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Educating Yourself with Joan Rodriguez, Part II
Manage episode 289846867 series 2816013
We are continuing our conversation with Ms. Joan Rodriguez as our patient advocate for Mutiple Myeloma Awareness Month! She was such a powerhouse and had so many #gems to share with us about her journey with Multiple Myeloma. Ms. Joan says "Educating yourself is empowering" and she exemplifies this concept with her own story.
Joan Rodriguez is a native Bostonian. In 2003, she was diagnosed with MGUS and had progressive neuropathy. After a less than pleasant experience with one doctor, she switched to another who honored her request to never discuss her charts with the previous physician. After initial rounds of treatments, she started to get better and her symptoms decreased so that she was able to progress from using a walker to a cane, but the neuropathy never went away completely and she still has numbness in her feet. In 2016, she progressed to Smoldering Myeloma with markers qualifying her to be high risk.
She joined a clinical trial and a myeloma support group at Dana Farber. She is a participant of the Promise Study and will be participating in a future PSA with them.
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Dr. Karen Winkfield
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Dr. Zanetta Lamar
94 odcinków
Manage episode 289846867 series 2816013
We are continuing our conversation with Ms. Joan Rodriguez as our patient advocate for Mutiple Myeloma Awareness Month! She was such a powerhouse and had so many #gems to share with us about her journey with Multiple Myeloma. Ms. Joan says "Educating yourself is empowering" and she exemplifies this concept with her own story.
Joan Rodriguez is a native Bostonian. In 2003, she was diagnosed with MGUS and had progressive neuropathy. After a less than pleasant experience with one doctor, she switched to another who honored her request to never discuss her charts with the previous physician. After initial rounds of treatments, she started to get better and her symptoms decreased so that she was able to progress from using a walker to a cane, but the neuropathy never went away completely and she still has numbness in her feet. In 2016, she progressed to Smoldering Myeloma with markers qualifying her to be high risk.
She joined a clinical trial and a myeloma support group at Dana Farber. She is a participant of the Promise Study and will be participating in a future PSA with them.
--
New Episodes every Tuesday, available wherever you get your podcasts!
Rate and Subscribe! Also, join us for our live streams on Facebook and Youtube!
Sign Up for our newsletter here or at 3BlackDocs.com
Join the Conversation! Follow us on social media!
3 Black Docs
facebook.com/3blackdocs
twitter.com/3blackdocs
instagram.com/3blackdocs
YouTube.com/3blackdocs
Dr. Karen Winkfield
facebook.com/drwinkfield
twitter.com/drwinkfield
instagram.com/drwinkfield
Dr. Zanetta Lamar
94 odcinków
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