135: An Interview With Taylor Kane, Founder and Executive Director of 'Remember the Girls'

Rare Care Podcast

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State Secrets: Inside The Making Of The Electric State

1
The Secret To Getting Inspired: Millie Bobby Brown & Chris Pratt Go Behind The Scenes 21:04

8 dni temu21:04

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21:04

Step into the mysterious and visually stunning world of The Electric State as host Francesca Amiker takes you behind the scenes with the creative masterminds who brought Simon Stålenhag’s dystopian vision to life. In this premiere episode, directors Joe and Anthony Russo, stars Millie Bobby Brown and Chris Pratt, writers Christopher Markus and Stephen McFeely, and producers Angela Russo-Otstot and Chris Castaldi reveal how they transformed a haunting graphic novel into an epic cinematic experience. Watch The Electric State coming to Netflix on March 14th. Check out more from Netflix Podcasts . State Secrets: Inside the Making of The Electric State is produced by Netflix and Treefort Media.…

rok temu 11:15

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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Taylor Kane, founder and executive director of 'Remember the Girls.' The charity advocates for female carriers of X-linked rare disorders including Duchenne muscular dystrophy and hemophilia.

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#Science #Fitness #Medicine #Rare Care

135: An Interview With Taylor Kane, Founder and Executive Director of 'Remember the Girls'

Rare Care Podcast

published rok temu

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MP3•Źródło odcinka

170 odcinków

#Science #Fitness #Medicine #Rare Care

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Rare Care Podcast

1
161: An Interview With Retired NFL Athlete and Amyloidosis Patient Advocate Art Still 17:03

1 day temu17:03

17:03

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Art Still, former defensive end for the Kansas City Chiefs and an NFL Hall of Famer who's now a patient advocate dedicated to raising awareness about amyloidosis.

Rare Care Podcast

1
160: An Interview With Heather Landau, MD, on the Latest Therapies for Amyloidosis 17:03

9 dni temu17:03

17:03

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews oncologist-hematologist Heather Landau, MD, of Sloan Kettering Memorial Cancer Center in New York City, for National Amyloidosis Awareness Month.

Rare Care Podcast

1
158: An Interview With Hereditary Angioedema Expert Dr. Timothy Craig 14:19

15 dni temu14:19

14:19

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Timothy Craig, DO, a tenured professor of medicine, pediatrics and biomedical sciences at Pennsylvania State University in Hershey. Dr. Craig has been researching hereditary angioedema for 30 years.

Rare Care Podcast

1
158: An Interview With Dr. Sangeetha Venugopal on the relationship between smoking and myelodysplastic syndromes (MDS) 12:08

23 dni temu12:08

12:08

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sangeetha Venugopal, MD, assistant professor of clinical medicine at the University of Miami's Sylvester Comprehensive Cancer Center. Dr. Venugopal speaks on how smoking worsens outcomes for patients with a group of blood cancers known as myelodysplastic syndromes (MDS).…

Rare Care Podcast

1
157: An Interview With Andrea Renzi, a Patient Advocate for Women Affected by HDFN 12:15

4 weeks temu12:15

12:15

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Andrea Renzi, a New Hampshire mother and patient advocate whose family has been affected by hemolytic disease of the fetus and newborn (HDFN).

Rare Care Podcast

1
156: An Interview With Dr. James Bussel on Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT) 13:27

5 weeks temu13:27

13:27

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews James Bussel, MD, emeritus professor of pediatrics, medicine, and obstetrics and gynecology at New York's Weill Cornell Medicine. The topic of their discussion is nipocalimab as a potential treatment for fetal and neonatal alloimmune thrombocytopenia (FNAIT).…

Rare Care Podcast

1
155: An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundation of Southern California 15:24

6 weeks temu15:24

15:24

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rigoberto Garcia, executive director of the Hemophilia Foundation of Southern California, about the difficulty minorities—especially undocumented Hispanics—have in accessing treatment for their bleeding disorders.

Rare Care Podcast

1
154: An Interview With AATD Patient Kristin Hatcher of the Global Liver Institute 13:16

7 weeks temu13:16

13:16

Larry Luxner, senior correspondent for Rare DIsease Advisor, interviews Kristin Hatcher, director of pediatric and rare diseases at the Global Liver Institute. Hatcher has both alpha-1 antitrypsin deficiency (AATD) and Von Willebrand disease, a rare clotting disorder.

Rare Care Podcast

1
153: An Interview With Terry Jo Bichell, PhD, Founder and Director of CombinedBrain 15:31

8 weeks temu15:31

15:31

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Terry Jo Bichell, PhD, founder and director of CombinedBrain, which advocates for patients with 110 neurogenetic diseases. Dr. Bichell is part of a panel that's studying how the US Food and Drug Administration can do a better job of speeding up clinical trials and becoming more transparent about its decisions.…

Rare Care Podcast

1
152: An Interview With Erin Collins, Founder of the Chasing Rainbows Foundation 15:23

10 weeks temu15:23

15:23

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Erin Collins, founder of the Chasing Rainbows Foundation in North Carolina's Outer Banks. The charity raises awareness of HDFN and other rare pregnancy-related diseases.

Rare Care Podcast

1
151: An Interview With NMOSD Expert Dean Wingerchuk, MD, of the Mayo Clinic 10:27

10 weeks temu10:27

10:27

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dean Wingerchuk, MD, speaks on the potential for treating neuromyelitis optica spectrum disorder (NMOSD) with stem-cell therapy.

Rare Care Podcast

1
150: An Interview With Beloved Huntington Disease Activist Jimmy Pollard 12:17

11 weeks temu12:17

12:17

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jimmy Pollard, who for the past 38 years has advocated on behalf of people around the world affected by Huntington disease.

Rare Care Podcast

1
149: An Interview With Clinical Psychologist Rosalind Kalb, PhD, of Can Do-MS 13:55

12 weeks temu13:55

13:55

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews clinical psychologist Rosalind Kalb, lead senior programs consultant for Can-Do MS, a Colorado-based nonprofit health and wellness organization.

Rare Care Podcast

1
148: An Interview With Huntington Disease Patient Activist Tanita Allen 11:16

13 weeks temu11:16

11:16

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Tanita Allen, a Black woman with Huntington disease who has made it her mission to increase awareness about the disorder and its devastating impact on patients regardless of their racial or ethnic background.

Rare Care Podcast

1
147: An Interview With Jean Elwing, MD, a Pulmonary Hypertension Expert at the University of Cincinnati 13:46

15 weeks temu13:46

13:46

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jean Elwing, MD, a professor of medicine and director of the Pulmonary Hypertension Program at Ohio's University of Cincinnati.

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