MS-Perspektive - The Multiple Sclerosis podcast

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Treść dostarczona przez Nele Handwerker. Cała zawartość podcastów, w tym odcinki, grafika i opisy podcastów, jest przesyłana i udostępniana bezpośrednio przez Nele Handwerker lub jego partnera na platformie podcastów. Jeśli uważasz, że ktoś wykorzystuje Twoje dzieło chronione prawem autorskim bez Twojej zgody, możesz postępować zgodnie z procedurą opisaną tutaj https://pl.player.fm/legal.

Mind The Business: Small Business Success Stories

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Pushing Past Stagnation & Business Plateaus 30:21

8 dni temu30:21

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Hitting plateaus is a common milestone in business, but there’s a difference between stability and a rut. In the last installment of this season, we’ll dive into the ways small business owners push beyond plateaus and find new ways to achieve revenue growth. Jannese and Austin wrap up their time in Nashville, Tennessee with a wonderful visit to N.B. Goods to speak with owner Camille Alston . Camille details the times where she hit a wall with profits, the strategies she implemented to increase revenue, what worked, what didn’t, and the important lessons she learned in the process. You won’t want to miss this informative final chapter! Learn more about how QuickBooks can help you grow your business: QuickBooks.com See omnystudio.com/listener for privacy information.…

MS-Perspektive - The Multiple Sclerosis Podcast

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In the MS-Perspektive Podcast, I present my view of multiple sclerosis and show you how you can make the best of the diagnosis. Because a beautiful and fulfilling life is also possible with multiple sclerosis. Here you will find information and strategies on how you can actively influence your course. In addition, I publish solo articles with my experiences, interview experts and on various topics related to living with MS as well as other affected people. In addition, there are a few episodes that serve the relaxation, positive attitude and stimulation.

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MS-Perspektive - The Multiple Sclerosis Podcast

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MS-Perspektive - The Multiple Sclerosis Podcast

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#110: 10 things you should know about MRI scans for MS 40:19

1 day temu40:19

40:19

Neuroradiologist Prof. Mike Wattjes explains in easy-to-understand terms what you need to know about MRI scans for MS. You can read through the transcript here: https://ms-perspektive.com/110-10-mri-facts This time, I have translated the original German interview with Prof. Dr. Mike P. Wattjes on the importance of MRI as an imaging technique for diagnosis, progression assessment, therapy decisions, and monitoring of disease-modifying therapies in MS patients into English. Prof. Wattjes is the lead author of the MAGNIMS Guideline 2021, which provides global recommendations and standards for MRI examinations in people with MS. He explains the ten most important things about MRI in multiple sclerosis in an easy-to-understand way. He also discusses well-established MRI imaging options that will hopefully soon be available to all MS patients and the importance of standardization in order to harness the potential of magnetic resonance imaging. Table of Contents Introduction Prof. Dr. Mike P. Wattjes Magnetic resonance imaging (MRI) in multiple sclerosis Farewell See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#109: Understanding Cognitive Reserve and Its Role in Multiple Sclerosis 16:34

9 dni temu16:34

16:34

Cognitive reserve is important for PwMS as it can compensate damage caused by MS to a certain amount. Learn how to measure and improve it. You can read through the complete article on my blog: https://ms-perspektive.com/109-cognitive-reserve I often talk about the cognitive reserve in my podcast and blog posts. When it is used up, the brain can no longer compensate for any damage that occurs. However, it is more of a concept and not that easy to grasp, this cognitive reserve, and of course it can also be used up in other ways. So it’s time to take a closer look at it. How can you measure it and what do you do with the result? Fortunately, there are a number of training options to counteract the invisible challenges – such as memory lapses, concentration difficulties or slowed thinking. To ensure that cognitive changes do not have a significant impact, it is crucial that our brain has the ability to adapt, remain flexible and continue to function even in the event of damage or disease. The good news? Cognitive reserve is not set at birth. You can actively build and strengthen it over time, even into old age. Find out what the concept of cognitive reserve really means, how it is measured using the Cognitive Reserve Index Questionnaire (CRIq), and, most importantly, what you can do to protect and boost your brainpower – even if you are struggling with MS-related fatigue or limited time. Whether you are just starting to explore the topic or are looking for new strategies, this guide is designed to help you take a confident step towards mental resilience. Table of Contents What Is Cognitive Reserve and Why Is It Important in MS? What Is the CRIq and How Does It Measure Cognitive Reserve? What Can You Do If Your Cognitive Reserve Is Low? Why Aren’t These Tests Commonly Used in MS Care? How Reliable Is a Self-Test and What Are Its Limitations? Why Is It Always Worthwhile to Train Cognitive Reserve? How Can You Train Cognitive Reserve Effectively? Do I Need to Train All Areas? Why You Shouldn’t Be Disheartened by a Low Starting Score How to Start Small (Especially with Fatigue or Limited Time) In Summary More information You can also complete the CRIq conveniently online through the official platform: https://www.cognitivereserveindex.org/choice.php . This allows you to choose between a long or short version, both designed for easy self-assessment. I’ve done it myself and provided my anonymous information to the University of Padua, Italy. It is quite basic, but gives you an idea where you stand. More information If you want to know more about the cognitive reserve, you might want to start with the Wikipedia article which offers further resources as always. --- See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#108: How you can use ChatGPT (or another AI) to prepare for the doctor’s consultation 13:24

