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49 | More money invested into Rett syndrome research, Girl Power 2 Cure's Kevin Pierce talks Rett, and more!
Manage episode 346989675 series 2978511
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For our top three this week we talk about some incredible updates that have come to Rett research as well as our recap of Rett Syndrome Awareness month. If you would like to look at the articles for this week's top three you can find them here:
Taysha Gene Therapies receives a $50 million investment from Astellas
Report from the Externally-Led Patient-Focused Drug Development Meeting
On this week’s episode we sat down with Kevin Pierce the Chief Operating Officer for Girl Power 2 Cure. Kevin shares with us how he got started with the organization and how the organization itself has grown since it’s inception. As a grandparent of an individual with Rett he brings understanding and personal passion to his position. We learned not only about Girl Power 2 Cure but also about their connection to Rett University and how the organizations support one another.
If you would like to learn more about Girl Power 2 Cure you can find them on their website, www.gp2c.org or on Facebook and Instagram.
If you would like to learn more about the services offered by Rett University you can find them at their website, www.rettuniversity.org or on Facebook and Instagram.
If you are a newly diagnosed family, you can find loads of information regarding Rett Syndrome on our website (linked below), including links to various foundations and support groups worldwide. And, of course, feel free to reach out to us; we love connecting with new families!
Subscribe today so that you never miss an episode. And we'll see you next time!
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