Ep 197 - Vasculitis Insights: Giant Cell Arteritis (Temporal Arteritis)

Team Vasculitis: Thriving through Life with Chronic Illness

Team Vasculitis: Thriving through Life with Chronic Illness

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Mind The Business: Small Business Success Stories

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Pushing Past Stagnation & Business Plateaus 30:21

2 dni temu30:21

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Polubione

30:21

Hitting plateaus is a common milestone in business, but there’s a difference between stability and a rut. In the last installment of this season, we’ll dive into the ways small business owners push beyond plateaus and find new ways to achieve revenue growth. Jannese and Austin wrap up their time in Nashville, Tennessee with a wonderful visit to N.B. Goods to speak with owner Camille Alston . Camille details the times where she hit a wall with profits, the strategies she implemented to increase revenue, what worked, what didn’t, and the important lessons she learned in the process. You won’t want to miss this informative final chapter! Learn more about how QuickBooks can help you grow your business: QuickBooks.com See omnystudio.com/listener for privacy information.…

2 lata temu 13:41

MP3•Źródło odcinka

A breakdown of what Giant Cell Arteritis (GCA) and what you need to know as a patient as well as insight from patients on life with GCA. Here's what you'll find in this episode: What is Giant Cell Arteritis (GCA)? Who gets Giant Cell Arteritis? What Causes Giant Cell Arteritis? What are the Symptoms of Giant Cell Arteritis? How is Giant Cell Arteritis Diagnosed? How is Giant Cell Arteritis Treated? What are the Complications of Giant Cell Arteritis? Life with Vasculitis Patient to Patient Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Sources:

https://www.mayoclinic.org/diseases-conditions/giant-cell-arteritis/symptoms-causes/syc-20372758

https://www.hopkinsvasculitis.org/types-vasculitis/giant-cell-arteritis/

https://www.arthritis.org/diseases/giant-cell-arteritis

227 odcinków

#Fitness #Medicine #Mental Health #Felicia Distad #Autoimmune #Invisibleillness #Chronicillness #Spoonie #Spooniemom #Vasculitis #Wegeners

Team Vasculitis: Thriving through Life with Chronic Illness

Ep 197 - Vasculitis Insights: Giant Cell Arteritis (Temporal Arteritis)

Team Vasculitis: Thriving through Life with Chronic Illness

published 2 lata temu

Udostępnij

MP3•Źródło odcinka

https://www.mayoclinic.org/diseases-conditions/giant-cell-arteritis/symptoms-causes/syc-20372758

https://www.hopkinsvasculitis.org/types-vasculitis/giant-cell-arteritis/

https://www.arthritis.org/diseases/giant-cell-arteritis

227 odcinków

#Fitness #Medicine #Mental Health #Felicia Distad #Autoimmune #Invisibleillness #Chronicillness #Spoonie #Spooniemom #Vasculitis #Wegeners

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Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 226 - Save Your Emotional Energy for the People Who Matter 18:30

1 year temu18:30

18:30

Are you EXHAUSTED because you're constantly trying to explain yourself... all the time... to everyone? When you have to say no, when you have to reschedule, when you have to limit yourself, when you're not feeling well... and on and on to forever. Today I talk about how to handle this and how to make sure this emotional exhaustion doesn't hurt your closest relationships. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 225 - Gift Ideas for People with Chronic Illnesses 16:31

1 year temu16:31

16:31

It's the most wonderful time of the year... which means all kinds of gift giving is going on. Today I talk about 12 different gifts most people with a chronic illness would absolutely love! I also talk about what NOT to gift and why! Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 224 - Let's Talk about Azathioprine (Imuran) 20:34

1 year temu20:34

20:34

Azathioprine is a common medication for people with chronic illnesses. Over 800,000 people are prescibed it in the US alone. Today I dig into details, what you need to know, and share my own experience as well as several other people's experiences. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 223 - How to Survive the Holiday Season with a Chronic Illness 11:07

1 year temu11:07

11:07

It's the most stressful time of the year! So today I talk about five ways to make sure you not only survive the holiday season, but you can still thrive through it. You deserve to experience a holiday season that lights you up, brings you joy and gives you memories of love and laughter not stress, anxiety, pain and exhaustion. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 222 - How to Show Support for Someone with a Chronic Illness 9:45

1 year temu9:45

9:45

Ever wish your loved ones knew how to show up for you and support you? Well, this is the one for you to send to your loved ones! Today I offer 5 ways that our healthy loved ones can work to show up for us with actionable tips - as well as a few ways that they probably think they're being supportive when it really comes across as telling you you're not doing enough or downplaying what you're going through! So click that share button and send this to anyone who needs to hear it! Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 221 - [Part 7] Raising Kids as a Mom with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 15:35

1 year temu15:35

15:35

Raising kids when you have a potentially fatal auto immune disease is a head trip. It’s an extra kind of difficult emotionally that you can’t imagine until you’re not living it. Today I talk about that journey mentally and emotionally... as well as ways my husband and I intentionally are creating healthy habits that support our daughter's bodies to try and lower the chance that they might develop an autoimmune condition. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 220 - [Part 6] Postpartum with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 19:30

1 year temu19:30

19:30

What happens to a woman's body after she delivers a baby is... a LOT of things. If you have an auto immune condition - or a rare disease - it becomes much more complicated. Today I share my journey postpartum with both of my babies. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 219 - [Part 5] My Pregnancies with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 20:44

2 years temu20:44

20:44

It's not all doom and gloom. It's not all horror stories. Today I share my journey with both of my pregnancies and some of the challenges I faced as well as the victories throughout the process. I also tell you what I whole heartedly believe was the key thing I did to increase my fertility and get pregnant - even with low egg count and other challenges. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 218 - [Part 4] The Challenges of Getting Pregnant with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 23:56

2 years temu23:56

23:56

If you're hoping to or planning getting sick and you or your spouse have Granulomatosis with Polyangiitis... this episode is for you. I dive into challenges you need to be aware of as well as my own personal struggles. I share medication insight, what you'll need to advocate on... and what you need to ignore that the scary clinical medical field will present you with! Here's the study I mention about Pregnancy and Vasculitis: https://pubmed.ncbi.nlm.nih.gov/36192559/ Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 217 - [Part 3] Azathioprine Treatment with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 20:39