16 dni temu13:24

13:24

Find out how AI can help you to get a more structured doctor's appointment that allows you to address all important points. You can read through the article or copy the prompts and replacing the details with your symptoms and request: https://ms-perspektive.com/108-chatgpt Today, I’ll show you how you can use AI, for example ChatGPT, to better prepare for your doctor’s appointment. I visit the MS Center in Dresden, Germany, once every quarter, and in all these years, it has happened often enough that I forgot to address important topics. There were different reasons for this. You probably know the feeling. When results are presented that you didn’t expect, terms are used that are new or at least not familiar enough to make you wonder. And with a chronic illness like multiple sclerosis, there may well be several topics to discuss with your doctor. Time is usually short – and when you’re nervous, it’s easy to forget half of what you need to say. I have found that ChatGPT can help me prepare for such conversations. In this episode, I’ll show you how it can work in practical terms, using a real-world example. Table of Contents Why is preparation so important? A practical example: MS and ChatGPT How do I set up a conversation like this? Conclusion and invitation Protect your private data Protect your private data Please remember not to upload any personal data that could be used to identify you, such as your doctor’s note with your address. Instead, upload only the section that does not include your name. Or black out all sensitive data beforehand. --- See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#107: LGBTQ+ and MS: The Fight for Inclusive and Equitable Care with Dr. William Conte 45:57

23 dni temu45:57

45:57

Dr. William Conte talks about the challenges and opportunities for LGBTQ+ people with MS – and how inclusive, empathetic care can succeed. You can find the transcript on my blog: https://ms-perspektive.com/107-lgbtq How do LGBTQ+ people with multiple sclerosis experience the healthcare system – and where do they encounter hurdles that often remain invisible? In this special episode, I talk to Dr. William Conte, a neuroimmunologist and member of the LGBTQ+ community himself, about a lack of representation, medical trust, mental health and the importance of affirmative, inclusive care. Dr. Conte brings not only professional expertise but also personal perspective – and is passionate about ensuring that queer people with MS are finally seen, heard and receive better medical care. A conversation about courage, change and why “keeping an open mind” is sometimes the most important first step. Table of Contents Introduction & Personal Perspective Health Disparities & Barriers to Care The Role of Inclusive & Culturally Competent Care Community, Advocacy & Research Quickfire Q&A Session Farewell Introduction & Personal Perspective Can you share a bit about your journey as a neurologist specializing in MS and your experience as a member of the LGBTQ+ community? My journey into neurology began during my undergraduate years. I started neuroscience research by chance and quickly developed a passion for it. That led me to medical school, then a residency in neurology, and ultimately to a subspecialization in neuroimmunology. During my residency, I was drawn to MS because of the patients and the rapid advancements in therapies at the time. Being a gay man myself, I recognized a lack of representation and research in LGBTQ+ MS patients and felt compelled to become an advocate for this community. What is your message to healthcare professionals who want to improve care for LGBTQ+ MS patients? Be curious. You don’t need to have all the answers or hang rainbow flags everywhere. Just take the time to learn. Whether it’s attending a session on LGBTQ+ health or simply asking thoughtful, respectful questions, it shows patients that they’re in the right place. Where can listeners find you or learn more about your work? I’m very Googleable! You can find me through my clinic’s website or on LinkedIn. I regularly publish and speak on these topics, and I’m always happy to connect. --- See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#106: Trigeminal neuralgia and MS – an invisible challenge. Interview with Dr. Monika Köchling 19:35

