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Revitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through 'Heart to Heart with Anna,' the pioneering podcast that has been inspiring and informing listeners since 11-12-13. Join us as we dive deep into the personal journeys, triumphs, and challenges of Survivors, their loved ones, esteemed medical professionals, and other remarkable individuals within the CHD community. With unwavering dedication, our heartfelt conversations bring to light the storie ...
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A podcast for people who have been impacted by the diagnosis of Trisomy 13 or Trisomy 18. Educational, informational and personal experiences with these diagnoses to provide comfort, community and empowerment to those that listen. Visit extratolove.org to learn more about our non-profit organization.
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Our TFMR Stories

Sabrina Fletcher, Pregnancy Loss Doula

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Pregnancy loss support and connection in the heartbreak of terminating a wanted pregnancy for medical reasons (TFMR). Interviews with real TFMR parents & grief support and stories from professionals, released bi-monthly. To join our support community go to: https://www.thetfmrdoula.com/facebookgroup.html
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Kids Healthcast

Kids Healthcast

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Kids Healthcast is a pediatric podcast for parents. It is recorded by Indiana University Pediatric residents at Riley Hospital for Children. It covers health topics parents may be interested in a monthly half hour mp3-format podcast. Each month includes Health News, Medical Trivia, Parenting tips, and two segments on children's health ranging from constipation to normal newborn development and lots of information in between.
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The Pursuit of Health is a weekly podcast dedicated to a thorough exploration of the American Healthcare System at a critical time in our nation’s history. The podcast’s creator and host, Dr. Eric Fethke, is a pediatric cardiologist and educator trained at Columbia University, with over 25 years of experience practicing medicine. Students, professionals, and everyday people alike are invited to learn from guest experts who are pursuing groundbreaking work to improve America's health. Join us ...
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Unscripted with Alex

Alexandra Shepherd

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Host Alex Shepherd chats with guests about health related topics to help empower young families in making choices that are best for them and their children. Hosted on Acast. See acast.com/privacy for more information.
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My rare disease

Katy Baker

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Welcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health professionals and advocates, we talk about all aspects of rare disease including relationships, mental health and much more. I cannot wait for you to hear some truly inspiring stories from some absolutely amazing people. From being diagnosed with a rare disease myself at 10 weeks old, it has given me the motivation to give ot ...
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Support the show and shop at the Nitty Gritty Nursing esty shop! https://nittygrittynursing.etsy.com Are you a nursing student who struggles to understand nursing concepts your professor is teaching you? Do you wish there was a simple bite sized podcast to help further your knowledge base? Then you've found the right podcast. Nitty Gritty Nursing is a podcast designed for nursing students trying to understand how to care for different types of patients you might encounter with an acute care ...
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KU DE TA

KU DE TA

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Hosted by musical director BTK, with regular world-renowned DJ-producer guests, the weekly KU DE TA Bali radio show is a lovingly crafted aural representation of the elegant, exotic musical bohemia experienced during any typical long and winding day at the venue. The sundrenched sounds are timeless, yet contemporary; forward-thinking, yet reverential, encompassing everything from chic Asiatic chill to Balearic nu-disco. Experience the rhythmic heart and soul of KU DE TA either live online, a ...
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Night Demon Heavy Metal Podcast

NIGHT DEMON HEAVY METAL PODCAST

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Welcome to the Night … You think you know Night Demon? Then the Night Demon Heavy Metal podcast is for you. Step into the darkness as we peel back the curtain to give you an unprecedented all-access look into the mind and the heart of the Demon. We’re talking band history, song analysis, studio anecdotes, stories from the road. It’s everything a die-hard Night Demon fan could want, and more. This is the only place to learn the inside scoop, the deep-dive trivia, the untold tales from the ban ...
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Because We Are Strong

Kristine Hoestermann

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Welcome to the because we are a strong podcast. A podcast inspired by stories of struggle and strength. A place where you can feel safe enough to share every part of your rare story. The good, the bad, the happy, and anything in between. Many times those in the rare disease community feel isolated from the rest of the world. Rare disease comes with its own set of unique challenges, ones that are hard for the outside world to understand. Through our stories, we can bridge the gap between a la ...
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Dear Friends And Family

