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45 | Preparing for Rett Syndrome Awareness Month, Discussing effective communication w/ Gerna Scholte (Part 1), and more!
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On this week's top three we share about preparing for Rett Syndrome Awareness Month and the new resource that will be available on September 18th on our website. It will make sharing about Rett on social media a breeze. We also talk about the fact that we now have a new website! There are some great resources currently such as adapted toys and links to the podcast and we will be adding more as time goes. Lastly we chat about some new reasearch related to the causes of Rett symptoms. The link for that article is attached below.
Our main guest this week is the incredible Gerna Scholte. (pronounced Hair-na). Gerna is from the Netherlands but we actually met her at the Ascend 2022 Rett Syndrome National Summit. Gerna specializes in AAC and is extremely passionate about helping individuals be able to communicate and express themselves. If you'd like to get in contact with Gerna you can email her at be.response.able@gmail.com or you can find her on Youtube, Facebook, Instagram and Tik Tok.
High miR-101a Levels May Underlie Processes Leading to Rett Symptoms - https://rettsyndromenews.com/news/elevated-mir-101a-underlie-processes-leading-symptoms-mice/
Mille's Secret World - A life with Rett syndrome - https://www.youtube.com/watch?v=M-_jvs3YMoM
If you are a newly diagnosed family, you can find loads of information regarding Rett Syndrome on our website (linked below), including links to various foundations and support groups worldwide. And, of course, feel free to reach out to us; we love connecting with new families!
Subscribe today so that you never miss an episode. And we'll see you next time!
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