30 dni temu19:35

19:35

MS patients can also suffer from trigeminal neuralgia, which is very painful. Dr. Köchling explains the treatment. Translated interview. You can read the full article including the treatment details on my blog: https://ms-perspektive.com/106-trigeminal-neuralgia This time, I've translated the German interview with Dr. Monika Köchling about the causes and treatment options for trigeminal neuralgia. Since this form of facial pain can lead to extreme restrictions in the quality of life, it is extremely important to treat it. The good news is that there are many approaches to controlling the pain or even getting rid of it completely. However, this can sometimes take a little longer and it is important to work with your doctors to find a solution and possibly try several approaches. The original interview was in German and I adapted it for the international MS community. Table of Contents Introduction Monika Köchling Basics of trigeminal neuralgia in MS Treatment options for trigeminal neuralgia in MS Effects of trigeminal neuralgia in MS Quickfire Q&A Farewell Introduction Monika Köchling I work in Grevenbroich, Germany, as a neurologist, psychiatrist and psychotherapist in a large group practice, the NeuroCentrum am Rheinlandklinikum. I live in Düsseldorf and am married for the second time. I also have two grown-up sons. My hobbies include singing in a choir, hiking and poetry. Finally, what is the most important message you would like to give to MS patients with trigeminal neuralgia? Attitude is crucial. Don’t despair. Become and remain resilient and dare to try new things. To quote Hilde Domin: “I put my foot in the air and it carried me.” --- Many thanks to Dr. Köchling for the in-depth insight into the treatment options for trigeminal neuralgia. See you soon and make the most of your life, Nele You can find more information and positive thoughts in my free newsletter. Here you will find an overview of all previous podcast episodes.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#105: The Sumaira Foundation & NMO: How One Woman’s Journey is Changing Lives Worldwide 40:17

5 weeks temu40:17

40:17

Sumaira Ahmed turned her NMOSD diagnosis into a global movement, founding The Sumaira Foundation to support patients and drive research. You can read through all questions and answers on my blog: https://ms-perspektive.com/105-tsf Neuromyelitis Optica Spectrum Disorder (NMOSD) is a rare autoimmune disease that can feel isolating and overwhelming. But for Sumaira Ahmed, her diagnosis became the spark that ignited a global movement. In this episode, we dive into her personal journey with NMO, the challenges she faced, and the resilience that led her to create The Sumaira Foundation (TSF)—an organization dedicated to raising awareness, supporting patients, and funding research for NMOSD and MOGAD. Sumaira shares raw insights into her diagnosis, the treatment landscape then vs. now, and how finding community changed everything. We also discuss the power of advocacy, the impact of TSF Ambassadors worldwide, and the exciting developments shaping the future of NMOSD care. Whether you’re a patient, caregiver, or simply interested in how one person can make a global difference, this conversation is filled with hope, inspiration, and practical insights. Table of Contents Introduction – Who is Sumaira Ahmed? Personal Journey with NMO Facing Challenges & Finding Strength The Sumaira Foundation (TSF) A Message for Other Patients Quickfire Q&A Session Farewell Introduction – Who is Sumaira Ahmed? Hi, everyone. My name is Sumaira Ahmed, and I’m a patient living with seronegative Neuromyelitis Optica Spectrum Disorder (NMOSD). I live in Boston, Massachusetts and was diagnosed 11 years ago after sudden vision loss and weakness. Six weeks after my symptoms started, I received my diagnosis. Just two months later, I founded The Sumaira Foundation, which is now 11 years old. I currently serve as the Executive Director. Finally, what advice would you give to someone who has just been diagnosed with NMO or another rare disease? Feel what you’re feeling—it’s okay to be sad, angry, or scared. Those emotions are valid, but don’t let yourself get stuck in them. There will be light at the end of the tunnel, even if it takes longer than expected. Believe in yourself. Our minds and bodies are capable of so much more than we think. If I had given up when I was told I had only a short time left, none of this would have happened. Don’t give up! How and where can interested people find you online? You can visit The Sumaira Foundation at www.sumairafoundation.org . The website is available in 25 languages so that people from around the world can access information in their native language. We are active on social media, and you can follow us on: Instagram , Facebook , LinkedIn , X (Twitter) , Blue Sky , TikTok , and YouTube On YouTube, we have hundreds of educational and empowerment videos for patients and caregivers. --- Nele von Horsten: That’s fantastic! Sumaira, thank you so much for your time and for sharing your incredible journey. I know I missed you at ECTRIMS in Milan, but I’m sure we’ll meet at another event soon! Sumaira Ahmed: Absolutely, Nele! I appreciate this opportunity, and I look forward to seeing you at a future event. See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#104: Leveraging AI in MS Care and Shared Decision-Making with Dr. Stefan Ebener 50:05