2 years temu20:39

20:39

When the "best" treatment that works for the "vast majority" of people with your disease... doesn't work for you. What's next? In today's episode I talk about the treatment that did work, some really tough discussions my husband and I had to have, and the devestation when you start to have a flare even though you're doing EVERYTHING right. Links mentioned in the episode: https://pubmed.ncbi.nlm.nih.gov/19129430/ https://www.drugs.com/sfx/azathioprine-side-effects.html https://us.fertility.com/fertility-facts/fertility-preservation/egg-embryo-freezing Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 216 - [Part 2] Rituximab Treatment Journey with Granulomatosis with Polyangiitis (Wegener's Vasculitis) 17:09

2 years temu17:09

17:09

If you've been diagnosed with any form of ANCA Vasculitis someone has probably talked to you about Rituximab/Rituxin. Today I talk about my process in the first year of being sick and getting three rounds of Rituximab as well as the consequences of being on high doses of prednisone. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 215 - [Part 1] Onset and Diagnosis of ANCA Vasculitis - Granulomatosis with Polyangiitis (formerly Wegener's) 14:09

2 years temu14:09

14:09

When you start having symptoms - but no one puts the pieces together things can go from bad to deadly FAST. That's what happened to me. This is part one of onset and diagnosis of my journey with a potentially fatal rare disease. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 214 - How to Regulate Your Nervous System with a Chronic Illness 3:02

2 years temu3:02

3:02

Dealing with a chronic illness is incredibly difficult on your body. The stress, the unknowns, the changes, the fear, the pain… it all takes a toll on your nervous system. Which then takes an EXTRA toll on your overall well-being and often results in a dysregulated nervous system. The reason this is a problem is that this extra stress can worsen your symptoms, it can lessen the effectiveness of your medication, it can cause new health challenges and more. If you have a dysregulated nervous system, you are less prepared to manage any new things which is a big problem with chronic illness because you are always dealing with new and challenging aspects to your life. This episode goes into 5 Ways to Regulate Your Nervous System in the Moment as well as advice on digging deeper to work through your fight or flight response and truly be in balance. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 213 - The Habits I've Built to Support, Heal and Strengthen my Chronically Ill Body 29:27

2 years temu29:27

29:27

Have you ever made a list of the healthy habits you have built to support your body and to thrive? I recently did this and found myself so proud of how far I have come. Today I talk to you about my process and go into 20+ habits I have built to change my life. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 212 - The Mental Toll of Isolation with Chronic Illness 14:57

2 years temu14:57

14:57

It doesn’t get talked about enough, the isolation. The way everyone drifts away. The way you don’t have the energy to show up and participate. So even though you’re lonely and wish you could be with people, you also need to be left alone. Today we talk about this isolation, the toll it takes on your mental health and four ways to manage it! Be sure and check out Holly! Instagram: https://www.instagram.com/holly.bertone/ Podcast: https://academy.pinkfortitude.com/blog Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 211 - Should I Have Kids After Onset of my Chronic Illness - Pregnancy, Medications, Morals? 30:05

2 years temu30:05

30:05

If you don't already have children before the onset of your disease, it can be an overwhelming prospect. Will you still be able to properly care for a child? Is it fair to bring them into a home where you may be incredibly limited? What about pregnancy? Should you get pregnant? Will your disease or your medications negatively affect your child? I go into all of this and more in this episode. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 210 - Clinical Lab Results vs OPTIMAL Lab Results - What you Need to Understand 20:21

2 years temu20:21

20:21

Have you ever had a doctor glance at your blood work and tell you everything is "normal"? Even though you KNOW something is off? Clinical medicine focuses on critical care whereas functional medicine focuses on total healing and balance BEFORE you get critical... and one of the biggest differences is how they are able to interpret your blood work. In today's episode I share a couple of personal anecdotes and break down this revolution into understanding your test results. Links Mentioned in Episode: My dietician - I 10,000% recommend her! https://www.instagram.com/nutritionbyjulie/ The other podcast I have been loving: https://www.instagram.com/hormonehealingrd/ Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 209 - Your Guide to Surviving Your First Year of Chronic Illness 13:51

2 years temu13:51

13:51

Being diagnosed with a chronic illness is, to say the least, a life-changing experience. Coping with the challenges that come with chronic illness is no light thing to overcome. Oftentimes it feels so overwhelming that you cannot even begin to process what your new reality will be. The good news is that there are several things that you can do to survive your first year with chronic illness and in this episode we go through the top five. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 208 - Negative Outcomes from Stress Don't Have to Control Your Life 15:27

2 years temu15:27

15:27

Stress leads to inflammation. Inflammation leads to illness. It’s probably a formula you're familiar with. You who live with the awareness that inflammation is your enemy - I mean, really for health is EVERYONE’S enemy, but for the already chronically ill - it is a much more intense adversary. Today I talk about 7 ways to help support your body and reduce stress that are ACTIONABLE tips not just the vague, "you need to reduce your stress" that doctors often tell you. Diffuser Recs: https://a.co/d/0OjMGRo https://a.co/d/1i4ChFB Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 207 - Chronic Illness Warriors: You Are Strong, Brave, Kind and True 11:40

2 years temu11:40

11:40

If you’ve been chronically ill for a while, you have been through the ups and downs. You know the crazy mind games it ends up being. You also know that many MANY people, supported by mainstream media narratives, jokes, and comments, see people with chronic illnesses and less than. They perceive us as less than. They believe we are a burden on society… and insanely enough, they believe that we CHOOSE to be and stay sick. Which is crazy, right? In today's episode I set some things straight - and remind you how amazing you are! Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 206 - Chronic Illness Reminder: Social Media isn't Reality 11:46

2 years temu11:46

11:46

As you sit in your home, exhausted, struggling with brain fog, in pain and so much more, social media is often a window into the rest of the world. It is a lifeline to the friends who understand, who are often also at home struggling with the war inside their bodies. There is so much GOOD that has come, and can continue to come from social media. The trouble becomes that we can struggle to discern reality from the highlight reel that social media is. If you struggle with wanting to feel connected, but also feeling drained by social media, you are NOT alone! Today's episode gives you clear and actionable ways to manage social media burn out. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 205 - You Deserve a Medical Team that Believes You 19:20

