Lichen Sclerosus podcast

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Dodano four lat temu

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In Her Ellement

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Navigating Career Pivots and Grit with Milo’s Avni Patel Thompson 26:18

16 dni temu26:18

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26:18

How do you know when it’s time to make your next big career move? With International Women’s Day around the corner, we are excited to feature Avni Patel Thompson, Founder and CEO of Milo. Avni is building technology that directly supports the often overlooked emotional and logistical labor that falls on parents—especially women. Milo is an AI assistant designed to help families manage that invisible load more efficiently. In this episode, Avni shares her journey from studying chemistry to holding leadership roles at global brands like Adidas and Starbucks, to launching her own ventures. She discusses how she approaches career transitions, the importance of unpleasant experiences, and why she’s focused on making everyday life easier for parents. [01:26] Avni's University Days and Early Career [04:36] Non-Linear Career Paths [05:16] Pursuing Steep Learning Curves [11:51] Entrepreneurship and Safety Nets [15:22] Lived Experiences and Milo [19:55] Avni’s In Her Ellement Moment [20:03] Reflections Links: Avni Patel Thompson on LinkedIn Suchi Srinivasan on LinkedIn Kamila Rakhimova on LinkedIn Ipsos report on the future of parenting About In Her Ellement: In Her Ellement highlights the women and allies leading the charge in digital, business, and technology innovation. Through engaging conversations, the podcast explores their journeys—celebrating successes and acknowledging the balance between work and family. Most importantly, it asks: when was the moment you realized you hadn’t just arrived—you were truly in your element? About The Hosts: Suchi Srinivasan is an expert in AI and digital transformation. Originally from India, her career includes roles at trailblazing organizations like Bell Labs and Microsoft. In 2011, she co-founded the Cleanweb Hackathon, a global initiative driving IT-powered climate solutions with over 10,000 members across 25+ countries. She also advises Women in Cloud, aiming to create $1B in economic opportunities for women entrepreneurs by 2030. Kamila Rakhimova is a fintech leader whose journey took her from Tajikistan to the U.S., where she built a career on her own terms. Leveraging her English proficiency and international relations expertise, she discovered the power of microfinance and moved to the U.S., eventually leading Amazon's Alexa Fund to support underrepresented founders. Subscribe to In Her Ellement on your podcast app of choice to hear meaningful conversations with women in digital, business, and technology.…

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Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

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#Fitness #Kathy #Itchingdisease #Lichensclerosis #Lichensclerosus #Whitepatchdisease #Podcasting Education

Lichen Sclerosus Podcast

Lichen Sclerosus Podcast explicit

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72 odcinków

#Fitness #Kathy #Itchingdisease #Lichensclerosis #Lichensclerosus #Whitepatchdisease #Podcasting Education

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Lichen Sclerosus Podcast

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New Hope for Lichen Sclerosus: Insights from Silicone Treatment Studies 40:21

6 weeks temu40:21

40:21

Episode Description: Welcome to the Lichen Sclerosus Podcast brought to you by the Lichen Sclerosus Support Network. I'm your host, Kathy, and today we’re excited to bring you a conversation with an amazing researcher, Leia Mitchell. If you’ve listened before, you might recognize her from past episodes. This time, we’re diving into a new possible treatment for Lichen Sclerosus. What You’ll Learn in This Episode: Insights into two groundbreaking studies on silicone-based treatments for Lichen Sclerosus. The science behind silicone’s effects on collagen production and skin rejuvenation. What makes this new treatment non-steroidal and why that matters. Eligibility requirements and what participation in the study entails. Special Guest: Meet Leia Mitchell , a passionate and knowledgeable physician assistant with extensive experience in Lichen Sclerosus treatment and clinical research. Her expertise and dedication make her a valuable voice in the LS space. Key Moments: 1:49 – Discussion of two studies: one completed and one actively recruiting participants in Florida, DC, and NYC. 3:35 – Leia explains how silicone aids collagen production and benefits skin conditions, including burn victims. 5:21 – Application process: The silicone gel is easy to use—dab and rub gently over affected areas. 6:26 – Leia highlights the need for effective LS treatments and shares how she became involved in the study. 7:14 – The appeal of non-steroidal treatments and how Leia encountered this promising solution. 9:24 – Study requirements: participants must have an active LS diagnosis, abstain from steroids or other topicals, and undergo pre- and post-study biopsies. 13:10 – The study is initially limited to five participants, but a larger trial may follow pending positive results. 15:09 – Leia shares her excitement for the study’s potential outcomes and outlines the 10-week process, which includes subjective results announced after publication. 34:01 – Leia discusses the goal of FDA approval to make the treatment accessible and affordable for patients through insurance coverage. Connect with Us: Visit the Lichen Sclerosus Support Network for more resources: lssupportnetwork.org Get more information on the study at https://clinicaltrials.gov/study/NCT06662942?cond=stratamgt&rank=2 or email the CVVD at research1.cvvd@gmail.com…

