Najlepsze podcasty z kategorii: Michael Benton (2024)

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Wes Michael: Dedicated to Amplifying the Rare Patient Voice 44:05

15d ago44:05

44:05

We often hear the stories of patients and caregivers. Rare Patient Voice is well known for connecting family's stories with the researchers who need to hear them. The founder, Wes Michael, sat down with us to share the results of a caregiver survey they conducted in late 2023. The findings were interesting and affirmed much of what parents raising …

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Optogenetics for Vision Restoration with Ray Therapeutics' Paul Bresge 22:00

15d ago22:00

22:00

We love to hear from our listeners. Send us a message. Ray Therapeutics' Co-Founder and CEO, Paul Bresge, joins Host Erin Harris to talk about optogenetics and how the company’s optogenetics approach differs from other gene therapies on the market developed to restore vision in retinal diseases like retinitis pigmentosa.…

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A New Approach to Genome Engineering with Tessera Therapeutics' Dr. Michael Severino 28:06

28d ago28:06

28:06

We love to hear from our listeners. Send us a message. Tessera Therapeutics' CEO, Dr. Michael Severino, joins Host Erin Harris to discuss Gene Writing, the biotech's genome engineering technology that writes therapeutic messages into the genome to treat diseases at their source. Severino discusses why delivery has always been a challenge for gene e…

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Coming Together for a Cure - Blake Benton Part 2 24:00

29d ago24:00

24:00

In Part 1, we heard about the bold and courageous approach that Ryan Benton's family took to treat his Duchenne Muscular Dystrophy. After seeing the success of the stem cell therapy, Blake and Ryan Benton felt very deeply that they needed to inform and educate others about this approach. From the grass roots of a local rock concert grew Coming Toge…

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Scaling Allo with Allogene Therapeutics' Dr. Zachary Roberts 25:13

1M ago25:13

25:13

We love to hear from our listeners. Send us a message. Allogene Therapeutics' EVP of R&D and CMO, Dr. Zachary Roberts, penned an original article for Cell & Gene titled, The Path Forward for CLL is Allogeneic. In his article, Dr. Roberts explains that chronic lymphocytic leukemia (CLL) is the most common leukemia in the U.S. And that while CLL rema…

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A Bold and Courageous Approach - Coming Together For A Cure 29:03

1M ago29:03

29:03

Blake Benton’s earliest memories were his brother declining due to Duchenne Muscular Dystrophy. About 10 years later, his parents and brother made a bold move. They went to Costa Rica to get an experimental stem cell therapy. And it worked. Ryan was able to live until he was 37 years old with little degeneration caused by his DMD. He died in 2023 o…

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Tis' The Season! 29:11

2M ago29:11

29:11

In this episode, I'll dive into the essence of summer, a season that symbolizes growth, abundance, and the fruits of hard work. As the days stretch longer and the sun shines brighter, we explore how this vibrant time of year mirrors our own personal and professional journeys. Just as plants flourish under the summer sun, we, too, experience growth …

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CGT Regulatory Update and Outlook with Dark Horse Consulting's Kimberly Benton, Ph.D. 27:58

2M ago27:58

27:58

We love to hear from our listeners. Send us a message. Applications (BLAs) of recent approvals and complete responses for novel products or rare diseases as well as BLAs currently under review. Benton shares information about FDA Draft Gudiances, including Platform Technology Designation Program for Drug Development: Guidance for Industry. She also…

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Find Your Real Friends in Your Rare Disease Community 44:30

2M ago44:30

44:30

Type 1 Diabetes (T1D) is not considered a rare disease according to the numbers. The T1D community is quite large and includes people of all ages, races, geography, and conditions. However, many of our guests use the technology developed for T1D patients. In fact, Brittany’s daughter Everleigh relies on the Dexcom G7 to manage her glucose levels. I…

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Identifying Drug Development Opportunities for DMD with CureDuchenne 29:55

2M ago29:55

29:55

We love to hear from our listeners. Send us a message. Debra Miller, CEO and Founder and Dr. Michael Kelly, Chief Scientific Officer at CureDuchenne talk to Host Erin Harris about the FDA approval for the expansion to the label indication for ELEVIDYS from Sarepta Therapeutics as well as how CureDuchenne works with various biotechs developing gene …