6 weeks temu50:05

50:05

AI is transforming Multiple Sclerosis (MS) care by enhancing Shared Decision-Making (SDM), improving diagnosis, personalizing treatments, and empowering patients—discover the future of AI in MS with Dr. Stefan Ebener. You can read the short version of the interview on my blog: https://ms-perspektive.com/104-ai-in-ms-care Artificial intelligence (AI) is reshaping the management of multiple sclerosis (MS), particularly in shared decision-making (SDM) between patients and healthcare professionals. From early diagnosis and personalized treatment recommendations to improving doctor-patient communication, AI-driven tools are enhancing how MS is understood and treated. In this interview, I speak with Dr. Stefan Ebener, an AI healthcare expert at Google, about the current and future role of AI in MS care. How can AI simplify complex medical data? What are its limitations? And how can it support MS patients in making informed treatment choices? Together, we explore the transformative potential of AI in MS care and the importance of balancing technological advancements with human expertise. Table of Contents Introduction – Who is Dr. Stefan Ebener? Understanding AI in Healthcare Shared Decision-Making with AI Improving Contact with Healthcare Providers Ensuring Privacy and Data Security Accessibility and Inclusivity Potential Challenges and Limitations Empowering Patients through AI Introduction – Who is Dr. Stefan Ebener? Dr. Stefan Ebener: My name is Dr. Stefan Ebener, and I lead an international team of experts at Google. Our goal is to help customers implement cutting-edge technologies for real-world applications, including AI solutions in healthcare. What advice would you give MS patients who are curious about using AI tools to manage their condition? Dr. Stefan Ebener: Be curious, but stay cautious. AI can be an excellent support tool, but always verify information and consult healthcare professionals before making medical decisions. Nele von Horsten: Stefan, thank you for your insights! AI has incredible potential, but as you’ve mentioned, it must be used wisely. Dr. Stefan Ebener: Thank you, Nele! It was a pleasure discussing AI’s role in MS care. Looking forward to seeing how AI continues to evolve in this space. --- See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#103: Can epigenetic research transform MS treatment? Insights into DNA methylation and MS progression with Dr. Majid Pahlevan Kakhki 42:26

7 weeks temu42:26

42:26

Discover how epigenetic research is transforming multiple sclerosis treatment by uncovering the role of DNA methylation, gene regulation, and potential new therapies for MS progression. You can read through all questions and answers on my blog: https://ms-perspektive.com/103-majid Have you ever wondered how epigenetic mechanisms influence multiple sclerosis (MS) progression and why some people experience rapid disease worsening while others have a milder course? Could there be hidden biological switches beyond genetics affecting MS? In this deep dive, I explore the fascinating world of epigenetics with Dr. Majid Pahlevan Kakhki, uncovering how factors like DNA methylation shape MS progression and treatment outcomes. Join me as we discuss groundbreaking research on how lifestyle, environment, and molecular modifications influence MS. Could epigenetic therapies hold the key to slowing or even reversing disease progression? Read on to find out how this cutting-edge science is paving the way for more personalized and effective MS treatments. Table of Contents Introduction – Who is Dr. Majid Pahlevan Kakhki? Introduction to Epigenetics and MS Genetic Factors and MS Progression Clinical Implications for MS Patients Epigenetic Therapies and Future Prospects Broader Impact of Epigenetic Research Quickfire Q&A Session Farewell Introduction – Who is Dr. Majid Pahlevan Kakhki? Sure! My name is Majid Pahlevan Kakhki, and I’m originally from Iran, specifically from the Khorasan province in the northeast of the country. My childhood was closely tied to agriculture, as I spent a lot of time working in the saffron fields alongside my parents. As I grew older, I wanted to support my education and gain independence, so I learned tailoring and became quite skilled at it. This allowed me to finance my studies while remaining self-sufficient. I pursued a Ph.D. in Molecular Genetics in Iran, and after completing my doctorate, I moved to Karolinska Institutet as a postdoctoral researcher. Since then, I have been working there, focusing on cutting-edge research in my field. Finally, what message of hope or encouragement would you like to share with the listeners? „Don’t give up. I know that some days can be tough, but please remember that researchers around the world, including myself, are working hard to find better treatments and solutions for you. I truly believe that one day, we will hear the news that MS is cured, and we’ll be able to focus our research on curing other diseases.“ How and where can interested people follow your research activities? I have a LinkedIn profile ( https://www.linkedin.com/in/majid-pahlevan-kakhki ) and also the Karolinska Institute ( https://ki.se/en/people/majid-pahlevan-kakhki ) webpage where our research is reported. --- Many thanks to Majid and his colleagues for all the valuable research they are doing and the insights provided into it today. See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#102: MS and domestic violence and abuse (DVA). Raising awareness, offering support, creating change with Sue Britt 1:05:25