Lichen Sclerosus Podcast

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Unstoppable You: A Workshop for Young Adults with LS 21:15

8 weeks temu21:15

21:15

Join Kathy and Sienna as they introduce the "Unstoppable You" workshop, designed specifically for young adults with lichen sclerosus (LS). They'll discuss the inspiration behind the workshop, its unique features, and how it can empower young people to thrive with LS. Key Takeaways: The "Unstoppable You" workshop is a 5-week program created to help young adults navigate the challenges of LS with confidence. The workshop will cover topics such as communicating about LS, redefining intimacy, embracing pleasure, and building self-confidence. Participants will have access to expert guidance, interactive sessions, a private online community, and evidence-based education. The workshop starts on February 17th and runs until April 7th, with the community remaining open through May. Early bird pricing is available from February 3rd to 10th. Call to Action: Visit https://lssupportnetwork.org/unstoppable to learn more and register for the "Unstoppable You" workshop. Join the LSSN email list to stay updated on future events and resources: lssupportnetwork.org/subscribe Chapter Markers: 00:00 Welcome to the Lichen Sclerosus Podcast 00:38 Meet Sienna: Chief Fundraising Officer 01:48 Sienna's Journey with Lichen Sclerosus 03:03 Creating a Workshop for Young People 04:25 Workshop Structure and Goals 07:56 Workshop Sessions Overview 14:59 Pricing and Registration Details 18:13 Final Thoughts and Encouragement Connect with LSSN: Website: lssupportnetwork.org Email: support@lssupportnetwork.org…

Lichen Sclerosus Podcast

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The Future of LS Care: A Conversation with Dr. Jill Krapf 54:14

14 weeks temu54:14

54:14

Join us for an insightful conversation with Dr. Jill Krapf, a leading expert in vulvar lichen sclerosus (LS), as we discuss the challenges and opportunities in LS care and introduce the Provider Continuous Education Program (PCEP). Why Provider Education Matters: LS is often misdiagnosed or diagnosed late, leading to years of unnecessary suffering for patients. Many healthcare providers lack the knowledge and training to properly diagnose and manage LS. The PCEP will equip providers with the tools and resources they need to provide effective, patient-centered LS care. How the PCEP Will Make a Difference: The PCEP will provide comprehensive education on LS, covering diagnosis, treatment, and patient communication. It will feature expert-led training by experienced LS specialists. It will focus on evidence-based practices and patient-centered care. It will create a network of knowledgeable healthcare providers who can support each other and share best practices. Call to Action: Support the PCEP and help us transform the future of LS care. Your donation will directly impact the lives of those affected by this often-misunderstood condition. Donate to LSSN's Campaign: https://lssupportnetwork.org/givingtuesday Additional Resources: Learn more about LSSN's programs and resources: https://lssupportnetwork.org Join LSSN's online community: https://lssupportnetwork.org/membership Attend LSSN's Giving Tuesday live events: https://lssupportnetwork.org/givingtuesday Thank you for listening and for your support!…

Lichen Sclerosus Podcast

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Break the Cycle of Suffering This 2024 GivingTuesday 48:53

15 weeks temu48:53

48:53

Join us for a special Giving Tuesday episode where we discuss the importance of supporting the Lichen Sclerosus Support Network (LSSN) and their mission to end the misdiagnosis and suffering caused by lichen sclerosus (LS). In this episode, you'll learn about: The challenges of living with LS and the impact of misdiagnosis. The importance of patient education and support in managing LS. The LSSN Provider Continuous Education Program (PCEP) and how it will improve healthcare provider knowledge and patient care. How your donations can help LSSN continue to provide vital resources and support to the LS community. Support LSSN this Giving Tuesday and help us break the cycle of suffering for people with LS. Your generosity can make a real difference in the lives of those affected by this often misunderstood condition. Resources and Links: Donate and Attend LSSN's Giving Tuesday Event: https://lssupportnetwork.org/givingtuesday Help LSSN raise money without disclosing your diagnosis: https://docs.google.com/document/d/16hoqesjqg_n68QGkGQPHAh0EYrZME1CH0NfVGNMVksQ/copy?usp=sharing Learn more about LSSN's programs and resources: https://lssupportnetwork Join LSSN's online community: https://lssupportnetwork.org/membership Become an LSSN volunteer: https://lssupportnetwork.org/volunteer Thank you for listening and for your support!…