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This Is Who These Rare Kiddos Are 33:48

3M ago33:48

33:48

Beyond the Diagnosis is more than a traveling art exhibit. It is a movement to humanize the children who happen to have a rare disease. So much of the work around rare diseases is logical, scientific, and medical. It can be a world without feeling. Using art and artists to introduce and celebrate these children is much more personal and evocative. …

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Diving Timing: Trusting The Process 43:09

3M ago43:09

43:09

In this episode, we explore the concept of divine timing and how embracing it can transform your life. We'll discuss the importance of trusting the process, letting go of the need for control, and understanding that everything happens for a reason. Join me as I share my personal expereinces with it and practical tips on how to cultivate patience an…

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Tackling "The Delivery Problem" of Gene Editing-Based Medicines with Mammoth Biosciences' Lucas Harrington 21:01

3M ago21:01

21:01

We love to hear from our listeners. Send us a message. Lucas Harrington, Co-Founder and Chief Scientific Officer of Mammoth Biosciences, joins Erin Harris to shed light on the biotech's proprietary ultracompact CRISPR systems to develop potential long-term curative therapies for patients with life-threatening and debilitating diseases. They discuss…

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What have we learned in the last 6 months? 36:35

3M ago36:35

36:35

We discuss the joys, challenges, and surprises of raising a child with a rare disease every episode. In this conversation, we reflect on what each of us has learned through these discussions, through life “outside the podcast,” and through other people we have met along the way. Without any set plan we wander through resilience, learning not to rea…

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The Power of Being Less Accessible! 26:48

3M ago26:48

26:48

In this insightful episode, we explore the importance of setting boundaries and being less accessible in relationships. Learn how to protect your time, energy, and emotional well-being by establishing clear limits. We'll discuss the signs of over-availability, the benefits of creating healthy distance, and how to put you first. Join me to discover …

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TILs for the Treatment of Solid Tumors with KSQ Therapeutics' Micah Benson, Ph.D. 35:30

3M ago35:30

35:30

We love to hear from our listeners. Send us a message. KSQ Therapeutics' CSO, Micah Benson, Ph.D., joins Erin Harris to discuss how Tumor-Infiltrating Lymphocytes (TILs) as a treatment modality have the potential to treat a variety of solid tumor types. Benson explains KSQ's Phase 1/2 clinical study, KSQ-001EX, which consists of TILs in which the S…

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Morning Mindset: Preparing for Life's Daily Battles 27:13

4M ago27:13

27:13

In this empowering episode of "Morning Mindset," we delve into the transformative power of a mental morning routine. Let's explore why the first moments of your day are crucial for setting the tone for everything that follows. Learn practical tips to cultivate a mindset that prepares you for life's daily battles. From my very own mindfulness practi…

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Myles Was Here To Teach Us 31:39

4M ago31:39

31:39

Losing a child is heartbreaking. Ashley Genelin lost her son Myles when he was just 3 years old. He was diagnosed with cardiofasciocutaneous syndrome or CFC. They did their best to keep him at home as long as possible, even when caring for Myles was like running an ICU. Make-A-Wish allowed them to take this mini-ICU on the road so that Myles could …

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Synthetic Biology and Programmable mRNA with Strand Therapeutics' Jake Becraft 27:52

4M ago27:52

27:52

We love to hear from our listeners. Send us a message. Strand Therapeutics' CEO and Co-Founder Jake Becraft joins Erin Harris to discuss genetic regulation and how the company's programmable mRNA constructs combine genes for self-replication derived from RNA viruses with genetically programmed logic circuits that control the location, timing, and i…

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Developing an mRNA Therapy for DMD with Elixirgen Therapeutics' Aki Ko 14:52

4M ago14:52

14:52

We love to hear from our listeners. Send us a message. Elixirgen Therapeutics' Aki Ko joins Erin Harris to detail the company's Bobcat mRNA therapeutic and how it differs from traditional exon-skipping drugs and AAV-microdystrophin in treating DMD. Regarding delivery, Ko explains the advantage of the mRNA approach over the AAV approach.…

