Two Rare Mama Bears podcast

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Dodano seven lat temu

Treść dostarczona przez Two Rare Mama Bears Podcast, Cure CMD (Matty Manley, and Megan Meyer). Cała zawartość podcastów, w tym odcinki, grafika i opisy podcastów, jest przesyłana i udostępniana bezpośrednio przez Two Rare Mama Bears Podcast, Cure CMD (Matty Manley, and Megan Meyer) lub jego partnera na platformie podcastów. Jeśli uważasz, że ktoś wykorzystuje Twoje dzieło chronione prawem autorskim bez Twojej zgody, możesz postępować zgodnie z procedurą opisaną tutaj https://pl.player.fm/legal.

State Secrets: Inside The Making Of The Electric State

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Family Secrets: Chris Pratt & Millie Bobby Brown Share Stories From Set 22:08

10 dni temu22:08

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22:08

Host Francesca Amiker sits down with directors Joe and Anthony Russo, producer Angela Russo-Otstot, stars Millie Bobby Brown and Chris Pratt, and more to uncover how family was the key to building the emotional core of The Electric State . From the Russos’ own experiences growing up in a large Italian family to the film’s central relationship between Michelle and her robot brother Kid Cosmo, family relationships both on and off of the set were the key to bringing The Electric State to life. Listen to more from Netflix Podcasts . State Secrets: Inside the Making of The Electric State is produced by Netflix and Treefort Media.…

Two Rare Mama Bears

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Two Rare Mama Bears, a Cure CMD Podcast - where we discuss all things Congenital Muscular Dystrophy and Rare Disease...All subtypes, ages, abilities and topics with the intent to connect the CMD community. This podcast is about bringing together affected individuals, their family, researchers, clinicians, industry, and policy-makers to have conversations with the goal of moving the needle on the mission of Cure CMD. Hosts: Megan Meyer and Matty Manley.

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#Fitness #Cure CMD (Matty Manley #Megan Meyer #Mama Bear #Rare Mama Bears

Two Rare Mama Bears

updated 5 lat temu

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Źródło serii•Feed

4 odcinki

#Fitness #Cure CMD (Matty Manley #Megan Meyer #Mama Bear #Rare Mama Bears

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Two Rare Mama Bears

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054 - Giving Tuesday Now 32:11

5 years temu32:11

32:11

Just like November's #GivingTuesday, #GivingTuesdayNow is not exclusively a fundraising day. It's an opportunity for people around the world -- including the Cure CMD community -- to stand together for the causes they believe in. Especially now, we must stay connected! In this episode, we are joined by CMD community member, Mark Beare, who talks about standing together via fundraisers to support our mission. Mark talks about his own experiences fundraising shortly after Bella, his adorable daughter, was diagnosed with LAMA2 CMD. #beareitforbella #CureCMD Find Two Rare Mama Bears on Facebook, Instagram & Twitter: 2raremamabears…

Two Rare Mama Bears

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053 - STABLE Accounts and COVID-19 stimulus checks 25:59

5 years temu25:59

25:59

ABLE Accounts give people with disabilities more independence and financial security by providing tax-free savings plan for disability-related expenses without losing needs-based benefits. We are joined by Nick Hancart, Public Affairs Manager for STABLE for Ohio Treasurer of State. Nick shares with us how individuals can seek out their own state’s ABLE Account, or utilize Ohio’s STABLE Account, which has nationwide enrollment available. Nick also tells us how individuals can utilize their COVID-19 stimulus check into an ABLE/STABLE Account and not have it affect their needs-based financial aid. #STABLEAccount Find more information at www.stableaccount.com Find Two Rare Mama Bears on Facebook, Instagram & Twitter: 2raremamabears…

Two Rare Mama Bears

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052 - I Stay Home For Rare 27:37

5 years temu27:37

27:37

Are you living with a rare disease or a parent/caregiver to someone who is? I Stay Home For Rare™ is a campaign and fund for those standing with us in this cause. Levi Gershkowitz joins us to share how through this new platform, together we are raising awareness and funds to help people in this time of heightened need. We stay home in solidarity with those protecting the lives of children, family members, and friends living with rare diseases during the COVID-19 pandemic. I Stay Home For Rare has funding to give grants to those in need during COVID-19. Apply and let them know your story and your needs https://www.istayhomeforrare.org/apply #istayhomeforrare #StoryAsMedicine Find Two Rare Mama Bears on Facebook, Instagram & Twitter: 2raremamabears…

Two Rare Mama Bears

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051 - Only the vulnerable will be at risk, your "only" is my everything 31:19

5 years temu31:19

31:19

Matty & Megan do a check-in episode after the first week of COVID-19 quarantine at home…. Including a comparison to how this experience is similar to winter for medical complex families, a discussion how we’re handling all the things, and tips for maintaining sanity and caring for mental health while also attempting to safeguard our families’ physical health. During a time we’ve all heard the news say only the vulnerable will be at risk during this pandemic, we take time for a realization that “only” is everything for some families…. Find Two Rare Mama Bears on Facebook, Instagram & Twitter: 2raremamabears…

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