Lichen Sclerosus Podcast

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Communication, Vulnerability, and Sex Positivity Transform an LS Relationship 1:02:47

46 weeks temu1:02:47

1:02:47

If you're feeling the weight of unresolved issues in your intimate relationship, then you are not alone! Couples often struggle to communicate openly about sex and intimacy, leading to frustration and distance instead of connection. But what if there's a way to enhance your communication and connection, even in the midst of challenges? Let's dive into the journey of a couple navigating the complexities of long-term relationships and discover the transformative power of open dialogue and shared experiences. In this episode, you will be able to: Gain insights into managing pelvic floor dysfunction in individuals dealing with Lichen Sclerosus for better everyday comfort and confidence. Explore strategies for maintaining sexual intimacy while managing Lichen Sclerosus to nurture connection and closeness with your partner. Learn how to provide meaningful support to partners coping with Lichen Sclerosus, fostering empathy and understanding in the relationship. Enhance communication about sexual health in long-term relationships, fostering a deeper emotional and physical connection with your partner. My special guests are Annie and Micheal Annie and Michael bring a unique perspective to the conversation as a couple navigating the challenges of living with Lichen Sclerosus. Annie's personal journey with LS, from dealing with misdiagnosis to undergoing a biopsy, provides a firsthand understanding of the physical and emotional toll this condition can take. Michael, as a supportive partner, shares his experiences of navigating the impact of LS on their intimate relationship and the communication challenges they faced during this time. Their honest and open dialogue sheds light on the complexities of managing LS within a long-term relationship, making their insights valuable for others in similar situations. The key moments in this episode are: 00:00:00 - Introducing Annie and Michael 00:02:22 - Annie's LS Journey 00:08:25 - Biopsy Process and Support 00:13:02 - Communication and Relationship 00:15:55 - Medical Diagnosis and Initial Concerns 00:17:43 - Age and Diagnosis 00:19:06 - Diagnosis Confirmation and Frustrations 00:23:26 - Partner's Involvement and Education 00:26:35 - Medication Side Effects and Treatment Adjustments 00:30:20 - Advocating for Yourself 00:32:30 - Importance of Education for Doctors 00:36:06 - Impact on Relationships 00:39:37 - Transformation through Communication 00:43:47 - Coping with Stress and Loss 00:45:05 - The Importance of Communication in Relationships 00:47:17 - Broadening Perspectives on Intimacy and Sex 00:51:27 - Seeking Support for Partners and Caregivers 00:55:43 - Journey to Healing with Dr. Bob 00:58:52 - Excitement for the upcoming summit 00:59:27 - Doctor Bab's thorough care 01:00:53 - Virtual visits with Doctor Bab 01:01:37 - Open communication about sex 01:02:38 - Summit topics and invitation Register for the Holistic Healing Summit from May 13th to 17th at lssupportnetwork.org to gain valuable insights and information on intimacy, communication, sexual intimacy, and emotional intimacy in the context of Lichen Sclerosus. Explore the book Sex Talks: The Five Conversations That Will Transform Your Love Life by Vanessa Marin for valuable guidance on enhancing intimacy and communication in your relationship. https://www.amazon.com/Sex-Talks-Five-Conversations-Transform/dp/1668000016 Connect with Dr. Babb, a vulvar specialist, for thorough examinations and expert guidance on managing Lichen Sclerosus. Virtual visits are also available for those who are not local. https://havencenter.com Explore the SweetSpot Labs body wash and other products recommended by Annie for gentle care of the skin, especially for those with Lichen Sclerosus. https://shop.sweetspotlabs.com/ Check out all the ways Lichen Sclerosus Support Network can help you at lssupportnetwork.org.…

Lichen Sclerosus Podcast

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Live Lichen Sclerosus and Sexual Wellness Panel Replay 1:14:42