2 years temu19:20

19:20

When you leave your medical appointments you should feel seen, heard, supported... and maybe even a little bit hopeful. If you DO NOT feel this way, it's time to start buliding a different medical team. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 204 - You have the Freedom to Choose Your Chronic Illness Care 17:28

2 years temu17:28

17:28

Let’s be clear - you have MANY freedoms in your chronic illness journey. Today we look at several and encourage you to take control of your life! YOU HAVE THE POWER TO CHOOSE!!!! Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Gall Bladder Info: https://www.gallbladderdiet.com/gallbladder-removal-side-effects/ https://www.instagram.com/gallbladder.nutritionist CDC - https://www.cdc.gov/healthyschools/chronicconditions.htm Raw Milk - https://www.nourishwithkristin.com/blog/raw-vs-pasteurized Grass Fed Beef - https://wellnessmama.com/health/grass-fed-beef/ https://www.instagram.com/p/CuQG-JiuNJ_/?igshid=MzRlODBiNWFlZA== Dr. Whitney Donahue https://www.drwhitneydonohue.com/ https://www.instagram.com/drwhitneydonohuend Endocrine Disruptors: https://www.endocrine.org/topics/edc/what-edcs-are/common-edcs Banned in other countries: https://foodrevolution.org/blog/banned-ingredients-in-other-countries/ https://marketrealist.com/food-industry/us-foods-banned-other-countries/ Alt Milk https://www.yahoo.com/entertainment/non-dairy-milks-healthier-thats-175400639.html https://www.sheknows.com/health-and-wellness/articles/1117683/alternative-milks/ Follow the money https://www.science.org/content/article/hidden-conflicts-pharma-payments-fda-advisers-after-drug-approvals-spark-ethical…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 203 - Your Chronic Illness Doesn't Make you a Bad Parent 16:36

2 years temu16:36

16:36

Your disease can affect everything in your life. Not just what you can do physically, but your time and your emotional limitations as well. So it is absolutely going to impact your parenting. Parenting is the most all encompassing thing you can do in your life, also affecting everything. When was the last time you thought to yourself - maybe I’m a bad parent because of the limitations of my disease? Or maybe it was more, “My kids deserve a better parent, a more involved parent, a parent who can do more with them.” If you're an overhwlemed parent, or a someone contemplating pregnancy and parenthood and you're dealing with a chronic illness - TODAY'S EPISODE IS FOR YOU! Follow Allie: https://www.instagram.com/disability_dame/ Follow Bethany Hamilton: https://www.instagram.com/bethanyhamilton/ Dr. Dan Siegel: https://drdansiegel.com/ The Whole Brained Child Book: https://a.co/d/2lya80t Joe Newman: https://www.raisinglions.com/ Raising Lions Book: https://a.co/d/9w18yKI Emotional Intellegence and Success: https://www.forbes.com/sites/forbescoachescouncil/2017/11/07/the-little-known-relationship-between-emotional-intelligence-and-success/ Follow Morgan Burke: https://www.instagram.com/morganburkewrites/ The Adoption Process: https://rumble.com/v17o73x-the-adoption-process-morgan-burke.html Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 202 - Get the Support you Need in Between Doctors Appointments 12:54

2 years temu12:54

12:54

6+ months wait is unacceptable. The issue is that by the very nature of having a chronic illness, your body and your life is unpredictable. Even if your appointment is a follow up or continuing care with a medical provider, it can be difficult to make sure you make it to these appointments. Throw in the pandemic and the post pandemic challenges and it’s even more difficult to make it. Have a cough, don’t come to the office. Have a fever, don’t come to the office… you get it. So as you’re struggling and you really REALLY need to see this specialist, you have even more barriers to entry than many other people. The challenge is that not making it to these appointments can have major consequences on your health and even your long term quality of life, but in our broken health care system you miss this appointment and you may not be able to get back in for 6 months or longer. They have a DUTY to provide care for you. Either your established doctor or your referring doctor. When these delays happen - there are ways to get support until you can be seen. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 201 - The Importance of Boundaries 9:48

2 years temu9:48

9:48

Boundaries are VITAL for your mental, emotional and physical health - chronic illness or not. Today I dive into why you need boundaries and easy ways to implement them. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

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Ep 200 - Interview with Chantel Laughlin a Money and Mindset Coach 50:08

2 years temu50:08

50:08

Meet Chantel! After realizing that she was holding herself back from things she wanted, she decided to take action and learn how to take control of her money and her life. In today's interview she gets vulnerable AND shares some amazing insights as to how to get started and ways to maximize your financial potential. Links: www.chantelcoaches.com www.instagram.com/chantel.laughlin Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

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1
Ep 199 - Interview with Holly Bertone Mindset and Gratitude Coach 1:02:39

2 years temu1:02:39

1:02:39

You aren't going to want to miss this episode! Holly is a cancer survivor AND auto immune warrior who spent most of her life as a top tier over achiever and has had to learn to thrive through life no matter how much it throws at you... and through that process she discovered the power to take control of her life and her happiness! Here's where you can find Holly: Website: https://academy.pinkfortitude.com/podcast-landing-welcome Podcast: https://academy.pinkfortitude.com/blog Podcast Episode mentioned - It's Ok to NOT Be Ok. Or is it? https://academy.pinkfortitude.com/blog/episode-39 Instagram: https://www.instagram.com/holly.bertone/ Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 198 - You are Worth Loving, Chronic Illness and All 13:21

2 years temu13:21

13:21

I know the pain of realizing people you believed were part of your inner circle separating themselves from you. They don’t want to see what you share online. The reality of what you’re going through makes them feel a certain way. Some people won’t want to see or hear it. Some people will walk away. Some people will unfriend and unfollow… and it sucks and it hurts… and, it’s also okay. Episode 179 - They Won't Understand and You Need to be Okay with That https://fightlikeamama.libsyn.com/untitled-16 Episode 56 - The Power of Vulnerability https://fightlikeamama.libsyn.com/ep-56-the-power-of-vulnerability Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 197 - Vasculitis Insights: Giant Cell Arteritis (Temporal Arteritis) 13:41