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One Day You Will be on the Other Side 29:39

4M ago29:39

29:39

On this episode we talk to Michelle Fruhschien a mom of two, Noah and Hailey(Jordan Syndrome). The moment she was born, Michelle says she knew it in her bones that something was different about her daughter even though she didn’t start seeing symptoms for another two months. Over the next few months, Michelle spent a lot of her time googling, askin…

1
Are You Listening 37:42

4M ago37:42

37:42

In this episode, we explore the subtle messages that guide us toward what truly deserves our attention. From intuitive nudges to insightful conversations, life often sends us signals pointing us in the right direction. But are we listening? We'll discuss the importance of tuning in to these guiding messages and recognizing the cues that can lead us…

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The Current State of the Global Regulatory Landscape with ISCT's Dr. Bambi Grilley 25:21

5M ago25:21

25:21

We love to hear from our listeners. Send us a message. Dr. Bambi Grilley is Professor of Pediatrics and the Director of Clinical Research and Early Product Development for the Center of Cell and Gene Therapy (CAGT) at Baylor College of Medicine AND she is Chief Regulatory Officer at ISCT. Dr. Grilley talks to us about her role as CRO at ISCT and th…

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4 Barriers to Your Success 39:15

5M ago39:15

39:15

In this episode, I will break down the key obstacles that can derail your path to success. We will identify and explore five critical barriers: lack of a process, distractions, resistance, and instant gratification. I'll break down how each barrier manifests in our daily lives and provide practical strategies to overcome them. Whether you're strivi…

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Dr. Bruce Levine on ISCT and the Future of CAR-T 31:49

5M ago31:49

31:49

We love to hear from our listeners. Send us a message. In anticipation of ISCT 2024 in Vancouver, Canada, Dr. Bruce Levine is back on Cell & Gene: The Podcast to share information about the event as well as his expertise on the future of CAR-T therapy for solid tumors, autoimmune disease, and more. He talks about his time and learnings as President…

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Growing Amongst Adversity 23:56

5M ago23:56

23:56

In this episode, we're going to touch on resilience and personal growth as we explore the theme of facing adversity. Life's challenges can be tough, but they also offer unique opportunities for growth and self-discovery. I will share my story of how I'm confronting adversity head-on and emerged stronger and wiser. Discover how adversity can serve a…

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CGTs for HIV Suppression with Addimmune's Dr. Marcus Conant 18:51

5M ago18:51

18:51

We love to hear from our listeners. Send us a message. Dr. Marcus Conant is CMO at Addimmune, a biotech startup developing a cell therapy for HIV that spun out of cell and gene therapy biotech American Gene Technologies (AGT). He spent his career on the front lines of HIV treatment and research and remains an advocate for the HIV patient. He formed…

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Finding Purpose in All of It 48:50

5M ago48:50

48:50

“We have a heartbeat, right?” Josh and Kristin Hoyle knew that life with their new daughter Chloe was going to be different and likely difficult long before she was born. Even in this knowledge, they believed there was a purpose for what they were about to experience. And they leaned into the challenge. Chloe has Bohring-Opitz syndrome and requires…

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Inside BlueRock Therapeutics' Parkinson's Disease Trial with Dr. Ahmed Enayetallah 29:39

6M ago29:39

29:39

We love to hear from our listeners. Send us a message. BlueRock Therapeutics' SVP Head of Development, Dr. Ahmed Enayetallah, joins Cell & Gene: The Podcast Host, Erin Harris, to discuss the company's phase I clinical trial for Parkinson’s disease, which continues to show positive trends at 18 months. They cover the important role induced pluripote…

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Navigating the Alignment in 2024 17:32

6M ago17:32

17:32

In this episode, Join me as we uncover the subtle connections guiding your journey and revealing the hidden patterns that have been quietly at work behind the scenes. From chance encounters to unexpected opportunities, discover how the universe conspires to bring about moments of clarity, growth, and transformation. Through personal anecdotes and r…

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We all handle life (and our diagnoses) differently 39:23