8 weeks temu1:05:25

1:05:25

MS patients especially women are at higher risk of ewxperiencing domestic violence and abuse. Awareness is key followed to create change. You can read through the questions and answers on my blog: https://ms-perspektive.com/102-dva Domestic violence and abuse (DVA) is a silent crisis affecting millions worldwide – but what happens when a chronic illness like multiple sclerosis is part of the equation? Living with MS brings unique challenges, from mobility issues to cognitive changes that can make recognizing and escaping abusive situations even more difficult. Research on the intersection of MS and domestic violence is still in its infancy, but a team from the universities of Leeds and Nottingham is working to change that. In the interview, I talk to Sue Britt, a chartered midwife, lecturer, and researcher at the University of Nottingham who is part of the study team, about how healthcare professionals respond to domestic violence and abuse in people with MS. With her background as a midwife and strong commitment to patient care, Sue sheds light on why people with MS—especially women—may face a higher risk of abuse, the warning signs to watch for, and how healthcare professionals can provide better support. If you or a loved one has MS and is concerned about domestic violence, this article provides insight, resources, and practical steps for seeking help. It is time to break the silence, raise awareness, and create meaningful change in the MS community. Sie sehen gerade einen Platzhalterinhalt von Podcast Player. Um auf den eigentlichen Inhalt zuzugreifen, klicken Sie auf den Button unten. Bitte beachten Sie, dass dabei Daten an Drittanbieter weitergegeben werden. Table of Contents Introduction – Who is Sue Britt? Understanding the Issue of Domestic Violence and Abuse (DVA) in MS The Connection Between MS and domestic violence and abuse Seeking Help and Support The Role of Research in Adressing domestic violence and abuse in MS Encouragement and Empowerment Quickfire Q&A Session Farewell Introduction – Who is Sue Britt? I am Sue. I’m actually a registered midwife by background and have a career in midwifery both as a clinical practitioner and a lecturer. Since 2022, I’ve been a full-time student at Nottingham University, where I’m exploring professional responses to domestic violence and abuse in people with MS. I’m married to Dave, we have three dogs Maxx, Jess and Pippa. Because I have three dogs, I enjoy walking and hiking, but I’m also very active in the gym. One fact about me that your listeners might find interesting is that my first degree was in German! I’ve also lived in Germany in the past and worked at the University of Erlangen as a Lektorin. Take care of yourself or your loved ones if you or they are affected by domestic violence or abuse. See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#101: Shared Decision Making and AI: Making the best decisions for MS together with Dr. Sven Jungmann 47:25