2 years temu13:41

13:41

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 196 - Vasculitis Insight: Behcet’s Disease 21:25

2 years temu21:25

21:25

A breakdown of what Behcet's Disease and what you need to know as a patient as well as insight from patients on life with Behcet's. Here's what you'll find in this episode: What is Behcet's? What are the classic symptoms of Behcet's? How is Behcet's Diagnosed? What Causes Behcet's? Who gets Behcet's? How is Behcet's Treated? Side Effects from Medications Life with Vasculitis Patient to Patient Cat's Episode: https://fightlikeamama.libsyn.com/ep-118-vasculitis-interview-with-behcets-disease-warrior-with-cat-ray Cat's Podcast: https://risingfromtheillness.libsyn.com/ Cat on Instagram: https://www.instagram.com/risingfromtheillness/ Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Sources: https://www.mayoclinic.org/diseases-conditions/behcets-disease/symptoms-causes/syc-20351326 https://www.hopkinsvasculitis.org/types-vasculitis/behcets-disease/ https://rarediseases.info.nih.gov/diseases/848/behet-disease…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 195 - Vasculitis Insights: Cutaneous Small-Vessel Vasculitis aka Leukocytoclastic vasculitis 14:59

2 years temu14:59

14:59

A breakdown of what Cutaneous Small-Vessel Vasculitis (CSVV) and what you need to know as a patient as well as insight from patients on life with CSVV. Here's what you'll find in this episode: What is Cutaneous Small-Vessel Vasculitis? History of Cutaneous Small-Vessel Vasculitis? What are the symptoms and signs of Cutaneous Small-Vessel Vasculitis? How is CSVV Diagnosed? How is CSVV treated? Who gets CSVV? Life with Vasculitis Patient to Patient Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Sources: https://dermnetnz.org/topics/cutaneous-small-vessel-vasculitis https://www.merckmanuals.com/professional/musculoskeletal-and-connective-tissue-disorders/vasculitis/cutaneous-vasculitis https://www.ncbi.nlm.nih.gov/books/NBK482159/…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 194 - Vasculitis Insight: ANCA Vasculitis - Eosinophilic Granulomatosis with Polyangiitis 17:20

2 years temu17:20

17:20

A breakdown of what Eosinophilic Granulomatosis with Polyangiitis is and what you need to know as a patient as well as insight from patients on life with EGPA. Here's what you'll find in this episode: What is EGPA? What are the symptoms of EGPA? Complications from EGPA How is EGPA Diagnosed? How is EGPA treated? Side effects from the medications Can EGPA come back? Life with Vasculitis Patient to Patient Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Sources: https://www.mayoclinic.org/diseases-conditions/churg-strauss-syndrome/symptoms-causes/syc-20353760 https://rarediseases.info.nih.gov/diseases/6111/eosinophilic-granulomatosis-with-polyangiitis https://my.clevelandclinic.org/health/diseases/7098--eosinophilic-granulomatosis-with-polyangiitis-egpa-formerly-churg-strauss-syndrome…

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Ep 193 - Vasculitis Insights: Cryoglobulinemia 9:34

2 years temu9:34

9:34

A breakdown of what Cryoglobulinemia and what you need to know as a patient as well as insight from patients on life with Cryoglobulinemia. Here's what you'll find in this episode: What is Cryoglobulinemia? What are the symptoms of Cryoglobulinemia What Causes Cryoglobulinemia? How is Cryoglobulinemia treated? Life with Vasculitis Patient to Patient Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Sources: https://www.hopkinsvasculitis.org/types-vasculitis/cryoglobulinemia/ https://www.uptodate.com/contents/overview-of-cryoglobulins-and-cryoglobulinemia https://ashpublications.org/blood/article/129/3/289/36030/How-I-treat-cryoglobulinemia https://www.mayoclinic.org/diseases-conditions/cryoglobulinemia/symptoms-causes/syc-20371244…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 192 - The Importance of Building HEALTHY Relationships with your Chronically Ill Friends 17:04

2 years temu17:04

17:04

It can be so easy to want to just go all in with a new friend who "gets it" when for so long you have felt alone in your rare disease or chronic illness journey. Today I talk about why you need to avoid the "too close too soon" trap and how to do that! You can find Team Vasculitis at: http://www.teamvasculitis.com Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 191 - Navigating a Career and Motherhood with a Chronic Illness 9:07

2 years temu9:07

9:07

Meet Lauren! A Vasculitis warrior who has managed her career at a large corporation, with two daughters, under the age of 5 at the time of diagnosis, AND a rare disease that caused permanent damage to organs as she sought answers. Watch her talk here: https://rumble.com/v2nz4m8-navigating-a-career-and-motherhood-with-a-chronic-illness.html Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 190 - Reclaiming Your Health and Fitness with Kayla ProKop 28:35

2 years temu28:35

28:35

Today's episode is a special one! Today for the 2nd Annual Team Vasculitis International Vasculitis Awareness Day Symposium Kayla shares with you her journey with Vasculitis, POTS, Fibromyalgia and more... and not only how fitness helps her every day, but how it actually takes much of her pain away. Follow Kayla at: https://www.instagram.com/autoimmune_fitwarriorsoul Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 189 - Vasculitis Insights: Cogan’s Syndrome 13:10

2 years temu13:10

13:10

A breakdown of what Cogan's Syndrome and what you need to know as a patient as well as insight from patients on life with Cogan's. Here's what you'll find in this episode: What is Cogan's Syndrome? Who gets Cogan's Syndrome? What are the symptoms of Cogan's Syndrome? How is Cogan's SyndromeDiagnosed? How is Cogan's Syndrome treated? Side Effects from Medication Life with Vasculitis Patient to Patient Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Sources: https://rarediseases.info.nih.gov/diseases/1421/cogans-syndrome https://www.health.harvard.edu/a_to_z/cogans-syndrome-a-to-z https://mayoclinic.pure.elsevier.com/en/publications/cogans-syndrome-an-audiovestibular-ocular-and-systemic-autoimmune…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 188 - Vasculitis Insights: Aortitis 16:05

