett Williamson offers a unique environment for ch…

1
The Fearless Vagina: Ellen Dolgen 1:00:06

4M ago1:00:06

1:00:06

As people with cystic fibrosis live longer, with a life expectancy currently at about 56 years old, many women with CF will be going through menopause. I recently spoke to doctors at a hospital gathering, and recommended they speak to women with CF about menopause. They agreed. It's time. There is so little discussion and education about women and …

1
How Shoemaker Films Turns Your Concept Into Engaging Media 16:52

4M ago16:52

16:52

We've gotten a few questions recently about how we work with clients - and we break it down in the latest episode of the SHOEMAKER LAB. Mainly, we have two ways we go to market - single project videos and a monthly retainer. It all depends on the goals of each unique client and the deliverables we are producing for our clients. Whether it's a singl…

1
Dr. Caleb Bupp, Rare Genius (in our opinion) 43:39

4M ago43:39

43:39

Dr. Caleb Bupp. In my opinion. A scientific star. He is a most humble human, but has every right to brag, but he never would. I do believe he's a genius. You will love this podcast. We talk about rare disease, his family and how he discovered and helped families who had no rare disease answers, until they met him! An absolute scientific rock star. …

1
Generations of Local Excellence: Inside D&K Appliances with Karen, Dan, and Mike 27:30

4M ago27:30

27:30

In this episode, we sit down with Karen, Dan, and Mike, the passionate owners of D&K Appliances. They share their amazing journey from a small garage-based service in Springfield to a flourishing enterprise with over 40 employees and 2 locations in PA. We learn about the unique aspects that go into the growth of D&K Appliances, including their exce…

1
Cambrey Vasconez White - rare mutations 38:33

4M ago38:33

38:33

Cambrey Vasconez White is the mother of toddler Rowland, who has Cystic Fibrosis. If you listened to our podcast with Vicky Maldonado, they have similar struggles. Cambrey is also working to find an equitable approach to rare mutations in the U.S. and Canada. These two women connected, as you’ll hear, because their sons share the same mutation. Row…

1
Crafting Success: Meet the Young Franchise Owner of Board & Brush, Newtown Square 21:15

4M ago21:15

21:15

How does a part-time job in high school lead to owning a business? In this episode, we sit down with Sami Rineer, the owner of Board and Brush Newtown Square, PA, to talk about her journey of being an assistant to becoming a successful business owner. Sami discusses the realities of running a business, sharing the joys and challenges of being a you…

1
Brandi Berry, Chidlren's Special Health Care Services Prgrm 39:34

4M ago39:34

39:34

Did you know most states have programs for CF families, and they don’t have to do with your income? Michigan has one of the best programs in the Country. It’s called Children’s Special Healthcare and acts as a secondary insurance to pediatric and adult patients. Brandi Berry tells us all about it. Brandi Berry, LLMSW is the Program Coordinator of t…

1
Energy Healing With Katie: Reiki and Spiritual Life Coaching 21:17

4M ago21:17

21:17

Everything surrounding us is made of energy including our thoughts and emotions. Starting at a young age, we experience life events, traumas and situations/people that cause us stress. This leads us to feel heavy, low vibrational emotions such as anger, guilt, shame, jealousy, etc. Overtime, they become stuck in our body and may eventually manifest…

1
Dr. Bhanu Jena, another CF modulator on the horizon? 35:36

5M ago35:36

35:36

A new CF modulator could be on the horizon. Professor Dr. Bhanu Jena is exciting to tell us all about it. Dr. Jena was born in a small town in Odisha, India. He got his love for science and medicine from his father and grandfather. He majored in Chemistry, Zoology, and Botany at BJB College in Bhubaneswar, Odisha, India, He got his masters in zoolo…

1
Why We Started A Podcast (And Why You Should Too) 14:01

5M ago14:01

14:01

In this episode Dane Shoemaker breaks down the key points for why his business (Shoemaker Films) started a podcast, and why it's a good idea for any business to think about starting a podcast or Youtube channel. The benefits include being able to improve the art and craft of video production, interviewing, editing, and turning your business into a …