47 weeks temu1:14:42

1:14:42

Bonus Alert until April 28: Check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https://lssupportnetwork.org/whs Join us for this informative panel discussion on lichen sclerosis and sexual health. Hosted by Kathy Ruiz-Carter, we have a talented group of experts: patient advocate Jaclyn Lanthier, gynecologist Dr. Suzanne Weber, and pelvic health physical therapist Dr. Mamawah Bourque. We cover key topics like LS treatment and management, tips for engaging in sexual activity, managing symptoms during menstruation, considerations around pregnancy, and more. The panel shares practical guidance grounded in both clinical expertise and lived experience. You'll discover helpful insights on using steroids, alternate therapies, dilator work, lubricants, vulvar care, pelvic floor health, open communication with partners, and listening to your body's needs. We also talk about emerging research on LS progression and hormonal connections. Whether newly diagnosed or a long-time LSer, you'll find empowering takeaways to improve your sexual health and approach LS management more holistically. We hope you feel encouraged in your journey toward remission and pain-free intimacy. Let us know in the comments what resonated most or what additional questions you have! And don't forget to check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https://lssupportnetwork.org/whs In this episode, you will be able to: Understand how to manage lichen sclerosus during pregnancy for a smoother journey. Discover practical tips for maintaining sexual health while dealing with vulvar lichen sclerosus. Learn effective strategies for comfortable bike riding despite lichen sclerosus symptoms. Explore the benefits of pelvic floor therapy in managing lichen sclerosus symptoms. Uncover the hormonal effects on lichen sclerosus symptoms and how to mitigate them. My special guest is Jaclyn Lanthier, Suzanne Weber, and Mamawah Bourque. The key moments in this episode are: 00:00:00 - Introducing the National Vova Awareness Day event. 00:03:24 - LS progression and management. 00:07:33 - Natural and maintenance options for LS treatment. 00:12:07 - Treating different areas of the genitals. 00:15:26 - Personalized application of treatment. 00:16:32 - Importance of Physical References 00:17:51 - Engaging in Sexual Activity with LS 00:21:16 - Transitioning from Dilator Work to Penetration 00:23:54 - Approaching Sexual Activity with LS 00:28:24 - Managing Pain and Burning After Sexual Activity 00:32:42 - Managing Burning Sensation and Pain after Sex 00:33:50 - Wholistic Healing Summit 00:34:58 - Gynecologist Approach to Burning Sensation and Pain after Sex 00:36:09 - Enhancing Genital Arousal and Lubricant Recommendations 00:42:59 - Impact of Lichen Sclerosis on Pregnancy 00:49:02 - Perineal Massages and Breathing Techniques during Pregnancy 00:52:21 - Impact of BLS on Pregnancy and Postpartum 00:54:27 - Menstruation and LS Symptoms 01:00:58 - Hormonal Component and Moisture Management during Menstruation 01:03:18 - Treating Anal LS and Anal Fissures 01:05:32 - Managing Anal LS Symptoms 01:08:36 - Tips for Bike Riding with LS 01:11:05 - Pelvic Floor Stretches 01:13:19 - Wholistic Healing Summit 01:14:19 - Gratitude and Farewells The resources mentioned in this episode are: Get your ticket for the all-access pass to the Wholistic Healing Summit to access exclusive sessions on managing LS symptoms, including pain-free sex, pelvic floor PT, and more. https://lssupportnetwork.org Join the Wholistic Healing Summit to gain valuable insights on how to navigate relationships and have conversations about LS with partners, family, friends, and employers.…

Lichen Sclerosus Podcast

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Rebuilding Relationships and Reconnecting with Lichen Sclerosus 21:57

48 weeks temu21:57

21:57

Topics: What is the LSSN Wholistic Healing Summit? Importance of addressing relationships affected by Lichen Sclerosus (LS) Summit focus: Partners, Caregivers, and Disclosure Sessions for patients, partners, and caregivers Wellbeing activities for stress management Opportunities to connect with other attendees Key Points LSSN is a non-profit patient organization providing education and support for those with LS. LS impacts all aspects of life, including relationships. The summit helps patients, partners, and caregivers discuss LS, manage sexual health, and build intimacy. Free, Value, and All Access ticket options are available. Time Stamps 00:00:00 - Introduction to Holistic Healing Summit 00:02:36 - Challenges in Talking About LS 00:04:38 - Disclosing LS to Partners 00:08:45 - Supporting Caregivers of LS Patients 00:10:07 - Managing LS Symptoms and Well-being 00:15:18 - Ticket Options for the Summit 00:16:09 - All Access Pass Benefits 00:17:18 - Partnership Meetup 00:18:48 - Exclusive Summit Benefits 00:20:55 - Summit Evolution and Community Impact…

Lichen Sclerosus Podcast

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Unraveling The Hormone And Microbiome Puzzle In Lichen Sclerosus 36:54

