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44 | Updates in the world of Rett, Our car & such, and more!
Manage episode 339347500 series 2978511
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The world of Rett is constantly changing and evolving. On this week's episode we share a couple of those research studies to help get you up to date on what's happening with Rett. If you would loke to learn more about any of the studies we referenced, we've attached the links below.
Also on this week's episode we share about our van and Zoey's adaptive seat. It wasn't an easy decision to make and one that we had been putting off for a while, but we finally did it. We've now had our car almost a year and we want to share with you the pros, cons, and quirks about our Chrysler Pacifica and the Turny Evo Seat we had installed for Zoey. It makes her life and our a little easier.
Older Age, Muscle Stiffness Tied to Worse Scoliosis in Rett Syndrome - https://rettsyndromenews.com/news/older-age-muscle-stiffness-tied-worse-scoliosis-rett-syndrome/
Clinical and genetic correlations of scoliosis in Rett syndrome - https://link.springer.com/article/10.1007/s00586-022-07217-8
Intensive Anti-Scoliosis Postural Intervention for Individuals With Rett Syndrome Supported by a Smartphone Application - https://clinicaltrials.gov/ct2/show/NCT05488938
Muscarinic Receptor Modulator Shows Promise in Rett Mouse Model - https://rettsyndromenews.com/news/muscarinic-receptor-modulator-shows-promise-rett-mouse-model/
Clinical and Preclinical Evidence for M1 Muscarinic Acetylcholine Receptor Potentiation as a Therapeutic Approach for Rett Syndrome - https://link.springer.com/article/10.1007/s13311-022-01254-3
If you are a newly diagnosed family, you can find loads of information regarding Rett Syndrome on our website (linked below), including links to various foundations and support groups worldwide. And, of course, feel free to reach out to us; we love connecting with new families!
Subscribe today so that you never miss an episode. And we'll see you next time!
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