9 weeks temu47:25

47:25

How AI can improve shared decision making (SDM) for multiple sclerosis patients on their journey with Dr. Sven Jungmann. You can read the full interview on my blog: https://ms-perspektive.com/101-sdm-ai In today’s rapidly evolving healthcare landscape, the intersection of medicine and technology is transforming the way we approach patient care, treatment and long-term health management and artificial intelligence (AI) and shared decision making (SDM) is at the center of it all. Dr. Sven Jungmann, physician and entrepreneur combines two important areas of expertise. With his medical background and passion for tackling broader healthcare challenges, Dr. Jungmann has expanded his focus beyond the confines of hospitals and is committed to the power of digital solutions, artificial intelligence (AI) and automation in improving healthcare systems. In this interview, Dr. Jungmann discusses the critical role of AI and digital tools in the management of chronic conditions such as multiple sclerosis (MS) and provides insights into how technology can support both patients and healthcare providers. He also emphasizes the need for intelligent, ethically responsible healthcare solutions that free up doctors and nurses while improving the patient experience. Through his entrepreneurial activities, his writings and his research, Dr. Jungmann continues to advocate for change with the goal of creating more efficient, humane and patient-centered healthcare. Sie sehen gerade einen Platzhalterinhalt von Podcast Player. Um auf den eigentlichen Inhalt zuzugreifen, klicken Sie auf den Button unten. Bitte beachten Sie, dass dabei Daten an Drittanbieter weitergegeben werden. Table of Contents Introduction – Who is Dr. Sven Jungmann? Information on apps and digital solutions for people with MS General tips for evaluating and using digital health solutions Interaction of digital solutions and medical care AI and shared decision making Being an author Transforming power of AI Quickfire Q&A Session Farewell Introduction – Who is Dr. Sven Jungmann? It’s a pleasure to have the opportunity of making a small contribution here, Nele. Thank you so much. I’m a physician by training who realized early on that I wanted to tackle the bigger challenges in healthcare—beyond the walls of a single clinic or hospital. Don’t get me wrong: We absolutely need dedicated doctors and nurses who serve patients one-on-one. But I also believe we need people who can help multiply the impact of practitioners through technology, artificial intelligence (AI), and digital tools. Right now, too many healthcare systems are on the verge of financial collapse. We’re not training enough healthcare providers, and many of those who are trained end up frustrated by bureaucratic hurdles, way too many overhours, poor working conditions, and low payment (many people are still surprised when they find out how little many doctors actually earn). If we want sustainable, high-quality care, we need to embrace automation and digital solutions as much as possible in a smart, ethically responsible way. This includes everything from shared decision making to leveraging modern sensors and AI. Personally, I love working across different disciplines—whether with engineers, designers, psychologists, economists, or physicists. It stretches my thinking and brings such a diversity of perspectives. Being an entrepreneur compounds this thrill: practically everything becomes your playground, and while that can be intense (I’ll admit it’s hard to “switch off”), it’s also incredibly rewarding. How and where can interested people follow your research activities? I’d love for people to connect with me on LinkedIn , where I regularly share updates and insights. I’m also planning to get more active on YouTube with short talks and interviews about the intersection of healthcare, AI, and entrepreneurship. And my company’s new website will go live soon: www.aiomics.io --- I hope this interview has sparked your interest in trying out the new solutions available, while being aware of the possibilities and limitations of AI in shared decision making. See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#100: The Future of MS Care. Can Digital Twins Predict Your Disease Progression? With Prof. Tjalf Ziemssen 51:34

10 weeks temu51:34

51:34

Find out how digital twin technology based on AI and big data is transforming the treatment of Multiple Sclerosis by enabling personalized treatment, predicting disease progression, and optimizing patient management. You can read a shortened summary of the interview on my blog: https://ms-perspektive.com/100-digital-twin The concept of a digital twin is revolutionizing medicine, offering a new way to personalize treatments and predict disease progression. But what exactly does it mean for multiple sclerosis patients? In the 100th anniversary episode of the English MS-Perspektive Podcast, Prof. Tjalf Ziemssen, one of the world’s leading MS experts and innovators, explains how AI and big data are shaping the technology of digital twins to improve MS care. We discuss how this innovative approach differs from traditional monitoring tools, its potential for predicting disease progression, and how it could help neurologists adjust treatments sooner. Beyond medical care, digital twins can also support lifestyle adjustments and rehabilitation strategies. And they can show patients whether they are being well cared for or missing important checkups. Find out more about the real-world applications, current challenges and future possibilities of digital twin technology for people with MS. Sie sehen gerade einen Platzhalterinhalt von Podcast Player. Um auf den eigentlichen Inhalt zuzugreifen, klicken Sie auf den Button unten. Bitte beachten Sie, dass dabei Daten an Drittanbieter weitergegeben werden. Table of Contents Introduction Potential Benefits for MS Patients Realistic Applications & Current Challenges The Future of Digital Twins in MS Treatment Closing Thoughts & Call to Action Where can interested listeners follow your research or get involved? Prof. Tjalf Ziemssen: You can follow my work through academic publications , MS research platforms, and social media channels. We also encourage those interested to engage with patient organizations that support digital health initiatives. --- See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#099: Insights from Groundbreaking MS Studies on Risks, Trends, and Equity an ECTRIMS Special 25:52