2 years temu16:05

16:05

A breakdown of what Aortitis and what you need to know as a patient as well as insight from patients on life with Aortitis. Here's what you'll find in this episode: What is Aortitis? What causes Aortitis? Who gets Aortitis? What are the symptoms? How is Aortitis Diagnosed? How is Aortitis treated? Side Effects from Medications Your Medical Team Life with Vasculitis Patient to Patient Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Sources: https://my.clevelandclinic.org/health/diseases/24264-aortitis https://www.cedars-sinai.org/health-library/diseases-and-conditions/i/inflammatory-aortic-disease-aortitis.html https://www.merckmanuals.com/professional/cardiovascular-disorders/diseases-of-the-aorta-and-its-branches/aortitis…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 187 - Vasculitis Interview with Takayasu's arteritis warrior Lucy De Matos 1:13:56

2 years temu1:13:56

1:13:56

Meet Lucy! After fighting for anyone to take her seriously, because she was "too young" to be sick, Lucy had to learn how to manage life with Takaysau's Arteritis, being a young mom, and advocating for herself. Now, she uses one of her strongest tools - nutrition - to help others live healthier lives. Read her blog post on the Anti-Inflammatory Diet here Follow Lucy: Instagram @ _heal_thy_self__ Facebook at Heal THY self Nutrition Email: lucy@healyselfnutrition.ca Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 186 - Vasculitis Insights: Anti-GBM/Goodpasture's Syndrome 18:59

2 years temu18:59

18:59

A breakdown of what Anti-GBM/Goodpasture's Syndrome and what you need to know as a patient as well as insight from patients on life with Goodpasture's. Here's what you'll find in this episode: What is Goodpasture's? What causes Goodpasture's? What are the symptoms? How is Goodpasture's Diagnosed? How is Goodpasture's treated? What are Your chances of getting better Life with Vasculitis Patient to Patient Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Sources: https://unckidneycenter.org/kidneyhealthlibrary/glomerular-disease/anti-gbm-disease/ https://my.clevelandclinic.org/health/diseases/5927-goodpasture-syndrome…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 185 - Vasculitis Inights: Central Nervous System Vasculitis 17:48

2 years temu17:48

17:48

A breakdown of what Central Nervous System Vasculitis and what you need to know as a patient as well as insight from patients on life with CNS/PACNS. Here's what you'll find in this episode: What is CNS? What are the symptoms of CNS? What causes CNS? How is CNS Diagnosed? How is CNS treated? Side effects from the medications Life with Vasculitis Patient to Patient Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Sources: https://my.clevelandclinic.org/health/diseases/13205-central-nervous-system-vasculitis https://www.ninds.nih.gov/health-information/disorders/vasculitis-nervous-system https://www.uofmhealth.org/conditions-treatments/brain-neurological-conditions/central-nervous-system-cns-vasculitis https://pn.bmj.com/content/20/2/109 https://www.rheumatologyadvisor.com/ddi/central-nervous-system-cns-vasculitis/ https://www.ahajournals.org/doi/10.1161/STROKEAHA.118.021878…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 184 - Vasculitis Insights: What is Vasculitis 21:27

2 years temu21:27

21:27

I get asked so often “What is Vasculitis?” So today - if you’re listening to this in real time - it is May 2023 and that means it’s Vasculitis Awareness month! In honor of that I thought I would kick the month off with an overview of what this family of diseases is. In today's episode: What is Vasculitis? Who gets Vasculitis? What are the symptoms of Vasculitis? What are the types of Vasculitis? How is Vasculitis treated? Side effects from medications Relapse rates How is Vasculitis diagnosed? What doctors do you need? What complications happen with Vasculitis? Life with Vasculitis Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Sources: https://my.clevelandclinic.org/health/diseases/12101-vasculitis https://www.hopkinsvasculitis.org/vasculitis/symptoms-vasculitis/ https://www.mayoclinic.org/diseases-conditions/vasculitis/symptoms-causes/syc-20363435 https://www.medicinenet.com/vasculitis/article.htm https://health.clevelandclinic.org/4-medicines-help-you-manage-the-mysteries-of-vasculitis/ https://www.nhlbi.nih.gov/health/vasculitis/causes https://www.hopkinsvasculitis.org/types-vasculitis/…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 183 - Cold Therapy and Chronic Illness 19:22

2 years temu19:22

19:22

Cold can be healing! Have you ever utilized heat or cold for your pain or for your health? Cold water therapy is the practice of using water that’s around 59°F (15°C) to treat health conditions or stimulate health benefits. It usually involves submerging your body in cold water for a short period of time, usually between 30 seconds to a few minutes. There are definitely benefits to cold therapy… used properly, if you are healthy enough to implement them. (please consult a doctor before you try cold therapy or cold plunging.) In today's episode I dive into all the details and scientific information! Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Sources used for this episode: https://www.healthline.com/health/cold-water-therapy#benefits https://uspainfoundation.org/news/the-benefits-of-heat-and-cold-therapy-for-chronic-pain/ https://www.healthline.com/health/cryotherapy-benefits https://www.healthfitnessrevolution.com/10-health-benefits-of-cold-plunges/ https://peacefulsoul.co/the-body/guides/how-cold-water-therapy-can-help-physical-wellbeing/ https://www.forbes.com/health/body/cold-plunge-what-to-know/ Taking the Plunge: Is Cold Exposure Worthwhile?. Cedars-Sinai. Accessed 4/19/2023. ( https://www.cedars-sinai.org/blog/cold-exposure-therapy.html ) Buijze, G. A., Sierevelt, I. N., van der Heijden, B. C., Dijkgraaf, M. G., & Frings-Dresen, M. H. (2016). The Effect of Cold Showering on Health and Work: A Randomized Controlled Trial. PloS one, 11(9), e0161749. ( https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5025014/ ) ( https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5025014/ ) Cold Water Hazards and Safety. National Weather Service. Accessed 4/19/2023.( https://www.weather.gov/safety/coldwater) Cold Therapy (Cryotherapy) for Pain Management. UCLA Health. Accessed 4/21/2023.( https://healthinfo.uclahealth.org/Conditions/Orthopedics/134,95 )…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 182 - 10 Ways to Manage Your Mental Health when You Have a Chronic Illness 17:09