1 year temu36:54

36:54

Hey friend! I recently had the pleasure of chatting with Dr. Melissa Mauskar, a true rockstar in the world of vulvar health research. She illuminated some fascinating new findings about the hormone and microbiome landscapes in lichen sclerosus. I walked away feeling so hopeful about how this work might improve patient care down the road! 🙌 Dr. Mauskar broke down the key takeaways in an accessible way – no need for a medical degree to follow along! Whether you have lichen sclerosus yourself or treat patients, I think you'll find this chat insightful. A few highlights that caught my ear: The role of progesterone and other hormones in LS skin How treatment impacts microbiome diversity Exciting areas for future research. Dr. Mauskar's passion for patient-centered care and collaboration across specialties to move the needle is inspiring. She helped me understand how this study into hormones and the vulvar microbiome in lichen sclerosus, while small, contributes an important puzzle piece to better understanding and treating this chronic condition. Let me know what intrigued or surprised you! I always love hearing your experiences and thoughts. And if you appreciate Dr. Mauskar and other clinicians advancing vulvar health, show some love in the comments! ❤️ In this episode, you will be able to: Explore the intricate connection between hormonal balance and lichen sclerosus for a holistic understanding. Uncover the role of the microbiome in lichen sclerosus and its impact on treatment approaches. Create personalized treatment plans tailored to individual needs for more effective management of lichen sclerosus. Gain insights into providing comprehensive care for vulvar health, enhancing patient outcomes. Discover the benefits of collaboration in advancing research and care for vulvar health. My Special Guest Is Dr. Melissa Mauskar Dr. Melissa Mauskar, an Associate Professor in the Department of Dermatology and the Department of Obstetrics and Gynecology at UT Southwestern Medical Center, is not your typical expert. She's a trailblazer in the field, serving on the board of the newly founded Vulvar Dermatoses Research Consortium and as the secretary general for the North American branch of the International Society for the Study of Vulvovaginal Disease. With a deep commitment to patient care and a particular focus on lichen sclerosus, Dr. Mauskar's latest research delves into this condition's hormonal and microbiome aspects. Her dedication and expertise in unraveling the complexities of lichen sclerosus make her a true star in the field. The Key Moments In This Episode Are: 00:00:12 – Introduction to Lichen Sclerosis Podcast 00:02:44 – Research Project Background 00:09:36 – Study Methodology and Findings 00:12:42 – Potential Impact and Future Research 00:15:05 – Skin Hormone Levels and Implications 00:17:02 – Significance of Study Results 00:18:01 – Understanding Microbiome 00:20:35 – Treatment Approach and Microbiome 00:24:33 – Role of Yeast in Lichen Sclerosis 00:27:30 – Future Research and Hormonal Influences 00:33:30 – Recognition of Healthcare Providers 00:34:06 – Importance of Care 00:34:52 – Momentum in Menopause Research 00:35:43 – Need for Specialized Healthcare 00:36:31 – Conclusion and Call to Action The Resources Mentioned In This Episode Are: Link to the abstract for the study mentioned in the podcast: This will provide detailed information about the study conducted by Dr. Mauskar and her team, “Assessment of the Cutaneous Hormone Landscapes and Microbiomes in Vulvar Lichen Sclerosus,” allowing you to delve deeper into the findings and implications. https://pubmed.ncbi.nlm.nih.gov/38368928/ Dr. Mauskar's Instagram profile: Follow Dr. Mauskar on Instagram to stay updated on her work, research, and insights in the field of dermatology and women's health. https://www.instagram.com/melissamauskarmd/ Contact Dr. Mauskar at UT Southwestern Medical Center: If you are in the UT Southwestern area and in need of a dermatologist, reach out to Dr. Mauskar for expert care and consultation. https://utswmed.org/doctors/melissa-mauskar/ Virtual Meetup Information If you'd like to share your voice in person (virtually), join our next virtual meetup. We meet every other Saturday from 2–4 PM and 7–9 PM Eastern Standard Time. Take this opportunity to share your diagnosis story, what is and isn’t working for you, and ask a question to the group. Share your experience and heal. I have met many incredibly strong LS warriors through these meetups, and I would love for you to join our community. Sign up HERE for notifications and updates. I cannot wait to meet you!…

Lichen Sclerosus Podcast

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Unlocking LS Wisdom: Exploring the Comprehensive Content of LSSN 58:42

