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Mother on a Mission: Sarah Webster's Push for Syngap Awareness
Manage episode 401131218 series 3381950
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This episode we delve into the world of Syngap1 Syndrome, a rare and relatively unknown genetic disorder. Our guest, Sarah Webster, offers a glimpse into her life deeply intertwined with the rural and equine community. Hailing from a family deeply rooted in campdrafting, Sarah's narrative takes a unique turn as she shares her journey alongside her husband, Cameron, a fourth-generation cattle grazier and Australian Bronc riding champion.
Together, Sarah and Cameron manage their own property outside of Wondohan, navigating the challenges of rural life while raising their children. Sarah opens up about her daughter Gracie's battle with Syngap1 Syndrome, a neurological condition that has significantly impacted their family dynamics. Sarah's story, shedding light on a syndrome that was only diagnosed in 2009, thanks to the pioneering work of Dr. Michaud at St. Justine Hospital in Montreal. Learn more about Syngap1 Syndrome and the resilience of families like Sarah's in facing its challenges head-on. Additionally, they've faced the effects of meningococcal disease on their son Leo.
In April 2024, the Campdraft for a Cure event aimed to shine a spotlight on Sarah and her family's journey, inviting nominations and participation to support the cause. Mark your calendars for April 19-21 2024 and visit the Facebook page to get involved.
Follow Sarah on Instagram and follow her Instagram picks or social suggestions:
@somerset_circus
@haydens_hope
@ballerinafarm
Syngap Research Fund Australia (syngapaustralia.org)
Campdraft for a Cure Facebook Page
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