2 years temu17:09

17:09

The longer you struggle with your health - physical or mental, the more of a struggle it becomes because it starts to influence more and more aspects of your life. So the best thing you can do is to face it head on and do it with a gameplan. Management is essential to your ability to function. So… Here is what I suggest you focus on to go from overwhelmed by all of these aspects of your life, to managing it and even maintaining stability which will allow you to improve many aspects of your life. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 166 - Interview with Possible PAN Vasculitis Warrior Danielle Roszkowski-Rayo- A Story of Vaccine Injury 54:03

2 years temu54:03

54:03

Open your mind and heart before you listen to this episode! Look, we all know this is a hot topic and can be EXTREMELY devisive. Giving Danielle a platform to speak about what is happening to her, her process, and the harm that comes from complete dismissal is the right thing to do. Her story is real. So as you listen, hear her. Don't put other viewpoints on her. She shares how she went from a happy, healthy human to someone who has been hospitalized multiple times, and has permanant damage to her body. She shares the dismissal from doctor after doctor who were confused and unsure about what what happening to her - and how the possible tie to the Covid 19 Vaccine slowed getting answers. Thank you for listening to her today. It is her hope, as it is mine, that sharing stories of reactions will result in more research - more science. Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Follow Dainelle here: https://www.instagram.com/daniellerosz/ Vaccine Injury Resources: React19.org https://react19.org/ Front Line Critical Care Alliance: https://covid19criticalcare.com/…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 165 - Imagine Being Loved, Just as You Are - Chronic Illness or Not 17:05

2 years temu17:05

17:05

Think about what a difference it would make in your life if doctors actually believed you when you shared your symptoms. What if you didn’t have to wait until things got worse and you were in a critical place before they looked at your holistically for a diagnosis? I know people who have permanent hearing damage, kidney damage, lung damage, heart damage and more that was absolutely without any doubt due to a delay in diagnosis. What would the world be like for us, and what effort would be made to find answers if chronic illness was taken as seriously as cancer? To find out what I think can change it all... listen to today's episode! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 164 -Life with Chronic illness Makes Things Different - NOT LESS 12:57

2 years temu12:57

12:57

Life is DIFFERENT when you have a chronic illness. Different. Not less. It takes time to see it and it takes time to build it… and it’s true. If you are feeling like life is LESS now... this one is for you my friend! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 163 - Chronic Illness Broken Beauty Deserves Acceptance, Not Grace 12:27

2 years temu12:27

12:27

Grace is a cop out. There, I said it. So what do I suggest instead? ACCEPTANCE. Listen to this episode to bring yourself into your most aligned state on your journey of self love! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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TV - Ep 162 - What You Need to Know about the 23 and Me ANCA Vasculitis Rare Disease Study 13:32

2 years temu13:32

13:32

When many people started messaging me with questions and asking for my thoughts on the 23 and Me Research Study on ANCA Vasculitis, I of course took a look. I read everything on their website and had questions. So I emailed them and asked those questions and promised to share them with you. I want to point out these are basics for ANY rare disease research study they will do and in the literature they provided they have worked on a handful of studies with the pharma company GSK that has developed 40 potential therapies. So whatever rare disease you have, this information may apply to you as well. Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Links From 23 and Me: 23 and Me Rare Disease Research Study: Anti-Neutrophil Cytoplasmic Antibody Associated Vasculitis: https://www.23andme.com/rare-disease-research-study/anca-associated-vasculitis/ To learn more about Rare Disease Research Study funding, please visit: https://www.23andme.com/therapeutics/ GSK partnership for therapeutic research. https://investors.23andme.com/news-releases/news-release-details/23andme-announces-extension-gsk-collaboration-and-update-joint Research Consent Document: https://www.23andme.com/about/consent/…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 161 - Why Functional Medicine is Vital for Chronic Illness 13:35

2 years temu13:35

13:35

It is not considered a conventional path to healing, but research shows that functional medicine for chronic illness can help you get to the root cause of the problem. Functional medicine is a type of healthcare that focuses on the whole person and factors such as antecedents, mediators and triggers that have led you to where you are today, which is why it can help to create the conditions for your body to heal naturally. In today's episode I go over why you need a functional practioner on your medical team, how they work, and what they'll focus on. Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 160 - What I've Learned from a Decade of Chronic Illness 11:33

2 years temu11:33

11:33

I’ve been at this a while and have had the amazing privilege to talk to so many people who have been through their chronic illness journey longer, all of whom I have learned so much from. I have also had the honor to speak to dozens of newly diagnosed people. Which has given me a unique perspective and reminder of how far I have come. You might already know this, but there are some realities and truths we as a group come to. Today I am going to share with you my top seven things I have learned in my decade with chronic illness. Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 159 - Stop Telling Yourself Lies Just Because You Have a Chronic Illness 8:48

2 years temu8:48

8:48

When someone asks you how things are, you think of the list of things you aren’t doing. You think of the list of things you have “failed” at. Then you end up feeling all kinds of things when people tell you how amazed they are by you. You wonder how they could think that, you know they’re just being nice because you aren’t being amazing… you are FAILING at EVERYTHING. Right? WRONG! Listen to today's episode for the boost you need! Connect with others: http://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 158 - What is Team Vasculitis All About? Chronically Ill Friend, I'm Glad You Asked! 10:27

2 years temu10:27

10:27

When I started it was just a feeling and an idea. I switched to posting chronic illness content in November and through November and December thought about what I wanted to build. I thought about Rare Diseases, but honestly it overwhelmed me even though I have a rare disease. Of course rare diseases are welcome here, they are chronic illnesses after all. Just something about it was too much. Then when I decided what it would kind of look like to get started, I fully launched everything in February - Rare Disease Awareness Month. So if you’ve been enjoying my content and feeling connected to it I appreciate it! Now I have a more clear picture of what I want to build here. I have asked you questions and have formed what we’re going to be doing together based on what you told me. So - what are we going to be all about here? What can you expect as you participate in this community… Listen to this episode to find out! Join us on Instagram! https://www.instagram.com/teamvasculitis/ Join the email list and never miss and update or an announcement! https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 157 - I want to be told Even with my Chronic Illness, I am ENOUGH! 7:36