1 year temu58:42

58:42

Get ready for a heart-pounding year-end review of the Lichen Sclerosis Support Network's incredible work. From informative videos to virtual meetups, they're empowering LS warriors like me. But just when everything seems perfect, a shocking revelation threatens to unravel all their progress. Will they overcome this unexpected obstacle? Find out on the Lichen Sclerosus Podcast! In this episode, you will be able to: Discover the latest updates and initiatives from the Lichen Sclerosis Support Network (LSSN) in their year-end review. Explore diet and lifestyle treatment resources that can help manage Lichen Sclerosis (LS) and improve your overall well-being. Dive into the digital pages of LS Zine, a magazine dedicated to providing valuable insights and support for individuals living with LS. Learn about the whole-body approach of the Wholistic Healing Summit and what next year's summit will focus on. Learn about the other exciting projects and initiatives undertaken by the Lichen Sclerosis Support Network (LSSN) to support individuals dealing with LS. The key moments in this episode are: 00:00:11 - Introduction 00:01:10 - Mission of LSSN 00:02:40 - Giving Tuesday 00:11:47 - What's New On The Website 00:14:42 Blog Posts 00:18:08 - Video Posts 00:22:00 - LSSN YouTube Channel 00:26:07 Virtual Meetups 00:30:56 LS Brochures 00:33:49 LSSN Shop 00:36:57 Long Form Content 00:41:04 LS Zine/LSSN's Digital Magazine 00:43:09 LSSN Board/Medical Advisory Board 00:46:18 Wholistic Healing Summit 00:47:50 LSSN Mini Summit: Vulvovaginal Conditions 00:50:02 Who have we partnered with? 00:57:40 - Reflecting on Accomplishments and Future Goals Check out all the ways Lichen Sclerosus Support Network can help you at lssupportnetwork.org. Visit our website at Lichen Sclerosus Support Network to access our resources and information. https://lssupportnetwork.org Check out our blog for over 42 informative posts on Lichen Sclerosus. https://lssupportnetwork.org/blog Check out our 32 video educational posts on everything LS related. https://lssupportnetwork.org/videos Attend our virtual Meetups to connect with others and learn more about Lichen Sclerosus. https://lssupportnetwork.org/connect Find a healthcare provider in our directory who specializes in Lichen Sclerosus. https://lssupportnetwork.org/providers Browse our brochures for helpful information on managing Lichen Sclerosus. https://lssupportnetwork.org/brochure Shop at our online store for Lichen Sclerosus-related products and merchandise. https://lssupportnetwork.org/shop Support our education fund by making a donation on Giving Tuesday or becoming a monthly donor. https://lssupportnetwork.org/givingtuesday Stay updated on news and events at LSSN by subscribing to our newsletters. https://lssupportnetwork.org/subscribe Contact with Functional Nutrition Therapist Heather Cooan on her website at https://heathercooan.com Check out our boards at https://lssupportnetwork.org/lssn-board Get a copy of our digital magazine at https://lszine.lssupportnetwork.org https://lssupportnetwork.org/ https://www.youtube.com/https://www.youtube.com/channel/UCQXU-nhfnn-nScR_5VyUdCQ https://www.linkedin.com/in/lssn https://www.facebook.com/lichensclerosussupportnetwork https://instagram.com/lichensclerosussupportnetwork…

Lichen Sclerosus Podcast

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Why You Need to be at the LSSN Mini Summit 29:13

2 years temu29:13

29:13

Have you heard about the LSSN Mini Summit: Vulvovaginal Conditions? It’s our 3-day, 100% virtual event presented by medical experts on rarely discussed conditions, such as lichen sclerosus. You may be saying, I already have LS. Why do I need to know about other conditions? Or I don’t want to know about anything else. But the thing is, this is VERY important to your LS journey! In this episode, I will explain why you do not want to miss this summit, especially if you already have a vulvovaginal condition. We’re going to talk about: 🪷 Misdiagnosis 🪷 Secondary conditions 🪷 Proper treatment 🪷 Empowerment and self-advocacy 🪷 Having a medical resource you can trust at your fingertips Want to learn more about the summit? Head to https://lssupportnetwork.org/minisummit2023 for more information and details. Get your All-Access Pass before September 19, 2023, and get access to (W)holistic Healing Summit 2022 and 2023 replays until November 1, 2023. You do not want to miss this. Other links from the episode: Virtual Meetups https://lssupportnetwork.org/connect Provider Directory https://lssupportnetwork.org/providers LSSN Membership https://lssupportnetwork.org/membership…

Lichen Sclerosus Podcast

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Find Your Power Through Pelvic Health with Wellness.By.Penny 24:30

2 years temu24:30

24:30

In this episode, you will be able to: Explore the impact of holistic methods on pelvic health and wellness. Harness the strength of your pelvic area to alleviate pain. Foster a nurturing environment for individuals coping with pelvic pain. Unlock a fulfilling life through empowerment for those with chronic conditions. My special guest is Penny Petersson Penny reaches her audience through her Instagram account, @wellbeingbypenny, where she spreads positivity and humor, despite her own pelvic health challenges. Her unique way of turning the difficult into digestible content has made her a true inspiration in the pelvic pain community. Penny's Resources: Follow her on Instagram at https://www.instagram.com/wellbeing.by.penny Listen to Penny's new podcast The Pelvic Power Podcast. Join her membership the Pelvic Health Yoga Membership today, at https://well-being-by-penny-s-school.teachable.com/?affcode=848302_qg_-pve8 and use code 'JACLYN' for a 7-day free trial and 30% off your first month. Connect with us: Instagram: https://www.instagram.com/lichensclerosussupportnetwork/ YouTube: https://www.youtube.com/channel/@lichensclerosussupportnetwork Facebook: https://www.facebook.com/lichensclerosussupportnetwork Website: https://lssupportnetwork.org/…

