Part 2, Dr. Alique Topalian, PhD: Legislative and Academic Warrior for All Cancer Survivors, Pediatric and AYA Cancer Survivor and Thriver

Everything Cancer

Episode Description:

In the second part of our interview with Dr. Alique Topalian, PhD in Health Promotion Education, we continue to explore her remarkable journey as both a pediatric and young adult cancer survivor. Dr. Topalian delves deeper into her advocacy work, fighting for legislative changes to support all cancer survivors. Dr. Topalian is a relentless advocate, from working to have insurance coverage for biomarker testing to pushing for transparency in copay assistance programs.
Tune in for an insightful discussion on the complexities of cancer treatment and the unique challenges faced by the adolescent and young adult (AYA) cancer community.

Key Topics:

The financial challenges of cancer treatment, including the impact of high drug costs and the limitations of copay assistance.

House Bill 177 and its significance for cancer patients.

The importance of self-advocacy and understanding one's own medical needs.

The unique needs and challenges of the adolescent and young adult cancer survivor community.

Strategies for effective self-advocacy and navigating the healthcare system.

Highlights:

[00:00] Introduction: Overview of Dr. Topalian's journey and advocacy work.

[00:48] House Bill 177: Discussion on the copay accumulator bill and its implications for cancer patients.

[02:38] Copay Assistance Programs: The challenges and limitations of these programs, including personal anecdotes from Dr. Topalian.

[04:35] Advocacy Efforts: Dr. Topalian's work to ensure copay assistance counts towards deductibles and out-of-pocket maximums.

[12:11] AYA Cancer Advocacy: The specific needs of adolescent and young adult cancer survivors and Dr. Topalian's efforts in this area.

[16:14] Personal Challenges: Dr. Topalian's experiences with healthcare navigation, disability, and maintaining a career during treatment.

[20:33] Self-Advocacy Tips: Importance of knowing your body, recording symptoms, preparing questions, and having support during medical appointments.

[24:17] Provider Relationships: The importance of finding the right healthcare provider who listens and advocates for you.

Dr. Topalian’s LinkedIn LinkedIn.com/in/alique-topali

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