2 years temu7:36

7:36

One of the messages we get from very well meaning people is that we can do anything. They want us to know that we can still live full lives. We can still have dreams and goals. Which is good, we do need the reminder. We also don’t want to be told that we can do anything. In a roundabout way it is saying that we aren’t doing enough. The message is to dream bigger, do more. The message we need the most often is actually what I can do right now is enough. Right now in this moment I am doing enough. If you have ever felt like you need to do more and be more... espcially because of your illness, this episode is for you! Don't go through life with chronic illness alone! Join us on Instagram! https://www.instagram.com/teamvasculitis/ Join the email list and never miss and update or an announcement! https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 156 - Your Symptoms May Not Be the Same if You're Chronically Ill 9:05

2 years temu9:05

9:05

I am sure you have had friends get the same flu, or the same cold and mostly they have the same symptoms. Right? People focus on how similar their experiences are. Mainstream wise, it makes sense. A certain set of symptoms is used to create a picture of what a disease is, how it is diagnosed, and then you get treatment based on that assessment. Sometimes the treatment varies depending on severity. When it comes to chronic illness, things aren’t that different. We have symptoms that when presenting together give us a diagnosis. We find support in our community and shared experiences. So what about when things are different? What about when things present outside of what is “textbook?” Listen to this episode to find out more! Join the community and find support: http://www.instagram.com/teamvasculitis Get on the Email List and never miss anything important! https://teamvasculitis.com/team-vasculitis-email Get more information, updates, links etc https://teamvasculitis.com/…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 155 - Don't Worry. We know You're Not Faking Your Chronic Illness 10:39

2 years temu10:39

10:39

A recent article came out about how the spoonie movement is toxic and we make one another worse, not better. How social media sucks us in and turns our support of one another into obsession that hurts us. So let me start with what a bunch of crap. Total and complete crap. Absolute bull shit. It also very clearly illustrated the ableism of the world around us. So many people just… believe it. Which is INSANE to me. Even before I was personally sick, I could see how there are things we go through that others don’t understand. But when I don’t understand it, I don’t assume the other person is wrong. Join the Community: http://www.instagram.com/teamvasculitis Get on the Email list: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 154 - Chronic Illness is Misunderstood. Let's Change That. 12:37

3 years temu12:37

12:37

From the perspective of the rest of the world we don’t do enough. We “should” be able to function more or we should be able to get better. BuzzFeed writes articles about how we are choosing this and our amazing community is actually encouraging us to stay sick.... I find this unacceptable. Find out what I plan on doing about it! Listen NOW! Join Our Community: http://www.instagram.com/teamvasculitis Check Out Our Webpage + Join Our Email List: http://teamvasculitis.com…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 153 - Big Changes when You're Chronically Ill 13:02

3 years temu13:02

13:02

So much has been going on for my family and I. We have had some major life changes and it has been a PROCESS. In this episode I share with you what's been happening and a few things I did to manage it without pushing myself too far. Instagram: http://www.instagram.com/teamvasculitis Website: http://teamvasculitis.com…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 152 - EMPOWERED with Kara Kauffman a Manifestation Mentor + Life Coach 32:42

3 years temu32:42

32:42

Welcome to EMPOWERED A series that brings to you resources to empower yourself to live a full life. Meet Kara! She helps you master manifestation to attract more: Health, Wealth and Love. In this conversation Kara shares about her personal journey with anxiety and how understanding her body gave her the tools to get where she could take on her life and build it with joy and intentionality! Connect with Kara: httpshttps://www.instagram.com/iamkarakauffman Raise Your Vibe Guide: https://karakauffman.mykajabi.com/raise-your-vibe-guide Connect with the Team Vasculitis Community: https://www.instagram.com/teamvasculitis/ Never miss anything going on with Team Vasculitis: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 181 - Why I became a Chronic Illness Advocate 14:58

2 years temu14:58

14:58

I felt so alone. I felt really lost. I felt completely scared. I didn’t know what was happening, or how to totally manage it. I was losing friends and had loved ones even attacking me because I wasn’t getting better, or showing up for them the way I used to be able to. Even the people I told how sick I was, didn’t understand. They interpreted it as - you have a diagnosis and had treatment, why aren’t you better? Google was even worse... that's how I knew I needed to speak up. Today's episode tells you more about me - and why I'm doing what I'm doing. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 180 - My Favorite Lies Doctors Tell 11:51

2 years temu11:51

11:51

One of the biggest struggles the chronic illness community struggles with is the harsh realization that doctors will lie and won’t care and won’t help the vast majority of the time. Yes, seriously… the vast majority of the time. Today I share my three favorite lies. Here's the Reel I mention: https://fb.watch/jH7JV6pi1h/ Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 179 - They Won't Understand... and You Need to be Okay with That 12:01

2 years temu12:01

12:01

When it comes to living with a chronic illness it can feel as though you’re living in a completely different reality than the rest of the world around you. Loved ones you were once in such alignment with, no longer understand what you’re going through… sometimes they even say things like they don’t really know who you are anymore. They’re dismayed at how to support you and interact with you. They aren't going to get it... today we're going to talk about that. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 178 - [Personal Story] There is Better Care out there if You Have a Chronic Illness or a Rare Disease 24:02

2 years temu24:02

24:02

My family moved across the country - and one of the biggest reasons was to be closer to different care for my rare disease. After we had been treated poorly, ignored, attacked, and dismissed by multiple medical facilities in California I had only the smallest glimmer of hope that things could be different... Today I share with you what happened when I visited University of North Carolina's Vasculitis Clinic. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 177 - How to Choose the Right Functional Medicine Practitioner when You're Chronically Ill so you Don't Waste Money! 19:43

2 years temu19:43

19:43

One of the challenges you face as a chronically ill patient is figuring out how to best care for and support your body. For most of us it doesn’t take long to discover that clinical medicine is only one piece of the puzzle. I talk alot about functional medicine because I truly believe that so much more can and should be done to support your health and your body holistically, but that in no way means that I am anti pharmaceuticals. The difference is important to understand though. In this episode I asked two of my most trusted functional practioners these questions: 1. What should someone look for when choosing a functional practitioner? 2. What questions should they ask and answers should they be looking for when they work with someone? Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Connect with Julie: Instagram TikTok Facebook Group Connect with Dr. Michelle Instagram…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 176 - We Need to Be Honest with One Another 13:58