Lichen Sclerosus Podcast

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The Challenges of Research with Sophie Rees 1:03:23

2 years temu1:03:23

1:03:23

In this podcast, Sophie Reese, an English researcher, discusses her work on the project Living with Vulva LS, a Mixed Method Study. She mentions the development of a checklist of diagnostic criteria to help health professionals diagnose LS accurately and quickly. Sophie highlights the challenges in recruiting participants for research studies, particularly ethical issues, and the responsibility of researchers to publish their findings to create real-world changes. The interviewee emphasizes the need for inclusivity in medical research, communicating with different groups, and improving research involvement among patients. She invites patients to reach out to providers or patient groups to learn about research opportunities and get involved in research organizations. In this episode, you will be able to: Delve into the challenges faced in Lichen Sclerosus research and the consequences for affected individuals. Realize the value of spreading awareness about vulval and vaginal conditions to empower women. Grasp the essential role education and accurate diagnosis play in successfully treating Lichen Sclerosus. Investigate the impact of diverse and inclusive language in Lichen Sclerosus research on patient well-being. Recognize the importance of increasing healthcare access and improving treatments for Lichen Sclerosus patients. Connect with Sophie Rees on Instagram at https://www.instagram.com/vulva_resea... Core outcome domains for lichen sclerosus: a CORALS initiative consensus statement ( https://academic.oup.com/bjd/article/...) Connect with us: Instagram: https://www.instagram.com/lichenscler... YouTube: https://www.youtube.com/channel/@lich... Website: https://lssupportnetwork.org/ Loved this episode? Make sure to subscribe.…

Lichen Sclerosus Podcast

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Listen to This If You're Looking For Evidence-based Information and Community 11:32

2 years temu11:32

11:32

When I started the podcast, I never imagined it would grow into something so much more - the Lichen Sclerosus Support Network and their annual (W)holistic Healing Summit. Now, every year, we strive to make a brighter tomorrow for those facing the same struggle I once did. But what does the future hold for this amazing network? Learn more and get your pass today at https://whhs.lssupportnetwork.org/ In this episode, you will be able to: Experience the transformational effects of holistic healing on lichen sclerosus patients at the inspiring summit. Dive into the world of comprehensive resources to fill the information gap and learn more. Elevate your network by participating in interactive sessions and listening to expert talks within the community. Unfold necessary discussions on sexual health, pregnancy, and menopause related to lichen sclerosus. Choose from free, basic, or all-access passes to get different perk levels “It's important that you guys get that information in a way that you can understand.” The resources mentioned in this episode are: Sign up for the (W)holistic Healing Summit starting on May 8th by visiting whsupportnetwork.org or clicking the link in the description. Choose a pass option: Free Pass (access to live sessions), Basic Pass ($25, access to recordings for 30 days), or All Access Pass ($100, lifetime access to keyword searchable recordings, PDFs, notes, worksheets, and exclusive sessions). Attend the live sessions, including internship as a vulvar specialist with Dr. Jill Krapf, pain management with Dr. Corey Babb, pelvic health physical therapy, sex education, pleasure practices, and talks on pregnancy and menopause. After each session, participate in community lounge rooms to connect with others and share experiences. Visit the exhibitors to learn about products and resources to help with lichen sclerosus. Upgrade your pass anytime if you want more access to the event content. Leave any questions in the comments section of the video for further clarification. The key moments in this episode are: 00:00:00 - Introduction, 00:02:14 - The Holistic Healing Summit, 00:06:21 - Expert Speakers, 00:08:32 - Passes and Benefits, 00:10:24 - Conclusion, Learn more and get your pass today at https://whhs.lssupportnetwork.org/ Connect with us: Instagram: https://www.instagram.com/lichensclerosussupportnetwork/ YouTube: https://www.youtube.com/channel/@lichensclerosussupportnetwork Facebook: https://www.facebook.com/lichensclerosussupportnetwork Website: https://lssupportnetwork.org/ Loved this episode? Hit the like button and make sure to subscribe.…