11 weeks temu25:52

25:52

Learn more about epidemiology of MS including risks, trends and where clincial trials need to be revised for better equity. You can read the full article on my blog: https://ms-perspektive.com/99-epidemiology In this overview of papers from ECTRIMS 2024, I have selected studies that look at development and frequency and influence progression. You will learn about the role of Epstein-Barr virus infections and the effects of social and health inequalities on the course of MS. These studies also highlight the growing need for inclusion in clinical trials and the importance of monitoring MS trends worldwide. By exploring these insights, we can better understand the complexities of MS and learn how they shape the future of care and research for the MS community. Table of Contents 1. Risk and onset of multiple sclerosis after infectious mononucleosis (IM): a population-based study of >650,000 cases of IM 2. Rising prevalence of Multiple Sclerosis in Switzerland – Results from the Swiss Multiple Sclerosis Registry 3. Multiple Sclerosis in the Greenlandic population 4. African American and Non-Hispanic White people with multiple sclerosis: social determinants of health and health inequities. 5. Clinical Trial Awareness among African Americans --- See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#098: New Research for Managing Primary Progressive Multiple Sclerosis (PPMS) an ECTRIMS Special 31:22

12 weeks temu31:22

31:22

Latest treatments and research presented at ECTRIMS 2024 for managing primary progressive MS (PPMS). including innovative therapies like CAR T-cell therapy. You can read the full article on my blog: https://ms-perspektive.com/098-ppms-ectrims Primary Progressive Multiple Sclerosis (PPMS) presents unique challenges, as it often worsens without relapses and can significantly impact daily life. However, the growing body of research and treatment options is providing new hope for managing this condition. From exploring the effectiveness of established therapies like Ocrelizumab to cutting-edge advancements in CAR T-cell treatments, scientists and healthcare providers are uncovering ways to slow progression, improve outcomes, and enhance quality of life. This summary from ECTRIMS 2024 dives into the latest studies and innovations, offering insights to empower your MS journey. Table of Contents 1. Anti-CD20 therapies in drug-naive primary progressive multiple sclerosis patients: A multicenter real-life study 2. Design of KYSA-7, A Phase 2, Open-Label, Randomized, Multicenter Study of KYV-101, an Autologous Fully Human Anti-CD19 Chimeric Antigen Receptor (CAR) T-Cell Therapy, in Treatment Refractory Primary and Secondary Progressive Multiple Sclerosis 3. Efficacy and security of ocrelizumab in patients with primary progressive multiple sclerosis (ppms) in a tertiary care hospital multiple sclerosis unit 4. GA Depot (long-acting IM injection of glatiramer acetate) Impact on EDSS stability in Relapsing forms of Multiple Sclerosis (RMS) and Primary Progressive Multiple Sclerosis (PPMS) 5. Impact of age on safety and effectiveness outcomes in persons with relapsing and primary progressive multiple sclerosis treated with ocrelizumab in the German real-world CONFIDENCE study 6. Brain Volume Maps Identify Primary Progressive Multiple Sclerosis Patients at High Risk of Accelerated Atrophy --- Living with PPMS can feel overwhelming at times, but you are not alone. Research is advancing rapidly, with treatments and approaches designed to help slow progression, maintain independence, and enhance quality of life. Whether it’s monitoring your brain health, considering therapies like Ocrelizumab or GA Depot, or staying informed about revolutionary trials like CAR T-cell therapy, there is a growing arsenal of options to explore. Remember, your journey with MS is unique, and the best path forward is one tailored to your needs in collaboration with your healthcare team. Stay proactive, prioritize your well-being, and take comfort in knowing that science, advocacy, and community support are on your side. Every small step—whether it’s discussing a new treatment or making a lifestyle change—can bring you closer to a brighter future. Keep believing in your strength and the progress that’s being made for us and our community. See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#097: Late-Onset Multiple Sclerosis (LOMS): Symptoms, treatment options, and prognosis with Dr. Abdulkadir Tunc 28:55

