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Ep. 121: Protecting Genetic Data Privacy - Barry Weber (CISO & DPO of Global Genes)
Manage episode 460409442 series 2310913
Treść dostarczona przez Health Unchained Podcast. Cała zawartość podcastów, w tym odcinki, grafika i opisy podcastów, jest przesyłana i udostępniana bezpośrednio przez Health Unchained Podcast lub jego partnera na platformie podcastów. Jeśli uważasz, że ktoś wykorzystuje Twoje dzieło chronione prawem autorskim bez Twojej zgody, możesz postępować zgodnie z procedurą opisaną tutaj https://pl.player.fm/legal.
Summary
Barry Weber, the Chief Information Security Officer and Data Protection Officer at Global Genes brings decades of expertise in data compliance and cybersecurity.
The discussion centers on the importance of data privacy, the challenges of protecting sensitive health information, and the complexity of compliance with various privacy laws like GDPR, HIPAA, CCPA/CPRA, and state-specific regulations. Barry shares his experiences working across multiple industries, including his role in healthcare research focused on rare diseases. The conversation also explores the future of genetic data, the potential of blockchain technology in healthcare, and the evolving landscape of cybersecurity threats and AI's impact. Barry emphasizes the need for data minimization, careful management of identifiable information, and the importance of educating individuals about data protection.
His leadership has been pivotal in implementing a comprehensive privacy and data security program that both aligns with IRB oversight and multinational privacy laws. Their team's approach, rooted in GDPR with extensions for US privacy laws, has been crucial in addressing the unique challenges faced by non-profits focused on rare diseases. Their governance model successfully integrates the nuanced requirements of legislation like WA MHMD and Nevada SB 370, setting a new standard in data protection and privacy.
Timestamps
00:00 Introduction and Welcome
01:02 Meet Barry Weber: Data Privacy Expert
03:05 The Importance of Data Privacy
04:36 Privacy Frameworks and Compliance
07:57 Genetic Information and Privacy Laws
15:29 Global Genes and Rare Disease Research
21:46 Challenges in Data Protection and Sharing
33:49 The Role of AI and Blockchain in Cybersecurity
38:32 Personal Data Privacy Tips and Final Thoughts
Guest Links
Mentioned resources
Health Unchained Links
122 odcinków
Udostępnij
Manage episode 460409442 series 2310913
Treść dostarczona przez Health Unchained Podcast. Cała zawartość podcastów, w tym odcinki, grafika i opisy podcastów, jest przesyłana i udostępniana bezpośrednio przez Health Unchained Podcast lub jego partnera na platformie podcastów. Jeśli uważasz, że ktoś wykorzystuje Twoje dzieło chronione prawem autorskim bez Twojej zgody, możesz postępować zgodnie z procedurą opisaną tutaj https://pl.player.fm/legal.
Summary
Barry Weber, the Chief Information Security Officer and Data Protection Officer at Global Genes brings decades of expertise in data compliance and cybersecurity.
The discussion centers on the importance of data privacy, the challenges of protecting sensitive health information, and the complexity of compliance with various privacy laws like GDPR, HIPAA, CCPA/CPRA, and state-specific regulations. Barry shares his experiences working across multiple industries, including his role in healthcare research focused on rare diseases. The conversation also explores the future of genetic data, the potential of blockchain technology in healthcare, and the evolving landscape of cybersecurity threats and AI's impact. Barry emphasizes the need for data minimization, careful management of identifiable information, and the importance of educating individuals about data protection.
His leadership has been pivotal in implementing a comprehensive privacy and data security program that both aligns with IRB oversight and multinational privacy laws. Their team's approach, rooted in GDPR with extensions for US privacy laws, has been crucial in addressing the unique challenges faced by non-profits focused on rare diseases. Their governance model successfully integrates the nuanced requirements of legislation like WA MHMD and Nevada SB 370, setting a new standard in data protection and privacy.
Timestamps
00:00 Introduction and Welcome
01:02 Meet Barry Weber: Data Privacy Expert
03:05 The Importance of Data Privacy
04:36 Privacy Frameworks and Compliance
07:57 Genetic Information and Privacy Laws
15:29 Global Genes and Rare Disease Research
21:46 Challenges in Data Protection and Sharing
33:49 The Role of AI and Blockchain in Cybersecurity
38:32 Personal Data Privacy Tips and Final Thoughts
Guest Links
Mentioned resources
Health Unchained Links
122 odcinków
Wszystkie odcinki
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Podobny do Health Unchained Podcast
Africa-focused technology, digital and innovation ecosystem insight and commentary.
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continue reading
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continue reading
Welcome to the Security Weekly Podcast Network, your all-in-one source for the latest in cybersecurity! This feed features a diverse lineup of shows, including Application Security Weekly, Business Security Weekly, Paul's Security Weekly, Enterprise Security Weekly, and Security Weekly News. Whether you're a cybersecurity professional, business leader, or tech enthusiast, we cover all angles of the cybersecurity landscape. Tune in for in-depth panel discussions, expert guest interviews, and ...
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Material is a weekly discussion about the Google and Android universe. Your intrepid hosts try to answer the question, “What holds up the digital world?” The answer, so far, is that it’s Google all the way down. Hosted by Andy Ihnatko and Florence Ion.
…
continue reading
Every Friday and Sunday, Slate’s popular daily news podcast What Next brings you TBD, a clear-eyed look into the future. From fake news to fake meat, algorithms to augmented reality, Lizzie O’Leary is your guide to the tech industry and the world it’s creating for us to live in.
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continue reading
From smart phones to smart homes, the Android Police Podcast gives you exactly what you need from a tech podcast - no more, no less. Every week, each of our hosts curate topics to talk about. It could be tracking through your newsfeed or a passion project or two. We're centered on Android, but go far and wide, so if you're looking for good talk that won't waste your time, listen and subscribe.
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TechStuff is getting a system update. Everything you love about Tech Stuff now twice the bandwidth with new hosts, Oz Woloshyn (Sleepwalkers) and Karah Preiss (Sleepwalkers). Oz and Karah bring humour and wit to the table as they break down what's happening in tech...and what it says about us. TechStuff is the podcast where technology meets culture. We speak to the folks building the future to understand what tomorrow will look like and how our technology is changing us: how we live, how we ...
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Player FM - aplikacja do podcastów
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