Dear Friends And Family

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Dear Friends & Family is a show about living a full life with chronic illness with your hosts Patty & Lex. Patty lives with Fibromyalgia & Lex lives with Small Fiber Neuropathy. Together they explore the topics of life, love, and happiness with other people living a life involving illness. This show is to remind anyone dealing with illness in their day to day lives, whether they are the caretaker or the person with illness, that they are not alone. It's a serious topic with an upbeat feel. P ...
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This is the Real Birth Podcast: a safe, welcoming platform to share birth stories. I'm Lucy Hill, a doula, mother, wife and total birth nerd living in Frome, Somerset in the UK. When I was pregnant, one of my favourite things to do was to listen to birth stories. During this time I read and listened to literally hundreds and hundreds of birth experiences shared by all kinds of parents, having all kinds of births. I quickly became obsessed with the narrative of birth and the power of storytel ...
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Welcome to The Critical Arcade Podcast, the ultimate destination for all things gaming. Every week, our hosts Nick and Dave will be taking you on a journey through the world of video games, where they’ll be reviewing the greatest releases through time, as well as diving into the rich history of gaming. Whether you’re a hardcore gamer looking for an in-depth analysis of the newest triple-A title or a casual player looking for some nostalgia-fueled fun, Nick and Dave have got you covered. They ...
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This week we bring you all the inside scoop of Night Demon's debut performance in Australia at The Zoo on May 29, 2024, supporting Cirith Ungol. You will hear of the band's quest for koala bears and kangaroos by day, before they went to work at legendary (and now defunct) venue The Zoo. The guys talk about the good sound, great gear and overall awe…
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After Ali Emerald lost her baby Paris to TFMR for maternal reasons, she went on to become a somatic embodiment coach to help herself and others work through trauma and grief. Ali’s pregnancy set in motion conditions that led her to need an organ transplant. In this episode we talk about the intersection between disability rights and reproductive ju…
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This week we review a recent large scale study on catecholaminergic polymorphic ventricular tachycardia (CPVT) in children which is based on two large international registries. How do outcomes differ between those symptomatic CPVT patients treated with or without an ICD? Who amongst symptomatic CPVT pediatric patients likely warrant an ICD? What so…
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Send us a text Like so many other aspects of our healthcare system, obesity is a health equity issue. Today we welcome Dr. Kara Mayes, Chief Medical Officer of Ilant Health, a company focused on value-based obesity management and cardiometabolic health. Dr. Mayes joins us to cast a lens on obesity in America, during a time that weight loss drugs ha…
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In late May 2024, following the conclusion of the wildly successful North American tour supporting Blind Guardian, Night Demon finally had the opportunity to play Australia. In this episode, you will hear all the whys and wherefores about how it came about, why this run was so important to the band, how complicated the logistics were, and why the p…
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This week we delve into the worlds of cardiac critical care and neurodevelopment when we review a recent report from the team at Children's Hospital of Philadelphia assessing an association between postoperative opioid exposure in infants following CHD surgery and neurodevelopmental outcomes. What might be the biological basis for an association be…
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Send us a text Meet Marina Lohri, a true trailblazer in the world of congenital heart defects (CHDs). Born with tricuspid atresia, a ventricular septal defect, and an atrial septal defect, Marina’s journey from a life-saving C-section to being among the first in Switzerland to undergo a modified-Fontan procedure at just 11 months old is nothing sho…
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Hebrews 4:12-13 ● 2024-10-13 ● 3-part series: Divine Solutions; Defective Plans ● Listen For the word of God is alive and active. Sharper than any double-edged sword, it penetrates even to dividing soul and spirit, joints and marrow; it judges the thoughts and attitudes of the heart. Nothing in all creation is hidden from God’s sight. Everything is…
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For several weeks now, we've been sharing all the details of Night Demon's spring 2024 North American tour supporting the German legends Blind Guardian. This week, we close out this series of episodes with a live soundtrack of Night Demon's favorite performances from this tour. You'll hear an astonishing setlist running as follows: Outsider, Scream…
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This week we listen in on a lecture by Assistant Professor of Pediatrics at the University of Pennsylvania, Dr. Christopher Janson, on the novel agent ivabradine. How does this agent work and in what circumstances can it be used in pediatric arrhythmia management? Is this safe to use for critical arrhythmias despite the fact that it is, at present,…
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Send us a text “Medical consumerism figures more as a problem than progress.” Today’s guest is the award-winning historian, American public health expert, and author, Professor Nancy Tomes. In a discussion encompassing past, present, and future, Professor Tomes provides a unique historical lens to better understand the healthcare challenges of toda…