6M ago39:23

39:23

On this episode of Raising Rare we talk with Stacy Lloyd, a rare disease patient and board certified patient advocate. Stacy has dedicated her life, even much of her free time to healthcare in one way or another. She currently works at the American Medical Association, previously at Saavy Co-op, and is on the board of the VHL Alliance. After being …

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Reducing the Disease Burden of AML with Vor Bio's Dr. Robert Ang 23:08

6M ago23:08

23:08

We love to hear from our listeners. Send us a message. In 2021 on Episode 13, Vor Bio’s President and CEO, Dr. Robert Ang shared data about the company’s lead engineered hematopoietic cell (eHSC) product candidate. Dr. Ang is back to talk to Cell & Gene: The Podcast Host, Erin Harris, about how Vor has treated 8 patients demonstrating clinical proo…

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Lacking a Path 41:05

6M ago41:05

41:05

In this episode, I discuss what it's like to know what you want in life but unsure as to how you're going to obtain it. I break down three reasons that I believe led me to feel this way and what I believe the answer is to stop feeling like this. I believe everyone's path is different and it's up to each individual to navigate their way towards the …

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What Makes a Healthy Relationship 33:08

6M ago33:08

33:08

In this episode, I delve into the intricacies of what truly makes a relationship thrive. Join me as I explore the key ingredients that contribute to a healthy and fulfilling connection between partners. From effective communication and mutual respect to trust and support, we uncover the fundamental aspects that lay the foundation for a strong and e…

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Reducing Toxicities in Allogeneic Cell Therapies with Orca Bio's Dr. Scott McClellan 19:37

7M ago19:37

19:37

We love to hear from our listeners. Send us a message. Orca Bio's CMO, Dr. Scott McClellan, joins Erin Harris on this episode of Cell & Gene: The Podcast to discuss how and why toxicities continue to stymie allogeneic cell therapies. They cover Orca Bio's plan to potentially lowering the risk of GvHD as well as Orca-T, the investigational high-prec…

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They won’t be children forever: the transition from pediatric to adult care 38:05

7M ago38:05

38:05

As Raising Rare continues to grow and evolve we are going to start bring in professionals that have beneficial stories for Rare Parents. These are individuals who have dedicated their lives to helping families in one aspect or another as they care for their children. Their viewpoints, stories, and perspectives are uniquely beneficial to parents tha…

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Getting Familiar with Discomfort 23:34

7M ago23:34

23:34

"Comfortability brings you brief emotional peace but creates long-term mental paralysis."- Michael Benton When your growth feels stagnant and suffocating, a fresh air of uncertainty brings life back into the fight. For so long, I'd gotten accustomed to the feeling of being comfortable in life, and because of this, I've stunted my growth in life, an…

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Creating Connections in a Fragmented Landscape 44:29

7M ago44:29

44:29

On this episode of Raising Rare we talk with Megan Nolan, a rare mama working to make a difference for other Rare Families. Megan has launched the online magazine Rareparenting.com in an effort to provide rare families with resources that may be beneficial to them. Like so many other rare families, Megan has experienced the trials and tribulations …

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Inside Cellular Rejuvenation Therapies for Age-Related Diseases with Life Biosciences' Sharon Rosenzweig-Lipson, Ph.D. 17:17

7M ago17:17

17:17

We love to hear from our listeners. Send us a message. On this episode of Cell & Gene: The Podcast, Host Erin Harris talks to Life Biosciences' CSO, Sharon Rosenzweig-Lipson, Ph.D., about the Boston-based biotech's cellular rejuvenation therapies for the treatment of age-related diseases. They cover Life Biosciences' lead program, a gene therapy ca…

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Controlling vs Allowing 18:30

7M ago18:30

18:30

Have you ever found yourself trying to control the outcome of something you want or are a part of? Do you ever find yourself giving up all the control and allowing forces outside yourself to give you what you want and need? In this episode, I share my thoughts about the concept of controlling vs allowing. I share my circumstances that are currently…

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The Future of Rare Diseases with The Jackson Laboratory’s Rare Disease Translational Center's Cat Lutz 27:31