2 years temu13:58

13:58

As chronically ill patients we are gaslit all of the time by basically everyone who isn’t also chronically ill. If you’ve been here a while, you know that we need more awareness and understanding. We need to be able to have open conversations about our reality and our care. Today I talk about something affecting me... as a conversation starter and an example of what need to be talking about and how we need to have the space to be honest with one another. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 175 - What You Need to Know About Living with a Rare Disease 10:47

2 years temu10:47

10:47

Living with a rare disease is incredibly challenging. Not only are you fighting your own body, but you're also fighting a medical system not equipped to help you, insurance that cares only about their bottom line, society that will label you many derogatory things, media that never properly represents you and loved ones who don’t know how to show up for you. It’s a HARD thing to negotiate even on the best days. Today I put together a list of 10 things you need to know about living with a Rare Disease. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in their journey through life with chronic illness! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 174 - Please Don't Assume I'm Miserable because I have a Chronic Illness 16:28

2 years temu16:28

16:28

We talk about the dark hard stuff a LOT because it needs to be said. Our silent suffering hurts us more than it helps us in literally every aspect of our lives and our care. The problem with us highlighting this conversation and VERY IMPORTANT aspect of our lives, is that in the lack of understanding in the world the pendulum swings the other way and people end up thinking we are always suffering or if you have a chronic illness you are always in a bad place. This is not accurate. Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 173 - Interview with Kay Prokop: Chronic Illness and Fitness 48:18

2 years temu48:18

48:18

Do you work out? Is it safe? What if you're in a flare? When it comes to our health it can be overwhelming to figure out what's right and what will hurt you. Today Kay and I talk about how she approaches things with her clients and how she handles things herself as she navigates her own health journey. Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Connect with Kay: Instagram: https://instagram.com/autoimmune_fitwarriorsoul https://www.bonfire.com/we-are-warriors-2/…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 172 - Well Crap... I'm Having a Flare of my Chronic Illness 17:30

2 years temu17:30

17:30

What I really wanted to share is what this flare has been doing to me mentally and emotionally… because that’s where we need the most support and understanding and it’s where there is the least amount of discussion… You can find all kinds of scientific papers on the increases of dosage. But what it does to us outside of the clinical medical world is rarely talked about… So - here goes… Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 171 - Interview with Life + Love Coach Ariane Olshansky: Navigating Committed Relationships and Chronic Illness 1:06:58

2 years temu1:06:58

1:06:58

Relationships are SO HARD! Throw in onset of a chronic illness... and WOW. Right? Today I sit down to talk with Life and Relationship Coach Ariane Olshansky about how important understanding your energy is and how to navigate onset or a flare without losing the connection and intimacy. We don't just talk about it from what the patient needs, but also how to allow the partner to process and go through all of the feelings too. This is Part One! We will be discussing Dating when you have a Chronic Illness on a forthcoming episode! Also, keep an eye out for her blog posts on the Team Vasculitis website in regards to dating and committed relationships! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Connect with Ariane: https://www.instagram.com/arianeolshansky/ TikTok: https://www.tiktok.com/@hugsxhoneycoach Facebook Group: https://www.facebook.com/groups/587314061858313 YouTube: https://youtube.com/@arianehugsandhoney4234 LinkedIn: https://www.linkedin.com/in/ariane-olshansky-02144a46 Co-Authored book, The Transformation Within: https://www.amazon.com/dp/B0BM22KRNF?ref_=cm_sw_r_mwn_dp_KYF3H0DE7BBTH7905MHH Check this out! Link to my Singles Retreat in Costa Rica in June: https://imiloainstitute.com/project/fall-in-love-in-costa-rica/ Email: hugsxhoney@gmail.com…

Team Vasculitis: Thriving through Life with Chronic Illness

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Ep 170 - Rare Disease Awareness 16:33

2 years temu16:33

16:33

It's February! Which means it is Rare Disease Awareness Month if you're listening to this in real time! If not - this episode is full of important facts and insight into struggles that Rare Disease patients deal with. From being labled "drug seekers" to no being able to afford travel to appointments or treatments and so much more. Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 169 - Interview with Dr. Michelle Arietta DC - Chiropractic Care and Chronic Illness 54:18

2 years temu54:18

54:18

Introducing Dr. Michelle Arietta DC! She is a licensed chiroprator and has been helping people achieve their health goals for 20 years. I personally worked with her and saw imporved sleep, less neuropathy in my legs, and so much more! I had a nerve study done and the doctor told me there were signs of regeneration, then asked if I was seeing a chiropractor! In this conversation we cover why chiropractic is so important and why I don't consider it "alternative" at all! Connect with Dr. Michelle: Website: http://www.myfavoritechiro.com Instagram: https://www.instagram.com/myfavoritechiro Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 168 - [PEP TALK] Build a Life You Love with Your Chronic Illness 13:31

2 years temu13:31

13:31

I get it. Your whole life did a 180 when you got sick. You had to step away from dreams and goals and there is a chance you’ll never get those back. You even see people achieving these incredible levels of health as they get into remission… but you’re not there so you feel this huge range of emotions… sadness, fear, anger, brokenness, resentment and whatever else bubbles up. It can be so demoralizing to see person after person share their story of how they achieved health after diagnosis and not be there. If you feel this way, or have ever felt this way… this is especially for you. Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

Team Vasculitis: Thriving through Life with Chronic Illness

1
Ep 167 - A Love Letter to my Chronically Ill Friend 9:15

2 years temu9:15

9:15

It seems like right now so many people are struggling in this community. So if you’ve been feeling that way, you aren’t alone. My DMs have been flooded by people sharing stories of everything from physical issues, to emotional issues, to monetary issues, and everything in between. So I thought, what you might need to hear the most is some love and support that doesn’t shy away from the dark or push you into the bright shiny side that you’re not really ready for… Here it is… a love letter from me to you. Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email…

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Team Vasculitis: Thriving through Life with Chronic Illness « » Ep 197 - Vasculitis Insights: Giant Cell Arteritis (Temporal Arteritis)

Ep 197 - Vasculitis Insights: Giant Cell Arteritis (Temporal Arteritis)

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Team Vasculitis: Thriving through Life with Chronic Illness « »
Ep 197 - Vasculitis Insights: Giant Cell Arteritis (Temporal Arteritis)