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In this week's episode, Dr. Heyrman and Dr. Arnold will discuss measles, the dangers of button batteries, parenting tips on encouraging healthy eating habits, and safety tips for the Halloween holiday. Time Stamps: Health News/ Measles: 1:54 Dangers of Button Batteries: 3:41 Healthy Eating Habits: 7:46 Halloween Safety Tips: 9:08 Trivia: 14:13 This…
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Erica Rozmid, board certified behavioral psychologist and perinatal mental health certified, also known as TFMR Psychologist on her platforms, shares doable tips for when you are in mental health crisis after TFMR. The skills she generously relays in this episode are just a piece of what she's putting together in a mental health course for those wh…
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Send us a text Unlock the latest in cardiac neurodevelopmental research with Dr. Dawn Ilardi, a distinguished clinical neuropsychologist, as we navigate the complexities of how congenital heart defects (CHDs) impact children's neurodevelopment. Discover the groundbreaking strides made by the Cardiac Neurodevelopmental Outcome Collaborative (CNOC), …
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This week we conclude our exhaustive coverage of Night Demon's spring 2024 North American tour opening for Blind Guardian. The guys describe reuniting with beloved ex-drummer Dusty in Pennsylvania on a day off. They talk about memorable tour-ending gigs in Harrisburg, PA and Cleveland, OH, at the latter of which Blind Guardian pulled off an epic pr…
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This week we listen in on a wonderful review lecture on fetal arrhythmias by noted fetal cardiologist Professor Bettina Cuneo. In this lecture Dr. Cuneo reviews the basics of fetal tachycardias and bradycardias and how these arrhythmias are diagnosed and sometimes treated. This is a lecture that was delivered on 9/20/24 by Dr. Cuneo at the Pedirhyt…
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Send us a text Investment in pediatric care is an investment in our future. So why is our system slow to change? Enter Alison Curfman, MD - co-founder of Imagine Pediatrics, a value-based pediatric medical group pioneering tech-enabled care for chronically ill children. Alison is passionate about improving outcomes, reducing costs, supporting paren…
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Published on Anna's 5th birthday, this episode features Megan DeRuiter, mom to Anna who has Trisomy 13. She discusses the confusion of Anna being given a poor prognosis despite presenting well, the impact of her healthcare background on her early journey and what she has learned about the Trisomy 13 community. Extra To Love is a non-profit organiza…
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This week we follow Night Demon's spring 2024 trek opening for Blind Guardian back onto US soil for a show in Worcester, Massachusetts. You will learn why the show was challenging from a technical standpoint, but how the lads in Night Demon salvaged triumph from the jaws of defeat anyway. Then the narrative shifts to Night Demon's massive gig at th…
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In this week's replay episode from 2 years ago, we review the important topic of troponin levels in children. What is an abnormal high sensitivity troponin level in children and do the levels vary based upon the assay? What are the differences between high sensitivity troponin I and T levels? Are there differences between boys and girls? Why would …
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Send us a text The only barrier to success in the Pursuit of Health is ourselves. Joining to contribute to our ongoing healthcare conversation, is self-described “recovering managed care executive” Ron Howrigon. As President and CEO of Fulcrum Industries, Ron is in the business of helping physicians and hospitals with negotiations for managed care …
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Send us a text How do families navigate the uncharted waters of raising children with congenital heart disease (CHD)? Join us on a groundbreaking episode of Heart to Heart with Anna, where we host our very first live show with a studio audience! With guests like Amanda, Joey, Michael, Ayrton, Regina, Rachel, and Chris, you'll hear raw and honest co…
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Today we have Dr. E Goldblatt Hyatt on the podcast with us. They are an associate professor at Rutgers University in New Jersey. Dr. Goldblatt Hyatt is also a private practice clinician focusing on baby loss and TFMR. We'll be talking about their research on TFMR and queer family making. ... Today's episode is sponsored by: "A way through After TFM…
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Matthew 5:9 ● 2024-09-22 ● Series: The Beatitudes ● Print ● Listen view accompanying Bible study series Peace treaties have shaped history. Did you know the oldest surviving record of an international peace treaty dates back 3300 years? The Treaty of Kadesh was between Rameses II of Egypt and the Hittites. At the time it […]…
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This week we continue with our narrative of Night Demon's spring 2024 tour supporting Blind Guardian in North America. We pick up the tale with an epic show in Montreal, Canada. It was the biggest selling show of the tour, but it came with a variety of logistical challenges. You will hear all about this magical night, complete with audio from the t…
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This week we listen in on a debate from the PICS 2024 Symposium that occurred two weeks ago in San Diego. Today's debate is between master surgeon, Professor of Surgery at UCLA, Dr. Glen S. Van Arsdell taking the position of superiority of primary TOF repair and going up against Dr. Van Arsdell is noted master interventional cardiology expert, Prof…
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This week on Critical Arcade, Nick and Dave strap on their heart-shaped sunglasses and ride into the neon dreamscape of 'Sayonara Wild Hearts.' Described as a "pop album video game," this dazzling rhythmic adventure takes them through a kaleidoscope of vibrant worlds filled with motorcycles, skateboards, laser duels, and heartbreak. As they follow …