13 weeks temu28:55

28:55

Discover expert insights on Late-Onset Multiple Sclerosis (LOMS) from Assoc. Prof. Dr. Abdulkadir Tunç, a leading neurologist dedicated to advancing MS care and improving lives. You can read the interview on my blog: https://ms-perspektive.com/97-loms I am pleased to welcome Associate Professor Dr. Abdulkadir Tunç in this interview, a neurologist who has dedicated his career to understanding and treating multiple sclerosis (MS), including late-onset multiple sclerosis (LOMS). Dr. Tunç is passionate about helping people overcome the challenges of MS and improve their quality of life through personalized care and innovative research. Dr. Tunç’s continuing education, including his graduation from the renowned International Charcot MS Master’s Program, has given him an in-depth knowledge of the complexities of MS. He heads a neuroimmunology clinic at Sakarya University in Turkey, where he and his team specialize in finding the best treatments for each patient’s individual needs. Today, he shares insights into the management of LOMS and tips on how patients can live well with it. Table of Contents Introduction – Who is Assoc. Prof. Dr. Abdulkadir Tunc? Definition and Differences in Onset of LOMS Immunotherapies and Treatment Decisions Repair and Recovery Mechanisms Symptomatic Treatment and Quality of Life Prognosis and Progression of LOMS New Developments: BTK Inhibitors Quickfire Q&A Session Farewell Introduction – Who is Assoc. Prof. Dr. Abdulkadir Tunc? Assoc. Prof. Dr. Abdulkadir Tunc: Thank you for having me; it’s a pleasure to be here. I am Assoc. Prof. Dr. Abdulkadir Tunç, a neurologist specializing in neuroimmunology, particularly MS and autoimmune neuromuscular diseases. For over 10 years, I have been closely working with MS patients, providing care and contributing to research aimed at improving their quality of life. I am proud to have completed the prestigious International Charcot MS Master program, which deepened my understanding of MS and its management. Currently, I run neuroimmunology clinics at Sakarya University, where my team and I focus on personalized approaches to treatment. Beyond my clinical work, I actively participate in our national neurology study group and regularly attend international congresses to stay updated on the latest innovations in the field. On a personal note, I’m married and a father of two wonderful children. When I’m not working, I find joy in playing court tennis and swimming regularly—activities that help me recharge and maintain balance in my life. I believe that staying active and curious, both professionally and personally, is key to living fully. Finally, what message of hope or encouragement would you like to share with individuals living with MS? Assoc. Prof. Dr. Abdulkadir Tunc: To everyone living with MS, remember that you are not defined by this disease. Each day, we’re making progress in understanding MS and developing new treatments to improve lives. Stay hopeful, stay proactive, and never hesitate to lean on your support network. Together, we’re stronger, and together, we’ll continue moving forward. How and where can interested people follow your research activities? Assoc. Prof. Dr. Abdulkadir Tunc: You can follow my research and updates through academic platforms like ResearchGate or LinkedIn , where I share my latest publications and projects. I also collaborate with the MSBase Registry and participate in international MS-focused events, so stay tuned for updates from these communities as well. --- See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

MS-Perspektive - The Multiple Sclerosis Podcast

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#096: From Fatigue to Focus. The Power of Sleep and Exercise in Managing MS an ECTRIMS Special 27:16

14 weeks temu27:16

27:16

Improving sleep quality is vital for managing MS, reducing fatigue, enhancing cognitive function, and boosting overall well-being. You can find the complete summary on my blog: https://ms-perspektive.com/096-sleep Sleep is one of the most critical yet often underestimated aspects of managing MS. For many of us living with MS, poor sleep can worsen fatigue, brain fog, and other symptoms, making daily life even more challenging. The good news is that improving your sleep isn’t just possible—it can lead to meaningful improvements in your energy, mood, and overall well-being. In this summary from ECTRIMS 2024 papers, I’ll explore recent research on how sleep and physical activity interact in MS, along with tips to help you get the restorative rest you deserve. Table of Contents 1. Assessment of sleep quality and its relationship with physical activity in patients with Relapsing-Remiting Multiple Sclerosis 2. Sleep disorders and fatigue in multiple sclerosis: association and interaction. 3. Relationship between sleep disorders and information processing speed in multiple sclerosis 4. Ketogenic Diet in patients with Multiple Sclerosis: effect on Fatigue, Quality of Sleep and Sleepiness. 5. Adolescent sleep patterns, genetic predisposition, and risk of multiple sclerosis Good sleep is a cornerstone of managing MS and improving your quality of life. Small changes, like a consistent bedtime routine or light exercise, can have a big impact over time. Remember, you’re not alone in this journey, and each night of better rest brings you closer to more energized and fulfilling days. Take it one step—or one restful night—at a time, and know that you’re making a powerful investment in your health and well-being. You’ve got this! --- See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.…

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