Artwork

Treść dostarczona przez Gracefully Jen. Cała zawartość podcastów, w tym odcinki, grafika i opisy podcastów, jest przesyłana i udostępniana bezpośrednio przez Gracefully Jen lub jego partnera na platformie podcastów. Jeśli uważasz, że ktoś wykorzystuje Twoje dzieło chronione prawem autorskim bez Twojej zgody, możesz postępować zgodnie z procedurą opisaną tutaj https://pl.player.fm/legal.
Player FM - aplikacja do podcastów
Przejdź do trybu offline z Player FM !

Unraveling the Threads of Invisible Illnesses with Olivia

43:01
 
Udostępnij
 

Manage episode 417963430 series 3407225
Treść dostarczona przez Gracefully Jen. Cała zawartość podcastów, w tym odcinki, grafika i opisy podcastów, jest przesyłana i udostępniana bezpośrednio przez Gracefully Jen lub jego partnera na platformie podcastów. Jeśli uważasz, że ktoś wykorzystuje Twoje dzieło chronione prawem autorskim bez Twojej zgody, możesz postępować zgodnie z procedurą opisaną tutaj https://pl.player.fm/legal.
As your host, Jen, I've witnessed firsthand the transformative power of getting the right diagnosis - it's a journey that can be as tumultuous as it is enlightening. That's why I invited Olivia Dennis to the show, where she bravely recounts her quest through the tangled healthcare system, grappling with the often invisible web of IBS, anxiety, OCD, and autism. Olivia's candid narrative strikes a chord, revealing the emotional toll of being misunderstood and the subsequent liberation of understanding her true self after an autism diagnosis at 19. Her resilience is a beacon for anyone feeling lost in the labyrinth of healthcare.
Our exploration of chronic illness doesn't stop there. Olivia courageously steps into the spotlight, shedding light on her life with a spectrum of genetic and chronic health conditions, including POTS, CMT, fibromyalgia, and gastroparesis. Her story is a testament to the relentless pursuit of balance between treatments and lifestyle changes, which includes a daily regimen of managing symptoms that could easily overwhelm the strongest among us. Our guest's insights into the genetic intricacies of CMT and the pervasive influence of fibromyalgia offer a poignant reminder of the complex battles fought behind the smiles of those with invisible illnesses.
Wrapping up with a touch of warmth and compassion, Olivia opened up about the joy she found in assembling spoonie boxes for fellow chronically ill young adults, a project that has seen 58 care packages spread light across the country. These acts of kindness, along with the steadfast support of therapy, family, and the unwavering love of pets, have become a cornerstone of her personal journey. Through stories of validation, laughter, and faith, this episode celebrates the indomitable spirit that unites us in the face of life's greatest health challenges. Join us for an episode filled with raw emotion, unwavering courage, and the healing power of community.
Instagram accounts: @oliviardennis
@yourpainhasapurpose
Info & Funding for Spoonie Boxes: https://www.gofundme.com/f/fund-care-boxes-for-chronically-ill-teens
Mental health resources: https://linktr.ee/mental.health.support
Olivia’s favorite ice packs: https://www.releafpack.com

Send us a text

Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/

Discount Codes:

GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

  continue reading

Rozdziały

1. Unraveling the Threads of Invisible Illnesses with Olivia (00:00:00)

2. Olivia's Health Diagnosis Journey (00:00:09)

3. Living With Multiple Chronic Illnesses (00:17:10)

4. Managing Chronic Health Conditions (00:22:43)

5. Creating Spoonie Boxes for Chronic Illness (00:29:23)

124 odcinków

Artwork
iconUdostępnij
 
Manage episode 417963430 series 3407225
Treść dostarczona przez Gracefully Jen. Cała zawartość podcastów, w tym odcinki, grafika i opisy podcastów, jest przesyłana i udostępniana bezpośrednio przez Gracefully Jen lub jego partnera na platformie podcastów. Jeśli uważasz, że ktoś wykorzystuje Twoje dzieło chronione prawem autorskim bez Twojej zgody, możesz postępować zgodnie z procedurą opisaną tutaj https://pl.player.fm/legal.
As your host, Jen, I've witnessed firsthand the transformative power of getting the right diagnosis - it's a journey that can be as tumultuous as it is enlightening. That's why I invited Olivia Dennis to the show, where she bravely recounts her quest through the tangled healthcare system, grappling with the often invisible web of IBS, anxiety, OCD, and autism. Olivia's candid narrative strikes a chord, revealing the emotional toll of being misunderstood and the subsequent liberation of understanding her true self after an autism diagnosis at 19. Her resilience is a beacon for anyone feeling lost in the labyrinth of healthcare.
Our exploration of chronic illness doesn't stop there. Olivia courageously steps into the spotlight, shedding light on her life with a spectrum of genetic and chronic health conditions, including POTS, CMT, fibromyalgia, and gastroparesis. Her story is a testament to the relentless pursuit of balance between treatments and lifestyle changes, which includes a daily regimen of managing symptoms that could easily overwhelm the strongest among us. Our guest's insights into the genetic intricacies of CMT and the pervasive influence of fibromyalgia offer a poignant reminder of the complex battles fought behind the smiles of those with invisible illnesses.
Wrapping up with a touch of warmth and compassion, Olivia opened up about the joy she found in assembling spoonie boxes for fellow chronically ill young adults, a project that has seen 58 care packages spread light across the country. These acts of kindness, along with the steadfast support of therapy, family, and the unwavering love of pets, have become a cornerstone of her personal journey. Through stories of validation, laughter, and faith, this episode celebrates the indomitable spirit that unites us in the face of life's greatest health challenges. Join us for an episode filled with raw emotion, unwavering courage, and the healing power of community.
Instagram accounts: @oliviardennis
@yourpainhasapurpose
Info & Funding for Spoonie Boxes: https://www.gofundme.com/f/fund-care-boxes-for-chronically-ill-teens
Mental health resources: https://linktr.ee/mental.health.support
Olivia’s favorite ice packs: https://www.releafpack.com

Send us a text

Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/

Discount Codes:

GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

  continue reading

Rozdziały

1. Unraveling the Threads of Invisible Illnesses with Olivia (00:00:00)

2. Olivia's Health Diagnosis Journey (00:00:09)

3. Living With Multiple Chronic Illnesses (00:17:10)

4. Managing Chronic Health Conditions (00:22:43)

5. Creating Spoonie Boxes for Chronic Illness (00:29:23)

124 odcinków

כל הפרקים

×
 
Loading …

Zapraszamy w Player FM

Odtwarzacz FM skanuje sieć w poszukiwaniu wysokiej jakości podcastów, abyś mógł się nią cieszyć już teraz. To najlepsza aplikacja do podcastów, działająca na Androidzie, iPhonie i Internecie. Zarejestruj się, aby zsynchronizować subskrypcje na różnych urządzeniach.

 

Skrócona instrukcja obsługi

Posłuchaj tego programu podczas zwiedzania
Odtwarzanie