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Send us a text How do you condense a lifetime of experiences into a single essay? Megan Tones reveals the challenges and triumphs of contributing to the "Heart of a Heart Warrior" anthology, where she found a way to spotlight positivity amid adversity. Joined by Sheri Turner, a supportive beta reader and CHD advocate, we explore how storytelling ca…
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In this episode of Extra To Love: A Trisomy Podcast, host, Jenn, and her husband, Matt, reflect on the impact of parenting a child with Trisomy 18 on their marriage over the past 6 years. They share their personal experience, lessons they've learned, ways they are still trying to grow and more. They also share the unique experience of navigating a …
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This week we continue telling the tale of Night Demon's adventures supporting Blind Guardian on their spring 2024 North American Tour. We resume the story at a small venue in Des Moines, Iowa, where the band overcame an undersized stage and logistical challenges to deliver a top-notch show. The following day was an 837-mile forced march to Toronto,…
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This week we speak with noted interventional cardiologist Dr. Shyam Sathanandam of LeBonheur Children's Hospital in Memphis, TN about novel, 'off-label' uses of the Amplatzer Piccolo device in children. In what sorts of lesions does Dr. Sathanandam believe this device offers distinct advantages for vascular closure? What is the feature of this devi…
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In the August 2024 episode of the Critical Decisions in Emergency Medicine podcast, Drs. Danya Khoujah and Wendy Chang discuss ECG interpretation in athletes and emergency care for congenital heart defects. As always, you’ll also hear about the hot topics covered in the regular features, including a coughing pediatric patient in Clinical Pediatrics…
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This week on Critical Arcade, Nick and Dave take on the role of everyone's favorite byte-sized robot Astro Bot. After bumping into the galaxy's infamous Space Bully Nebulax, they are tasked with rebuilding their spacefaring PS5 and rounding up all their little robot pals from over 100 different planets some inspired by Playstation's most memorable …
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Send us a text What does it take to recognize the early signs of congenital heart defects (CHD) in a newborn? In this emotionally charged episode of "Heart to Heart with Anna," we welcome Raadhiyah Matthews, who recounts her harrowing journey with her daughter Thaakirah. From the initial dismissals by medical professionals to the profound struggles…
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“How will I know when I’m ready to share my TFMR story and where and how should I share it?” We go into when and how and where you could decide to tell or NOT tell your story of ending your precious pregnancy for health reasons in this episode. SPONSORED BY THE TFMR GRIEF CIRCLE PROGRAM, ASCEND: If you are a bereaved TFMR parent looking for group g…
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Are belief and faith the same thing? Listen as Julie compares the two, and discusses that God not only wants us to have faith, but commands it! Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected fa…
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This week our ongoing deep dive into Night Demon's spring 2024 tour opening for German heavyweights Blind Guardian continues with tour stops in Denver, Colorado and Minneapolis, Minnesota. You will hear what the band did in Colorado to commemorate May 4, including equipping Rocky with a light saber and playing a special Star Wars themed outro at th…
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This week’s episode reviews the notion of the underrepresented in medicine physician and the decision to pursue pediatric cardiology. How would improved representation amongst the congenital heart work force result in better outcomes for patients? How does a diverse workforce foster improved communication with patients? What are some practical step…
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Send us a text What would you do if you suddenly discovered that multiple members of your family were living with an intricate genetic condition? Join us for a heartfelt conversation with Regina Lawrence as she opens up about her family's journey with DiGeorge syndrome (a.k.a. 22q11.2 deletion syndrome). From the moment they learned about Aubrey's …
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This week on Critical Arcade, Nick and Dave dive into the colorful and creative world of The Lego Movie Videogame! Released in 2014, this game tries to capture all the charm, humor, and endless possibilities of the Lego universe, offering players a chance to relive the adventures of Emmet, Wyldstyle, Batman, and a whole host of other iconic charact…
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This week we continue with an in-depth recap of Night Demon’s spring 2024 North American tour supporting German stalwarts Night Demon. We pick up the narrative with the gig in Seattle, Washington. You will hear about Seattle’s significance to the guys, the beautiful historic venue, and how the band navigated logistical challenges including a curfew…
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Chelsi, mom of 5 year old Jazz who has Trisomy 18 (Edwards Syndrome), joins Extra To Love: A Trisomy Podcast to share her wisdom and perspectives on how Jazz's life has impacted their family, if this journey is worth it, the importance of connecting with the trisomy community and more. You definitely don't want to miss this episode! Follow Jazz's j…
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This week we speak with Dr. John Brown who is the Harris B. Schumacker Professor Emeritus of Surgery at the University of Indiana. A congenital heart surgeon for over 45 years, Dr. Brown has performed more than 15,000 pediatric heart operations at Riley Hospital for Children and another 5000 heart operations in adults at IU and Methodist Hospitals.…
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