7M ago27:31

27:31

We love to hear from our listeners. Send us a message. Rare Disease Day is February 29, 2024, and in honor of this important day, Cell & Gene: The Podcast Host Erin Harris sits down with Jackson Laboratory’s (JAX) Rare Disease Translational Center (RDTC)'s VP, Cat Lutz. They discuss RDTC's mission, the specific qualifications that make up a rare di…

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Revisiting Moments 37:19

8M ago37:19

37:19

This episode we are joined by Aisling Finn, an amazing poet and rare disease mama. As she shares her poetry with us, we react to the emotions, struggles, key moments and pain that are so clearly pictured in her words. Aisling shares with us the impact that writing poetry has had on her, and her expression of her feelings, and how they have helped h…

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Other end of the tunnel: True reality of hope is effort 39:02

8M ago39:02

39:02

On this episode in our Other End of the Tunnel Series we are joined by Mark Dant. When their son was just three years old, Mark and his wife were told that their son would pass within the decade after his diagnosis of MPS 1 and the lack of treatments available. As they laid on his floor listening to him breathe on the night of his diagnosis, they b…

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Inside Yescarta's Reduced Median Turnaround Time with Kite, a Gilead company's Christopher McDonald 20:48

8M ago20:48

20:48

We love to hear from our listeners. Send us a message. On this episode of Cell & Gene: The Podcast, Christopher McDonald, Global Head of Technical Operations at Kite, a Gilead company, talks to Host Erin Harris about Kite's recent FDA approval of manufacturing process change resulting in reduced median turnaround time for Yescarta. They talk throug…

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Pricing, Value, And Access of CGTs With The Dedham Group's Jennifer Klarer, M.Sc.Eng. 37:17

8M ago37:17

37:17

We love to hear from our listeners. Send us a message. The Dedham Group's Jennifer Klarer, M.Sc.Eng., Partner and Head of Cell & Gene Therapy, joins Erin Harris on this episode of Cell & Gene: The Podcast for a deep dive into pricing and value for CGTs. Klarer shares a detailed breakdown of the most misunderstood aspects of cell and gene therapy pr…

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A new year, a new season. Glad to be back! 30:53

8M ago30:53

30:53

Welcome back! We can’t believe we are already on our fifth season of Raising Rare. So much has happened since we started this podcast and we hope to keep evolving, growing, and bringing remarkable stories and individuals to all of our listeners. What words would you use to describe your hopes for the coming year (or coming season of Raising Rare)? …

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Lessons I Learned in 2023 & What I will Be Implementing in 2024 21:30

9M ago21:30

21:30

Did you do what you intended to do in 2023? 2023 was a year in which I experienced so much growth financially, spiritually, and personally that it felt unreal looking back at it. That said, I also came face-to-face with several lessons that stood out to me, and I wanted to share them with you. In this video, I also wanted to share a few things I re…

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Breaking Down Solid Tumors with Triumvira Immunologics' Dr. Paul Lammers 21:33

9M ago21:33

21:33

We love to hear from our listeners. Send us a message. Paul Lammers, M.D., M.Sc., CEO of Triumvira Immunologics joins Cell & Gene: The Podcast to talk to Host Erin Harris about TAC, the company's proprietary T cell Antigen Coupler, which has both autologous and allogeneic approaches. They also discuss targeting relapsed or refractory HER2-positive …

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4 Keys to Allo in 2024 with Poseida Therapeutics' Kristin Yarema, Ph.D. 31:59

9M ago31:59

31:59

We love to hear from our listeners. Send us a message. Kristin Yarema, Ph.D., CEO, Poseida Therapeutics sits down with Cell & Gene: The Podcast Host Erin Harris to discuss four of the biggest challenges the CGT sector faces when it comes to the development of off-the-shelf therapies. Kristin shares how 2024 might see some real progress in allogenei…

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The Final Audio-Only Episode: Follow Us on YouTube 2:23:04

9M ago2:23:04

2:23:04

Y'all, it's been a ride. But we're done with the audio version of the show. And with hour-long movie reviews. We've found our calling: five minute movie parodies on YouTube. We want to thank everyone who listened for all these years. It means a LOT to us. We won't forget it. Especially the hundreds of thousands who've listened to our Rocky miniseri…

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