Lichen Sclerosus Podcast

1
How steroids affect lichen sclerosus patients with Dr. Jill Krapf 45:04

2 years temu45:04

45:04

Join me in the second part of this conversation with Dr. Jill Krapf, LS specialist; researcher; author; and educator, about her research review, "Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies." When evaluating treatments for lichen sclerosus, one must consider all variables involved for optimal application. In this review article, the authors explore the science of the skin and the effects of inflammation, as well as the absorption of the medication. However, with limited research guiding us, the answer remains scattered and uncertain, leaving us with more questions than answers. In this episode, you will be able to: Discover the effectiveness of topical steroid treatments in managing Lichen Sclerosus. Understand skin absorption concerns and dosages when using steroid treatments. Uncover truths about the myths surrounding the long-term side effects of steroid use. Grasp the significance of adhering to proper steroid application guidelines. Delve into alternative treatment options beyond steroid usage for Lichen Sclerosis. My special guest is Dr. Jill Krapf Dr. Jill Krapf is a renowned researcher, author, vulvar specialist, and educator with a passion for helping patients suffering from Lichen Sclerosus. Her extensive knowledge and experience in the field make her an invaluable resource for those seeking guidance on steroid treatments for Lichen Sclerosus. Dr. Krapf's dedication to uncovering the most effective methods of treatment has led her to conduct in-depth research on the impact of steroids on Lichen Sclerosus patients. With a wealth of experience and expertise, Dr. Krapf is an ideal guest to shed light on this complex topic and provide much-needed answers to those affected by this condition. The key moments in this episode are: 00:00:00 - Introduction, 00:02:26 - Types of Research, 00:07:45 - Purpose of the Review, 00:13:08 - Absorption of Topical Steroids, 00:15:57 - Understanding Lichen Sclerosis Skin, 00:17:42 - Interpreting the Effects of Inflammation on Skin, 00:19:27 - Burnt Out Lichen Sclerosis and Hyperpigmentation, 00:22:05 - Risks of Topical Steroids, 00:25:48 - Thinning of the Skin, 00:31:57 - Misuse of Steroids, 00:33:23 - Side Effects of Steroid Use, 00:36:02 - Tapering Medications, 00:37:37 - Current Steroid Use Guidelines, 00:39:32 - CO2 Laser and Steroid Injections, 00:43:05 - Conclusion, Check out all the ways Lichen Sclerosus Support Network can help you at lssupportnetwork.org. Resources: Vulvar Lichen Sclerosus: Current Perspectives https://www.vulvodynia.com/assets/files/ijwh-191200-vulvar-lichen-sclerosus-current-perspectives.pdf Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies https://vulvodynia.com/assets/files/Lichen-Sclerosus.pdf Center for Vulvovaginal Disorder http://cvvd.org LSSN Blogs: How to Apply Topical Steroid Treatment for Lichen Sclerosus Correctly https://lssupportnetwork.org/applyproper Lichen Sclerosus Treatment Series Part 1: Steroids https://lssupportnetwork.org/steroids1 Lichen Sclerosus Treatment Series Part 2: Steroids https://lssupportnetwork.org/steroids2 LSSN Video: Unraveling the Mystery of Lichen Sclerosus Treatment with Dr. Jill Krapf https://www.youtube.com/watch?v=NtFse-rcRwI How to Apply Topical Steroid Treatment for Lichen Sclerosus Correctly https://lssupportnetwork.org/drjill Connect with us: Instagram: https://www.instagram.com/lichensclerosussupportnetwork/ Facebook: https://www.facebook.com/lichensclerosussupportnetwork/ Website: https://lssupportnetwork.org/ Loved this episode? Make a donation to help us create new content. https://lssupportnetwork.org/donate…

Lichen Sclerosus Podcast

1
Do you want to Get Your Sexy Back? You need this program. 28:17

2 years temu28:17

28:17

Has lichen sclerosus changed your sex life? Did you lose your self-confidence? Do you feel less at home in your body? Has your sexual identity been destroyed? Is your libido nonexistent? Like you have no desire for sex and intimacy? Here’s the thing. You are not alone! What if we had a way to turn it around? If you're ready to get your sexy back, you need to watch this video and go to https://lssupportnetwork.org/sexyback We spent months designing a unique program for folks with lichen sclerosus with chronic illness, sex educator Shauna Farabaugh . A one a kind of life-changing experience for our community. And you do not want to miss it. We're only accepting the first 15 people into the program. By attending the live classes, doing the practices, and interacting with the community, you will: Increase your libido and desire Learn how to communicate sexual desires and limits Discover a new view of what being sexual means Appreciate your new sexual being Love and accept who you are And so much more! Sex is a learnable skill. Take the first steps towards your sexual rebirth today, and get ready to get your sexy back! Click the link below to see program specifics and sign up in time for our early bird special, April 3-9, 2023. https://lssupportnetwork.org/sexyback…

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