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Fabry International Network: Connecting Patients and Advocates Worldwide
Manage episode 380868489 series 3510439
Treść dostarczona przez Story Ninety-Four and OVID Health. Cała zawartość podcastów, w tym odcinki, grafika i opisy podcastów, jest przesyłana i udostępniana bezpośrednio przez Story Ninety-Four and OVID Health lub jego partnera na platformie podcastów. Jeśli uważasz, że ktoś wykorzystuje Twoje dzieło chronione prawem autorskim bez Twojej zgody, możesz postępować zgodnie z procedurą opisaną tutaj https://pl.player.fm/legal.
In this episode of OVIDcast, Rachel Gonzaga, Head of Patient Partnerships at OVID Health, interviews Mary Pavlou, President of the Fabry International Network as they discuss the organisation's accomplishments and the importance of transparent partnerships with the pharmaceutical industry.
The Fabry International Network aims to raise awareness about Fabry disease, provide a platform for doctors and patient representatives to exchange experiences and best practices, and support the global Fabry community.
(0:50) Living with Fabry Disease
(2:46) Fabry International Network
(5:40) Acquiring funding for neglected needs
About the guest:
Mary Pavlou is the President and Head of Patient Partnerships at Fabry International Network. She is a trained nurse and Fabry disease patient herself.
Fabry International Network is an independent and vibrant network of Fabry patient associations whose purpose is to collaborate, communicate and promote best practice to support those affected by Fabry disease, connecting health professionals and allying with industry partners, with the mission to empower Fabry patients all over the world.
Find out more about the Fabry International Network
OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.
Find out more about OVID Health
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