1
The Final 10 percent 38:03

5M ago38:03

38:03

Approximately 10 percent of the CF population is waiting for a CF modulator drug that will help them by correcting the underlying condition of their disease. Current modulator drugs help more common CF mutations. Emily Kramer Golinkoff is one of the people who doesn't have a CF modulator that will help her. Her Foundation, Emily's Entourage, is a l…

1
Plan Your Dream Vacation With Wish Upon A Castle 33:46

5M ago33:46

33:46

Thinking about taking a trip to Universal or Disney? The options and variety can be overwhelming, which is why you need to work with the experts to book your next vacation. Heather Robinson is the founder and owner of Wish Upon A Castle, a boutique travel agency specializing in Disney and Universal resorts and theme parks. In the next episode of Sh…

1
Dr. Mitch Drumm - CF Pioneer (and hero to CF community) 44:14

5M ago44:14

44:14

Living legends. One of them is Dr. Mitch Drumm. He was part of the team with Dr. Francis Collins who discovered the gene that cause CF. They were all at the University of Michigan. You’ll hear the connection Laura and Mitch have, and they didn’t know it until this podcast! Dr. Drumm is a living CF hero. Dr. Drumm earned his doctoral degree while in…

1
Preserving A Main Line Treasure With The Willows Park Preserve 28:29

5M ago28:29

28:29

We sat down with Will Nord, Executive Director of the Willows Park Preserve, who is the 501c3 established in 2019 to restore and operate the Willows Mansion, a historic and beautiful former home that sits atop a hill overlooking the Willows Park in Villanova. The space has been reimagined to operate not only as a private event center for weddings a…

1
Dr Ryan Hadley - Lung Transplants 27:38

5M ago27:38

27:38

Do you know what is needed before you have a lung transplant? Or even how it works? More and more adult CF clinics are explaining the details to adult patients, but if you're a CF parent, there is a lot you may not know. We welcome Dr. Ryan Hadley. Dr. Hadley is at Corewell health in Grand Rapids. He is an assistant Profession of Medicine in pulmon…

1
A West-Coast Inspired Coffee Drive Thru Experience in Delco With Yo! Coffee 36:31

5M ago36:31

36:31

Morgan and Dane sit down with Gab and Thad, co-owners of Yo! Coffee, the brand new drive-through coffee shop in Media, PA. The couple recently leased and renovated an old Swiss Farms store to pursue their dream of starting a business and brought a West-Coast themed drive thru concept, that is currently dominated by Starbucks and McDonalds. We deep …

1
What is Urology? with Dr. Kevin McVary 11:46

5M ago11:46

11:46

Our guest is Dr. Kevin McVary, Director of the Center for Male Health and Professor in the Department of Urology at the Stritch School of Medicine, Loyola University Medical Center. He helps to answer the question, "What is Urology?" and gives insight into what it takes to become a urologist.For more information, please visit www.UrologyHealth.org …

1
Laura and Beth talk about what makes a Foundation work! 40:50

5M ago40:50

40:50

Everyone always asks me "What does it take to run a Foundation?" So I thought I would explain some of the different aspects of funny and challenging parts of running a Foundation. Please join me with my friend Beth Vanstone who asks me all sorts of questions about what running a Foundation is all about! Please follow us on social media! Please cons…

1
Building A Community With From The Top Dance Studio 33:07

6M ago33:07

33:07

Sheila Turner- Hilliard is the owner and operator of From the Top Dance Studio, located in St. Alban's Circle in Newtown Square, PA. She is a dancer, teacher, entrepreneur, philanthropist, is the current President of Newtown Square Business Association, and a life long resident of Newtown Square. From the Top Dance studio offers a variety of dance …

1
Rabbi Moskowitz, embracing the Queer community 58:41

6M ago58:41

58:41

He’s been arrested. He’s CIS gender with a wife and kids. Rabbi Mike Moskowitz is also an orthodox Jew’is and he is one of the biggest supporters of the queer community. Rabbi Moskowitz is the Scholar-in-Residence for Trans and Queer Jewish Studies at Congregation Beit Simchat Torah, the world’s largest LGBT synagogue. He is a deeply traditional an…

Podcasty warte posłuchania

Cystic Fibrosis Foundation Podcasty

Podcasty warte posłuchania

Skrócona instrukcja obsługi